LHON Assistive Technology Meeting
This Zoom event is for anyone interested in discussing LHON & Assistive Technology. T
UMDF Ask the Mito Doc Webcast Series – Endocrine Complications of Mitochondrial Disease
We are looking forward to hearing from Dr. Shana McCormack and Dr. David Weber to better understand Endocrine Disorders of Mitochondrial Disease.
Central Region Virtual Support Meeting
Central Region Virtual Support Meeting UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips, share your story and connect with others. We hope you will attend and see that you are not alone. Thursday, January 26 • 7:00pm – 8:00pm Central Learn […]
Energy for Life Walk and 5K Dallas Fort Worth
River Legacy Park 701 NW Green Oaks Blvd, Arlington, TX, United StatesEnergy for Life Walk and 5K Dallas Fort Worth Get registered at www.energyforlifewalk.org/dallasfortworth - create a team, join a team or walk as an individual. When: April 29, 2023 Where: River Legacy Park Legacy Pavilion 701 NW Green Oaks Blvd Arlington, TX 76006 Schedule of Events: 7:30 AM - Runner Registration 8:30 AM - 5K […]
California Virtual Support Group Meeting
UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips, share your story and connect with others. We hope you will attend and see that you are not alone. The first Monday of each month• 10:00am – 11:00am Pacific Learn more & […]
Adult Virtual Support Meeting
Adult Virtual Support Meeting Hello Adults impacted by Mitochondrial Disease! Please join us for an Adult Virtual Support Meeting. We will get to know each other, share resources, and build community! Join us for a VIRTUAL MEETING! The FIRST Thursday of every month! 8:00pm-9:00pm ET Register HERE After registering, you will receive a confirmation email containing information about joining […]
Navigating Education with LHON
NOTE: Unless specific to a geographic location – all LHON virtual meetings will be set in Eastern Time. This Zoom event is your chance to connect with other students, educators, parents and other sighted supporters to discuss Navigating Education with LHON. Please feel free to invite anyone who would benefit from this discussion to join […]
LHON – Teens
This call is ONLY for teens (under 18) who are affected with LHON vision loss. Hosts Jeremy Poincenot and Molly Garrone lead this call. This call takes place at 5:00pm PST/8:00pm EST every other month on the first Tuesday of the month for an hour and a half unless otherwise noted.
Mitochondrial Medicine 2023: NC Kick-Off Meeting
Mitochondrial Medicine 2023 is coming to Charlotte! Have you always wanted to attend the UMDF Symposium but couldn't travel? Mitochondrial Medicine 2023 will be right in your backyard. This is your year! Mitochondrial Medicine 2023 NC Mitochondrial Medicine 2023 Kick-Off Join us on Tuesday, May 9,2023 at 7:00pm ET. You can register here Agenda What to expect […]
Parent and Caregiver Virtual Support Meeting
Parent and Caregiver Virtual Support Meeting Hello Parents and Caregivers impacted by Mitochondrial Disease! Please join us for a Parent and Caregiver Virtual Support Meeting. We will get to know each other, share resources, and build community! Join us for a VIRTUAL MEETING! The THIRD Monday of every month! 8:00pm-9:00pm ET Register HERE After registering, you […]
UMDF Ask the Mito Doc Webcast Series – Special Session for the Newly Diagnosed
We are thrilled to have this group of speakers back to present a session for the newly diagnosed. However, whether newly diagnosed or not - this is a GREAT primer.
Moms of LHON-Affected “Kids of All Ages” (Wednesday)
Join us for the Moms of LHON-Affected "Kids of All Ages" virtual meeting.