Events
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Adult Virtual Support Meeting
Adult Virtual Support Meeting Hello Adults impacted by Mitochondrial Disease! Please join us for an Adult Virtual Support Meeting. We will get to know each other, share resources, and build community! Join us […]
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Teen and Young Adult Virtual Meet-Up Ages 16-35
UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It […]
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Energy for Life Walk – Indianapolis
Coxhall Gardens Children's Pavilion 11677 Towne Road, Carmel, INENERGY FOR LIFE WALK INDIANAPOLIS LOCATION Coxhall Gardens - Children's Pavilion SCHEDULE Site Opens: 10:00 AM Opening Ceremony: 11:00 AM CONTACT Monika Hancock - 412-225-9066
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Energy for Life Walk – Delaware Valley
Pennington Park 801 Creek Road, Delanco, New JerseyENERGY FOR LIFE WALK DELAWARE VALLEY LOCATION Pennington Park SCHEDULE Site Opens: 10:30 AM Opening Ceremony: 11:30 AM CONTACT Monika Hancock - 412-225-9066
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LHON Live! Monthly Call
NOTE: Unless specific to a geographic location - all LHON virtual meetings will be set in Eastern Time. This call is for everyone interested in LHON...those affected, carriers, or sighted supporters...all are welcome. You can speak up and share your thoughts, or just listen to what others have to say...It's your call! Hosts Jessica Loomer and Andy […]
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Energy for Life Walk – Chicago
Katherine Legge Memorial Park 5901 County Line Road, Hinsdale, IL, United StatesENERGY FOR LIFE WALK CHICAGO LOCATION Katherine Legge Memorial Park SCHEDULE Site Opens: 9:00 AM Opening Ceremony: 10:00 AM CONTACT Angela Sommer - 412-744-1066
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TK2d Tuesday
Thymidine kinase 2 deficiency (TK2d) is a rare mitochondrial disease that impacts people around the world. TK2d Tuesday is the second Tuesday of September and is meant to celebrate the […]
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UMDF Ask the Mito Doc Webcast Series – Understanding Genetic Testing
Join us as we hear from Dr. Austin Larson and Dr. Eva Morava-Kozicz as they provide updates on Genetic Testing for Mitochondrial Disease Patients.
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Teen and Young Adult Virtual Meet-Up Ages 16-35
UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It […]
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Energy for Life Walk – Kansas City
Lowenstein Park 1901 NW Lowenstein Dr, Lee's Summit, MOENERGY FOR LIFE WALK KANSAS CITY SEPTEMBER 14, 2024 LOCATION Lowenstein Park 1901 NW Lowenstein Dr Lee's Summit, MO 64081 SCHEDULE Site Opens: 9:00 AM Opening Ceremony: 10:00 AM CONTACT Deidra Atchley - 913-208-8725 Monika Hancock- 412-225-9066
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Energy for Life Walk – National (Virtual)
ENERGY FOR LIFE WALK NATIONAL SEPTEMBER 14 - 21, 2024 LOCATION A Venue of Your Choice! SCHEDULE A Start of Your Choice! CONTACT Monika Hancock - 412-225-9066 Angela Sommer - 412-539-9450
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World Mitochondrial Disease Awareness Week
Energize the Fight – World Mitochondrial Disease Week 2024 We’re excited to unite with other mitochondrial disease-focused patient advocacy groups across the globe to spread awareness on World Mitochondrial Disease Week, September 16-22, 2024! Together, we can promote understanding and recognition with the hope that increased awareness, attention, and funds will move the needle toward […]