TK2d Virtual Support Meeting August 2024
TK2d "Virtual" Support Meeting Let's get ready for TK2d Tuesday! Join us for a VIRTUAL MEETING! Tuesday, August 27 ,2024 12:00pm-1:00pm ET Register HERE After registering, you will receive a confirmation […]
Spouses of LHON-Affected Individuals
Are you the spouse (or similar) of someone affected by LHON? Would you like to network with others in a similar situation? Consider joining our LHON Spouses meet-up Zoom event. This […]
Teen and Young Adult Virtual Meet-Up Ages 16-35
UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It […]
LHON Live! Monthly Call
NOTE: Unless specific to a geographic location - all LHON virtual meetings will be set in Eastern Time. This call is for everyone interested in LHON...those affected, carriers, or sighted supporters...all […]
Adult Virtual Support Meeting
Adult Virtual Support Meeting Hello Adults impacted by Mitochondrial Disease! Please join us for an Adult Virtual Support Meeting. We will get to know each other, share resources, and build community! Join us […]
Teen and Young Adult Virtual Meet-Up Ages 16-35
UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It […]
Energy for Life Walk – Indianapolis
Coxhall Gardens Children's Pavilion 11677 Towne Road, Carmel, INENERGY FOR LIFE WALK INDIANAPOLIS LOCATION Coxhall Gardens - Children's Pavilion SCHEDULE Site Opens: 10:00 AM Opening Ceremony: 11:00 AM CONTACT Monika Hancock - 412-225-9066
Energy for Life Walk – Delaware Valley
Pennington Park 801 Creek Road, Delanco, New JerseyENERGY FOR LIFE WALK DELAWARE VALLEY LOCATION Pennington Park SCHEDULE Site Opens: 10:30 AM Opening Ceremony: 11:30 AM CONTACT Monika Hancock - 412-225-9066
Energy for Life Walk – Chicago
Katherine Legge Memorial Park 5901 County Line Road, Hinsdale, IL, United StatesENERGY FOR LIFE WALK CHICAGO LOCATION Katherine Legge Memorial Park SCHEDULE Site Opens: 9:00 AM Opening Ceremony: 10:00 AM CONTACT Angela Sommer - 412-744-1066
LHON – Texas/Oklahoma/ Arkansas/Louisiana Connect
This call is for those living in Texas, Oklahoma, Arkansas and Louisiana, with an interest in LHON. Host Donna Basse facilitates this call. Consider joining the call and sharing your experiences with others in a similar situation.
TK2d Tuesday
Thymidine kinase 2 deficiency (TK2d) is a rare mitochondrial disease that impacts people around the world. TK2d Tuesday is the second Tuesday of September and is meant to celebrate the […]
LHON-Affected Women
If you're a woman with LHON vision (affected), consider joining the call and sharing your experiences with others in a similar situation. Reach out to Jessica Loomer jessica.loomer@gmail.com with any questions. There's also […]