Events Search and Views Navigation

Event Views Navigation

Today

Event Series Adult Virtual Support Meeting

Adult Virtual Support Meeting

Adult Virtual Support Meeting Hello Adults impacted by Mitochondrial Disease! Please join us for an Adult Virtual Support Meeting. We will get to know each other, share resources, and build community! Join us for a VIRTUAL MEETING! The FIRST Thursday of every month! 8:00pm-9:00pm ET Register HERE After registering, you will receive a confirmation email containing information about joining […]

Event Series LHON – Teens

LHON – Teens

This call is ONLY for teens (under 18) who are affected with LHON vision loss. Hosts Jeremy Poincenot and Molly Garrone lead this call. This call takes place at 5:00pm PST/8:00pm EST every other month on the first Tuesday of the month for an hour and a half unless otherwise noted.

LHON & Charles Bonnet Syndrome Connect

Many people who are affected with LHON vision also experience Charles Bonnet Syndrome (CBS), the experience of phantom images or hallucinations which co-exist with one's regular visual experience. They can be simple or complex, static or moving, color or black and white. CBS is under diagnosed, and can cause mental stress for those living with […]

Event Series Northeast PA Virtual Greet Support Meeting

Northeast PA Support Meeting

  Support Meeting- Northeast PA Third Saturday of each Month- In-Person 1:00pm – 3:00pm Eastern St. Luke's Hospital Priscilla Payne Hurd Education Room Room 104 801 Ostrum Street Bethlehem, PA 18015   You are not alone. Join us to share coping tips and connect with others. We will meet the 3rd Saturday of each month! […]

Event Series Parent and Caregiver Virtual Support Meeting

Parent and Caregiver Virtual Support Meeting

Parent and Caregiver Virtual Support Meeting Hello Parents and Caregivers impacted by Mitochondrial Disease! Please join us for a Parent and Caregiver Virtual Support Meeting. We will get to know each other, share resources, and build community! Join us for a VIRTUAL MEETING! The THIRD Monday of every month! 8:00pm-9:00pm ET Register HERE After registering, you […]

Event Series Parent and Caregiver Virtual Support Meeting

Parent and Caregiver Virtual Support Meeting

Parent and Caregiver Virtual Support Meeting Hello Parents and Caregivers impacted by Mitochondrial Disease! Please join us for a Parent and Caregiver Virtual Support Meeting. We will get to know each other, share resources, and build community! Join us for a VIRTUAL MEETING! The THIRD Monday of every month! 8:00pm-9:00pm ET Register HERE After registering, you […]

EFL Team Captain Rally Call

Calling all Team Captains!   If you are, have ever been or are interested in becoming a Team Captain, this virtual call is for you! Energy for Life Walkathons across the country are well underway.  We have volunteer planning committees hard at work and team captains fundraising and recruiting team members.  You play an important part […]

Event Series Western New York Support Meeting

Western New York Support Meeting

"Virtual AND In-Person" Support Meeting- Western New York You are not alone. Join us to share coping tips and connect with others. We are now meeting in-person.  Please let us know if you will be attending by registering HERE. The third Thursday of each month 6:00pm - 7:00pm Register in advance for this meeting. *** […]

Energy for Life Walkathon Houston

Sugar Land Memorial Park 15300 University Blvd, Sugar Land, Texas

Energy for Life Walkathon Houston Get registered at www.energyforlifewalk.org/houston  - create a team, join a team or walk as an individual. When: April 22, 2023 Where: Sugar Land Memorial Park 15300 University Blvd. Sugar Land, TX 77479 Schedule of Events: 9:00 AM - Registration Starts 10:00 AM - Opening Ceremony 10:30 AM - 1 Mile […]