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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260515T200000
DTEND;TZID=America/New_York:20260515T210000
DTSTAMP:20260423T155048
CREATED:20250113T183749Z
LAST-MODIFIED:20250113T183753Z
UID:10002158-1778875200-1778878800@umdf.org
SUMMARY:Teen and Young Adult Virtual Meet-Up Ages 16-35
DESCRIPTION:UMDF Teen/Young Adult \n“Virtual Meet-Up” \nTeens and Young Adults Age 16-35 \nEvery Friday!\n8:00pm ET \nJoin us EVERY Friday for a VIRTUAL Meet-Up! \nJoin us for this “Virtual Meet-Up”! It is tough being stuck at home\, but you are not alone. Let’s get together\, share coping tips and have some FUN! \nUMDF Support Ambassadors\, Kristi Dellinger and Devin Shuman will lead these calls.\nSee you on Friday! \nRegister in advance for this meeting:\nIf you registered last week\, you can use the same information to join every week!\nClick Here to Register Now \nAfter registering\, you will receive a confirmation email containing information about joining the meeting. \nIf you have questions\, please email Margaret Moore at margaret.moore@umdf.org
URL:https://umdf.org/event/young-adult-virtual-happy-hour-ages-16-35-2-2-2-2021-01-22-2-3-2/2026-05-15/
CATEGORIES:Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260514T200000
DTEND;TZID=America/New_York:20260514T213000
DTSTAMP:20260423T155048
CREATED:20240109T041301Z
LAST-MODIFIED:20260309T143149Z
UID:10004450-1778788800-1778794200@umdf.org
SUMMARY:Navigating Education with LHON
DESCRIPTION:This Zoom event is your chance to connect with other students\, educators\, parents and other sighted supporters to discuss Navigating Education with LHON. \nPlease feel free to invite anyone who would benefit from this discussion to join this casual\, lively Zoom event. Bring any questions\, tips or suggestions you may have\, as the discussion will cover the topics of interest to those who attend! \nThere’s also a Facebook group for this topic at: https://www.facebook.com/groups/1239982996028116 \nJoin Details:\nOne option is to use Internet Audio to call at no charge at: https://umdf.zoom.us/j/95371313871\nMeeting ID: 953 7131 3871 \nOr if your phone plan includes Unlimited Minutes\, then here are Toll Charge numbers to one-click call:\n+16699006833\,\,95371313871#\n+16468769923\,\,95371313871#
URL:https://umdf.org/event/navigating-education-with-lhon/2026-05-14/
CATEGORIES:Education,LHON,Support Meeting
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260513T200000
DTEND;TZID=America/New_York:20260513T210000
DTSTAMP:20260423T155048
CREATED:20260226T144407Z
LAST-MODIFIED:20260226T144407Z
UID:10004421-1778702400-1778706000@umdf.org
SUMMARY:LHON - Young Adults
DESCRIPTION:This call is ONLY for young adults (18 and over) who are affected with LHON vision loss. Consider joining the call to share your experiences with others in a similar situation.\n\nPlease contact Molly Garrone at mollyeknox@gmail.com with any questions. \n\nJoin Details:\nOne option is to use Internet Audio to call at no charge at: https://umdf.zoom.us/j/95371313871\nMeeting ID: 953 7131 3871 \nOr if your phone plan includes Unlimited Minutes\, then here are Toll Charge numbers to one-click call:\n+16699006833\,\,95371313871#\n+16468769923\,\,95371313871#
URL:https://umdf.org/event/lhon-young-adults/2026-05-13/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260513T120000
DTEND;TZID=America/New_York:20260513T130000
DTSTAMP:20260423T155048
CREATED:20250108T144422Z
LAST-MODIFIED:20250121T173952Z
UID:10003576-1778673600-1778677200@umdf.org
SUMMARY:Support Group for All
DESCRIPTION:When: The Second Wednesday of each month at 12:00 PM Eastern Time (US and Canada) \nRegister in advance for this meeting: \nhttps://umdf.zoom.us/meeting/register/tZcpcumsrTsiH9w1_pPmjbc-KqRCAIrmQCKt \nAfter registering\, you will receive a confirmation email containing information about joining the meeting.
URL:https://umdf.org/event/support-group-for-all/2026-05-13/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260508T200000
DTEND;TZID=America/New_York:20260508T210000
DTSTAMP:20260423T155048
CREATED:20250113T183749Z
LAST-MODIFIED:20250113T183753Z
UID:10002157-1778270400-1778274000@umdf.org
SUMMARY:Teen and Young Adult Virtual Meet-Up Ages 16-35
DESCRIPTION:UMDF Teen/Young Adult \n“Virtual Meet-Up” \nTeens and Young Adults Age 16-35 \nEvery Friday!\n8:00pm ET \nJoin us EVERY Friday for a VIRTUAL Meet-Up! \nJoin us for this “Virtual Meet-Up”! It is tough being stuck at home\, but you are not alone. Let’s get together\, share coping tips and have some FUN! \nUMDF Support Ambassadors\, Kristi Dellinger and Devin Shuman will lead these calls.\nSee you on Friday! \nRegister in advance for this meeting:\nIf you registered last week\, you can use the same information to join every week!\nClick Here to Register Now \nAfter registering\, you will receive a confirmation email containing information about joining the meeting. \nIf you have questions\, please email Margaret Moore at margaret.moore@umdf.org
URL:https://umdf.org/event/young-adult-virtual-happy-hour-ages-16-35-2-2-2-2021-01-22-2-3-2/2026-05-08/
CATEGORIES:Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260507T200000
DTEND;TZID=America/New_York:20260507T210000
DTSTAMP:20260423T155048
CREATED:20231019T142537Z
LAST-MODIFIED:20251209T192747Z
UID:10002435-1778184000-1778187600@umdf.org
SUMMARY:Adult Virtual Support Meeting
DESCRIPTION:Adult Virtual Support Meeting \nHello Adults impacted by Mitochondrial Disease! Please join us for an Adult Virtual Support Meeting. \nWe will get to know each other\, share resources\, and build community! \nJoin us for a VIRTUAL MEETING!\nThe FIRST Thursday of every month!\n8:00pm-9:00pm ET\nRegister HERE \nAfter registering\, you will receive a confirmation email containing information about joining the meeting. \nFor questions\, please email Margaret Moore at: margaret.moore@5mr.c80.myftpupload.com \nTHANK YOU TO OUR SPONSORS \nEdith L. Trees Charitable Trust \nAstellas \nJack Edwards Family Impact Fund \n  \n 
URL:https://umdf.org/event/adult-virtual-support-meetingsep2022-2-2/2026-05-07/
CATEGORIES:Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260506T200000
DTEND;TZID=America/New_York:20260506T210000
DTSTAMP:20260423T155048
CREATED:20250227T153450Z
LAST-MODIFIED:20250313T133520Z
UID:10003797-1778097600-1778101200@umdf.org
SUMMARY:LHON Live! Monthly Call
DESCRIPTION:NOTE: Unless specific to a geographic location – all LHON virtual meetings will be set in Eastern Time. \nThis call is for everyone interested in LHON…those affected\, carriers\, or sighted supporters…all are welcome.  You can speak up and share your thoughts\, or just listen to what others have to say…It’s your call!  Hosts Jessica Loomer and Andy Marks facilitate this call. \nRecordings from prior LHON Live! calls are located at this link: https://www.umdf.org/types/lhon/ \nReach out to Jessica Loomer at jessica.loomer@gmail.com or Andy Marks at marks.andy.c@gmail.com with any questions. \nJoin Details:\nOne option is to use Internet Audio to call at no charge at: https://umdf.zoom.us/j/95371313871\nMeeting ID: 953 7131 3871 \nOr if your phone plan includes Unlimited Minutes\, then here are Toll Charge numbers to one-click call: \n+13017158592\,\,95371313871# US\n+13126266799\,\,95371313871# US\nCanada: +16475580588\,\,95371313871#\nAustralia: +61280152088\,\,95371313871#\nUK: +442034815240\,\,95371313871# \nFor callers in other countries\, find your local number here: https://zoom.us/u/aYbvpoNU9\nMeeting ID: 953 7131 3871 \nClick Here for Previous LHON Live! Recordings  \n 
URL:https://umdf.org/event/lhon-live-monthly-call/2026-05-06/
CATEGORIES:LHON,Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20260504T100000
DTEND;TZID=America/Los_Angeles:20260504T110000
DTSTAMP:20260423T155048
CREATED:20240708T192355Z
LAST-MODIFIED:20250828T233020Z
UID:10003196-1777888800-1777892400@umdf.org
SUMMARY:California Virtual Support Group Meeting
DESCRIPTION:UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips\, share your story and connect with others. We hope you will attend and see that you are not alone. \nThe first Monday of each month• 10:00am – 11:00am Pacific \nLearn more & register here. \nRegistration is required\, and you will receive a confirmation email with information to join the meeting. If you have any questions\, contact Margaret Moore at margaret.moore@5mr.c80.myftpupload.com or 412-354-1553. \nVisit the UMDF Event Calendar for all updates and upcoming events here. \nSpecial Thanks to our Sponsors\nEdith L. Trees Charitable Trust
URL:https://umdf.org/event/california-virtual-support-group-meeting-2022-09-05-3-2-2-2/2026-05-04/
CATEGORIES:Pacific,Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260501T200000
DTEND;TZID=America/New_York:20260501T210000
DTSTAMP:20260423T155048
CREATED:20250113T183749Z
LAST-MODIFIED:20250113T183753Z
UID:10002156-1777665600-1777669200@umdf.org
SUMMARY:Teen and Young Adult Virtual Meet-Up Ages 16-35
DESCRIPTION:UMDF Teen/Young Adult \n“Virtual Meet-Up” \nTeens and Young Adults Age 16-35 \nEvery Friday!\n8:00pm ET \nJoin us EVERY Friday for a VIRTUAL Meet-Up! \nJoin us for this “Virtual Meet-Up”! It is tough being stuck at home\, but you are not alone. Let’s get together\, share coping tips and have some FUN! \nUMDF Support Ambassadors\, Kristi Dellinger and Devin Shuman will lead these calls.\nSee you on Friday! \nRegister in advance for this meeting:\nIf you registered last week\, you can use the same information to join every week!\nClick Here to Register Now \nAfter registering\, you will receive a confirmation email containing information about joining the meeting. \nIf you have questions\, please email Margaret Moore at margaret.moore@umdf.org
URL:https://umdf.org/event/young-adult-virtual-happy-hour-ages-16-35-2-2-2-2021-01-22-2-3-2/2026-05-01/
CATEGORIES:Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260429T200000
DTEND;TZID=America/New_York:20260429T210000
DTSTAMP:20260423T155048
CREATED:20260226T142149Z
LAST-MODIFIED:20260226T143638Z
UID:10004419-1777492800-1777496400@umdf.org
SUMMARY:LHON - Teens
DESCRIPTION:This call is ONLY for teens (under 18) who are affected with LHON vision loss. Consider joining the call to share your experiences with others in a similar situation. \nPlease contact Molly Garrone at mollyeknox@gmail.com with any questions. \nJoin Details:\nOne option is to use Internet Audio to call at no charge at: https://umdf.zoom.us/j/95371313871 \nMeeting ID: 953 7131 3871 \nOr if your phone plan includes Unlimited Minutes\, then here are Toll Charge numbers to one-click call:\n+16699006833\,\,95371313871#\n+16468769923\,\,95371313871#
URL:https://umdf.org/event/lhon-teens-2/2026-04-29/
CATEGORIES:LHON,Support Meeting
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260428T120000
DTEND;TZID=America/New_York:20260428T133000
DTSTAMP:20260423T155048
CREATED:20251124T175816Z
LAST-MODIFIED:20251205T200913Z
UID:10004211-1777377600-1777383000@umdf.org
SUMMARY:Mindfulness with Mary Series (monthly)
DESCRIPTION:Please join us for a monthly Mindfulness series with UMDF Support Ambassador\, Mary Canton. We will host these sessions every fourth Tuesday from 12:00pm -1:30pm ET. \nYou can register HERE
URL:https://umdf.org/event/mindfulness-with-mary-series-2-2-2/2026-04-28/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260427T200000
DTEND;TZID=America/New_York:20260427T213000
DTSTAMP:20260423T155048
CREATED:20260219T125302Z
LAST-MODIFIED:20260309T145651Z
UID:10004401-1777320000-1777325400@umdf.org
SUMMARY:LHON Assistive Technology
DESCRIPTION:This Zoom event is for anyone interested in discussing LHON & Assistive Technology. The event is led by Sara Nappi. Sara is affected by LHON\, and she is an Assistive Technology instructor. \nThere is also a Facebook group: LHON Assistive Technology\n\nTo join the Zoom event\, use the link below:\nhttps://umdf.zoom.us/j/95371313871\n\nMeeting ID: 953 7131 3871\n\nOr join by phone with one tap mobile:\n+16699006833\,\,95371313871#\n+16468769923\,\,95371313871#\n\nCanada: +16475580588\,\,95371313871#\nAustralia: +61280152088\,\,95371313871#\nUK: +442034815240\,\,95371313871#\nFor callers in other countries\, find your local number here:\nhttps://zoom.us/u/aYbvpoNU9\nMeeting ID: 953 7131 3871 \nPlease direct message Sara Nappi with any questions\, concerns or topic suggestions. \n\n\n\n\n\nMore details\nMore details\nCopy to my calendar\nCopy to my calendar
URL:https://umdf.org/event/lhon-assistive-technology-2/2026-04-27/
CATEGORIES:LHON,Support Meeting
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20260425T103000
DTEND;TZID=America/Chicago:20260425T120000
DTSTAMP:20260423T155048
CREATED:20260401T183522Z
LAST-MODIFIED:20260401T183522Z
UID:10004462-1777113000-1777118400@umdf.org
SUMMARY:Minnesota In-Person Support Meeting
DESCRIPTION:We’d love to invite you to a casual\, in-person support gathering for individuals and families impacted by mitochondrial disease here in Minnesota. \nLiving with mitochondrial disease can feel isolating at times\, but you are not alone. This gathering is an opportunity to connect with others who understand the journey—whether you’re a patient\, parent\, caregiver\, or loved one. \nWhat to expect: \n\nA relaxed\, informal setting\nTime to share experiences (only if you feel comfortable)\nConnection\, understanding\, and community\nLight refreshments and conversation\n\nDetails:\n📍 Location: Anoka County Library\n410 Mississippi Street NE\nMinneapolis\,  Minnesota 55432 \n📅 Date: April 25\, 2026\n⏰ Time: 10:30am-12:00pm CT \nThere’s no agenda—just a chance to come together\, support one another\, and build meaningful connections. \nWhether this is your first time meeting others in the mitochondrial community or you’ve been connected for years\, we welcome you. \nPlease feel free to bring a friend\, family member\, or caregiver. \nIf you’re interested in attending or have any questions\, please reach out to Margaret Moore at margaret.moore@umdf.org \nWe hope to see you there!
URL:https://umdf.org/event/minnesota-in-person-support-meeting/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260424T200000
DTEND;TZID=America/New_York:20260424T210000
DTSTAMP:20260423T155048
CREATED:20250113T183749Z
LAST-MODIFIED:20250113T183753Z
UID:10002155-1777060800-1777064400@umdf.org
SUMMARY:Teen and Young Adult Virtual Meet-Up Ages 16-35
DESCRIPTION:UMDF Teen/Young Adult \n“Virtual Meet-Up” \nTeens and Young Adults Age 16-35 \nEvery Friday!\n8:00pm ET \nJoin us EVERY Friday for a VIRTUAL Meet-Up! \nJoin us for this “Virtual Meet-Up”! It is tough being stuck at home\, but you are not alone. Let’s get together\, share coping tips and have some FUN! \nUMDF Support Ambassadors\, Kristi Dellinger and Devin Shuman will lead these calls.\nSee you on Friday! \nRegister in advance for this meeting:\nIf you registered last week\, you can use the same information to join every week!\nClick Here to Register Now \nAfter registering\, you will receive a confirmation email containing information about joining the meeting. \nIf you have questions\, please email Margaret Moore at margaret.moore@umdf.org
URL:https://umdf.org/event/young-adult-virtual-happy-hour-ages-16-35-2-2-2-2021-01-22-2-3-2/2026-04-24/
CATEGORIES:Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20260423T190000
DTEND;TZID=America/Chicago:20260423T200000
DTSTAMP:20260423T155048
CREATED:20240620T144219Z
LAST-MODIFIED:20251209T192223Z
UID:10001405-1776970800-1776974400@umdf.org
SUMMARY:Central Region Virtual Support Meeting
DESCRIPTION:Central Region Virtual Support Meeting \nUMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips\, share your story and connect with others. We hope you will attend and see that you are not alone. \nFourth Thursday of each month • 7:00pm – 8:00pm Central \nLearn more & register here. \nRegistration is required\, and you will receive a confirmation email with information to join the meeting. If you have any questions\, contact Margaret Moore at margaret.moore@5mr.c80.myftpupload.com or 412-744-1061 Ext 105. \nVisit the UMDF Event Calendar for all updates and upcoming events here.  \nSpecial Thanks to our Sponsors\nEdith L. Trees Charitable Trust • Jack Edwards Family Impact Fund
URL:https://umdf.org/event/central-region-virtual-support-meeting-2/2026-04-23/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260421T200000
DTEND;TZID=America/New_York:20260421T210000
DTSTAMP:20260423T155048
CREATED:20260226T150155Z
LAST-MODIFIED:20260226T150157Z
UID:10003938-1776801600-1776805200@umdf.org
SUMMARY:LHON Onset at Age 60+
DESCRIPTION:Were you affected by LHON at age 60 or older? Would you like to network with others in a similar situation? If so\, you are welcome to join our Zoom networking event exclusively for individuals affected at age 60 or older. This Zoom event is a great opportunity to get to know each other and share LHON-related experiences. This event is led by Howard Sumner and Jessica Loomer.\n\nJoin Details:\nOne option is to use Internet Audio to call at no charge at: https://umdf.zoom.us/j/95371313871 \nMeeting ID: 953 7131 3871 \nOr if your phone plan includes Unlimited Minutes\, then here are Toll Charge numbers to one-click call: \n+16699006833\,\,95371313871#\n+16468769923\,\,95371313871#
URL:https://umdf.org/event/lhon-onset-at-age-60-2/2026-04-21/
CATEGORIES:LHON,Support Meeting
ORGANIZER;CN="Kara Strittmatter":MAILTO:kara@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260420T200000
DTEND;TZID=America/New_York:20260420T210000
DTSTAMP:20260423T155048
CREATED:20240117T130219Z
LAST-MODIFIED:20260209T142232Z
UID:10003862-1776715200-1776718800@umdf.org
SUMMARY:Parent and Caregiver Virtual Support Meeting
DESCRIPTION:Parent and Caregiver Virtual Support Meeting \nHello Parents and Caregivers impacted by Mitochondrial Disease! Please join us for a Parent and Caregiver Virtual Support Meeting. \nWe will get to know each other\, share resources\, and build community! \nJoin us for a VIRTUAL MEETING!\nThe THIRD Monday of every month!\n8:00pm-9:00pm ET\nRegister HERE \nAfter registering\, you will receive a confirmation email containing information about joining the meeting. \nFor questions\, please email Margaret Moore at: margaret.moore@umdf.org \nTHANK YOU TO OUR SPONSORS \nEdith L. Trees Charitable Trust \nAstellas \nJack Edwards Family Impact Fund
URL:https://umdf.org/event/parent-and-caregiver-virtual-support-meeting/2026-04-20/
CATEGORIES:Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260418T100000
DTEND;TZID=America/New_York:20260418T120000
DTSTAMP:20260423T155048
CREATED:20240111T130250Z
LAST-MODIFIED:20250206T185233Z
UID:10002980-1776506400-1776513600@umdf.org
SUMMARY:Northeast PA Support Meeting
DESCRIPTION:  \nSupport Meeting- Northeast PA \nThird Saturday of each Month- In-Person \n10:00pm – 12:00pm Eastern\nSt. Luke’s Hospital\nPriscilla Payne Hurd Education Room\nRoom 104\n801 Ostrum Street\nBethlehem\, PA 18015\n \n  \nYou are not alone. Join us to share coping tips and connect with others. \nWe will meet the 3rd Saturday of each month! \n1:00pm – 3:00pm \nFor questions\, please contact Grace Robinson or Janelle Frank\, the Support Group Leaders:\ngracerobinson13@gmail.com or janelle.frank13@gmail.com
URL:https://umdf.org/event/support-group-meeting-nepa-2-2021-01-16-2021-02-20-2-2/2026-04-18/
CATEGORIES:Northeast
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260417T200000
DTEND;TZID=America/New_York:20260417T210000
DTSTAMP:20260423T155048
CREATED:20250113T183749Z
LAST-MODIFIED:20250113T183753Z
UID:10002154-1776456000-1776459600@umdf.org
SUMMARY:Teen and Young Adult Virtual Meet-Up Ages 16-35
DESCRIPTION:UMDF Teen/Young Adult \n“Virtual Meet-Up” \nTeens and Young Adults Age 16-35 \nEvery Friday!\n8:00pm ET \nJoin us EVERY Friday for a VIRTUAL Meet-Up! \nJoin us for this “Virtual Meet-Up”! It is tough being stuck at home\, but you are not alone. Let’s get together\, share coping tips and have some FUN! \nUMDF Support Ambassadors\, Kristi Dellinger and Devin Shuman will lead these calls.\nSee you on Friday! \nRegister in advance for this meeting:\nIf you registered last week\, you can use the same information to join every week!\nClick Here to Register Now \nAfter registering\, you will receive a confirmation email containing information about joining the meeting. \nIf you have questions\, please email Margaret Moore at margaret.moore@umdf.org
URL:https://umdf.org/event/young-adult-virtual-happy-hour-ages-16-35-2-2-2-2021-01-22-2-3-2/2026-04-17/
CATEGORIES:Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260415T200000
DTEND;TZID=America/New_York:20260415T213000
DTSTAMP:20260423T155048
CREATED:20250206T185144Z
LAST-MODIFIED:20260309T144427Z
UID:10004395-1776283200-1776288600@umdf.org
SUMMARY:Dads of LHON - Affected "Kids of All Ages"
DESCRIPTION:The bimonthly call for Dads of LHON-Affected “Kids of All Ages” takes place on the third Wednesday of every other month at 8:00pm Eastern/5:00pm Pacific. If you’re a dad of someone affected by LHON\, consider joining the call and sharing your experiences with others in a similar situation.  Hosts Tony Wright and Jim Tolve host this open-discussion format call. Reach out to Jim Tolve at jetragnar@gmail.com or Tony Wright at AWright201@gmail.com with any questions. \nThere’s also a Facebook group for Dads of LHON-Affected”Kids of All Ages” located at this link: https://www.facebook.com/groups/175672076390420 \nJoin Details:\nOne option is to use Internet Audio to call at no charge at: https://umdf.zoom.us/j/95371313871 \nMeeting ID: 953 7131 3871 \nOr if your phone plan includes Unlimited Minutes\, then here are Toll Charge numbers to one-click call:\n+16699006833\,\,95371313871#\n+16468769923\,\,95371313871#
URL:https://umdf.org/event/dads-of-lhon-affected-kids-of-all-ages/2026-04-15/
CATEGORIES:LHON,Support Meeting
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260415T190000
DTEND;TZID=America/New_York:20260415T200000
DTSTAMP:20260423T155048
CREATED:20260127T020154Z
LAST-MODIFIED:20260127T195457Z
UID:10004344-1776279600-1776283200@umdf.org
SUMMARY:UMDF Ask the Mito Doc Webcast Series – Genetics 101
DESCRIPTION:The United Mitochondrial Disease Foundation is pleased to offer the Ask the Mito Doc Webcast Series on a monthly basis to keep our patients and families connected to the mitochondrial medical community.  Each month\, we will highlight a specific topic with a short presentation and allow 15-20 minutes for question and answer time with the clinicians and guest speakers.  \n\nJoin us on April 15\, 2026\nat 4:00pm Pacific/5:00pm Mountain/6:00pm Central/7:00pm Eastern \nClick Here to Register \nAgenda \n\nGenetics 101\n \nModerator: Margaret Moore\, UMDF Associate Director of Support & Education \nSpeaker: Fernando Scaglia\, MD\, Baylor College of Medicine\, Houston\, TX \n\n\nWe invite you to submit your questions for the Ask the Mito Doc webcast in advance.  We will take as many questions as possible before\, during and after the webinar.  Question and Answer Protocol – Most questions pertinent to the monthly topic are typically addressed during the presentation(s).  Please note that not all questions can be answered through this forum.  If you submit a question and do not receive a response\, please do not hesitate to contact us at margaret.moore@umdf.org.  \nClick Here to Submit Your Question! \nWe hope you can join us April 15\, 2026.  Registration is required.  After registering\, you will receive a confirmation email with Zoom credentials.  \nIf you are new to using ZOOM\, we suggest that you log in early on your computer or the device you plan to use.  Feel free to log in to the meeting link today.  It is so important that you do this in advance as we may not be able to assist you once the webcast begins.  If you have any questions\, contact Margaret Moore at margaret.moore@umdf.org or 412-744-1061\, ext 105. \nWe are committed to providing needed support for our patient community.   \nCall our support line at 1-888-900-MITO to speak with a member of our patient services team.\nAlways remember\, we are here to help you and your family through your journey! \nSpecial Thanks to \n  \n \n 
URL:https://umdf.org/event/umdf-ask-the-mito-doc-webcast-series-genetics-101/
CATEGORIES:Ask the Mito Doc,Education
ORGANIZER;CN="Kara Strittmatter":MAILTO:kara@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260410T200000
DTEND;TZID=America/New_York:20260410T210000
DTSTAMP:20260423T155048
CREATED:20250113T183749Z
LAST-MODIFIED:20250113T183753Z
UID:10002153-1775851200-1775854800@umdf.org
SUMMARY:Teen and Young Adult Virtual Meet-Up Ages 16-35
DESCRIPTION:UMDF Teen/Young Adult \n“Virtual Meet-Up” \nTeens and Young Adults Age 16-35 \nEvery Friday!\n8:00pm ET \nJoin us EVERY Friday for a VIRTUAL Meet-Up! \nJoin us for this “Virtual Meet-Up”! It is tough being stuck at home\, but you are not alone. Let’s get together\, share coping tips and have some FUN! \nUMDF Support Ambassadors\, Kristi Dellinger and Devin Shuman will lead these calls.\nSee you on Friday! \nRegister in advance for this meeting:\nIf you registered last week\, you can use the same information to join every week!\nClick Here to Register Now \nAfter registering\, you will receive a confirmation email containing information about joining the meeting. \nIf you have questions\, please email Margaret Moore at margaret.moore@umdf.org
URL:https://umdf.org/event/young-adult-virtual-happy-hour-ages-16-35-2-2-2-2021-01-22-2-3-2/2026-04-10/
CATEGORIES:Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260409T200000
DTEND;TZID=America/New_York:20260409T210000
DTSTAMP:20260423T155048
CREATED:20240109T032102Z
LAST-MODIFIED:20250313T195021Z
UID:10004029-1775764800-1775768400@umdf.org
SUMMARY:LHON Southeast Connect
DESCRIPTION:Note: The DC-Area group merged with this group at the end of 2024. Please join this call moving forward if you are in the DC area. \nThis call is for those living in the DC area\, Georgia\, and Florida with an interest in LHON. Consider joining the call and sharing your experiences with others in a similar situation. \nThere are also Facebook groups for these areas: \n  \n\nDC area: https://www.facebook.com/groups/243446586122096\nGeorgia: https://www.facebook.com/groups/2157760391116970\nFlorida: https://www.facebook.com/groups/867332836666024\n\n  \nJoin Details:\nOne option is to use Internet Audio to call at no charge at: https://umdf.zoom.us/j/95371313871 \nMeeting ID: 953 7131 3871 \nOr if your phone plan includes Unlimited Minutes\, then here are Toll Charge numbers to one-click call:\n+16699006833\,\,95371313871#\n+16468769923\,\,95371313871#
URL:https://umdf.org/event/lhon-southeast-connect/2026-04-09/
CATEGORIES:LHON,Southeast,Support Meeting
ORGANIZER;CN="Kara Strittmatter":MAILTO:kara@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260408T220000
DTEND;TZID=America/New_York:20260408T233000
DTSTAMP:20260423T155048
CREATED:20241001T160506Z
LAST-MODIFIED:20250313T140407Z
UID:10003975-1775685600-1775691000@umdf.org
SUMMARY:LHON West Connect
DESCRIPTION:The LHON Southwest & LHON Pacific Northwest groups have merged!\n\nThis Zoom event is a great opportunity to connect and discuss resources of interest to the Southwest LHON (previously California) & Northwest LHON communities! Consider joining the call to share your experiences with others in a similar situation. Contact Bob Banks with any questions at rwbanks@hotmail.com or Patrick Doolittle at doolittlepc@gmail.com with any questions. \nThere are also Facebook groups for those in the Southwest & Northwest areas: \n\nSouthwest: https://www.facebook.com/groups/1634812156795801\nNorthwest: https://www.facebook.com/groups/240239936350807\n\nJoin Details:\nOne option is to use Internet Audio to call at no charge at: https://umdf.zoom.us/j/95371313871 \nMeeting ID: 953 7131 3871 \nOr if your phone plan includes Unlimited Minutes\, then here are Toll Charge numbers to  one-click call:\n+16699006833\,\,95371313871#\n+16468769923\,\,95371313871#
URL:https://umdf.org/event/lhon-west-connect/2026-04-08/
CATEGORIES:LHON,Pacific,Southwest,Support Meeting,West
ORGANIZER;CN="Kara Strittmatter":MAILTO:kara@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260408T120000
DTEND;TZID=America/New_York:20260408T130000
DTSTAMP:20260423T155048
CREATED:20250108T144422Z
LAST-MODIFIED:20250121T173952Z
UID:10003575-1775649600-1775653200@umdf.org
SUMMARY:Support Group for All
DESCRIPTION:When: The Second Wednesday of each month at 12:00 PM Eastern Time (US and Canada) \nRegister in advance for this meeting: \nhttps://umdf.zoom.us/meeting/register/tZcpcumsrTsiH9w1_pPmjbc-KqRCAIrmQCKt \nAfter registering\, you will receive a confirmation email containing information about joining the meeting.
URL:https://umdf.org/event/support-group-for-all/2026-04-08/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20260406T100000
DTEND;TZID=America/Los_Angeles:20260406T110000
DTSTAMP:20260423T155048
CREATED:20240708T192355Z
LAST-MODIFIED:20250828T233020Z
UID:10003195-1775469600-1775473200@umdf.org
SUMMARY:California Virtual Support Group Meeting
DESCRIPTION:UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips\, share your story and connect with others. We hope you will attend and see that you are not alone. \nThe first Monday of each month• 10:00am – 11:00am Pacific \nLearn more & register here. \nRegistration is required\, and you will receive a confirmation email with information to join the meeting. If you have any questions\, contact Margaret Moore at margaret.moore@5mr.c80.myftpupload.com or 412-354-1553. \nVisit the UMDF Event Calendar for all updates and upcoming events here. \nSpecial Thanks to our Sponsors\nEdith L. Trees Charitable Trust
URL:https://umdf.org/event/california-virtual-support-group-meeting-2022-09-05-3-2-2-2/2026-04-06/
CATEGORIES:Pacific,Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260403T200000
DTEND;TZID=America/New_York:20260403T210000
DTSTAMP:20260423T155048
CREATED:20250113T183749Z
LAST-MODIFIED:20250113T183753Z
UID:10002152-1775246400-1775250000@umdf.org
SUMMARY:Teen and Young Adult Virtual Meet-Up Ages 16-35
DESCRIPTION:UMDF Teen/Young Adult \n“Virtual Meet-Up” \nTeens and Young Adults Age 16-35 \nEvery Friday!\n8:00pm ET \nJoin us EVERY Friday for a VIRTUAL Meet-Up! \nJoin us for this “Virtual Meet-Up”! It is tough being stuck at home\, but you are not alone. Let’s get together\, share coping tips and have some FUN! \nUMDF Support Ambassadors\, Kristi Dellinger and Devin Shuman will lead these calls.\nSee you on Friday! \nRegister in advance for this meeting:\nIf you registered last week\, you can use the same information to join every week!\nClick Here to Register Now \nAfter registering\, you will receive a confirmation email containing information about joining the meeting. \nIf you have questions\, please email Margaret Moore at margaret.moore@umdf.org
URL:https://umdf.org/event/young-adult-virtual-happy-hour-ages-16-35-2-2-2-2021-01-22-2-3-2/2026-04-03/
CATEGORIES:Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260402T200000
DTEND;TZID=America/New_York:20260402T210000
DTSTAMP:20260423T155048
CREATED:20231019T142537Z
LAST-MODIFIED:20251209T192747Z
UID:10002434-1775160000-1775163600@umdf.org
SUMMARY:Adult Virtual Support Meeting
DESCRIPTION:Adult Virtual Support Meeting \nHello Adults impacted by Mitochondrial Disease! Please join us for an Adult Virtual Support Meeting. \nWe will get to know each other\, share resources\, and build community! \nJoin us for a VIRTUAL MEETING!\nThe FIRST Thursday of every month!\n8:00pm-9:00pm ET\nRegister HERE \nAfter registering\, you will receive a confirmation email containing information about joining the meeting. \nFor questions\, please email Margaret Moore at: margaret.moore@5mr.c80.myftpupload.com \nTHANK YOU TO OUR SPONSORS \nEdith L. Trees Charitable Trust \nAstellas \nJack Edwards Family Impact Fund \n  \n 
URL:https://umdf.org/event/adult-virtual-support-meetingsep2022-2-2/2026-04-02/
CATEGORIES:Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260401T200000
DTEND;TZID=America/New_York:20260401T210000
DTSTAMP:20260423T155048
CREATED:20250227T153450Z
LAST-MODIFIED:20250313T133520Z
UID:10003796-1775073600-1775077200@umdf.org
SUMMARY:LHON Live! Monthly Call
DESCRIPTION:NOTE: Unless specific to a geographic location – all LHON virtual meetings will be set in Eastern Time. \nThis call is for everyone interested in LHON…those affected\, carriers\, or sighted supporters…all are welcome.  You can speak up and share your thoughts\, or just listen to what others have to say…It’s your call!  Hosts Jessica Loomer and Andy Marks facilitate this call. \nRecordings from prior LHON Live! calls are located at this link: https://www.umdf.org/types/lhon/ \nReach out to Jessica Loomer at jessica.loomer@gmail.com or Andy Marks at marks.andy.c@gmail.com with any questions. \nJoin Details:\nOne option is to use Internet Audio to call at no charge at: https://umdf.zoom.us/j/95371313871\nMeeting ID: 953 7131 3871 \nOr if your phone plan includes Unlimited Minutes\, then here are Toll Charge numbers to one-click call: \n+13017158592\,\,95371313871# US\n+13126266799\,\,95371313871# US\nCanada: +16475580588\,\,95371313871#\nAustralia: +61280152088\,\,95371313871#\nUK: +442034815240\,\,95371313871# \nFor callers in other countries\, find your local number here: https://zoom.us/u/aYbvpoNU9\nMeeting ID: 953 7131 3871 \nClick Here for Previous LHON Live! Recordings  \n 
URL:https://umdf.org/event/lhon-live-monthly-call/2026-04-01/
CATEGORIES:LHON,Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260327T200000
DTEND;TZID=America/New_York:20260327T210000
DTSTAMP:20260423T155048
CREATED:20250113T183749Z
LAST-MODIFIED:20250113T183753Z
UID:10002151-1774641600-1774645200@umdf.org
SUMMARY:Teen and Young Adult Virtual Meet-Up Ages 16-35
DESCRIPTION:UMDF Teen/Young Adult \n“Virtual Meet-Up” \nTeens and Young Adults Age 16-35 \nEvery Friday!\n8:00pm ET \nJoin us EVERY Friday for a VIRTUAL Meet-Up! \nJoin us for this “Virtual Meet-Up”! It is tough being stuck at home\, but you are not alone. Let’s get together\, share coping tips and have some FUN! \nUMDF Support Ambassadors\, Kristi Dellinger and Devin Shuman will lead these calls.\nSee you on Friday! \nRegister in advance for this meeting:\nIf you registered last week\, you can use the same information to join every week!\nClick Here to Register Now \nAfter registering\, you will receive a confirmation email containing information about joining the meeting. \nIf you have questions\, please email Margaret Moore at margaret.moore@umdf.org
URL:https://umdf.org/event/young-adult-virtual-happy-hour-ages-16-35-2-2-2-2021-01-22-2-3-2/2026-03-27/
CATEGORIES:Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
END:VCALENDAR