California Virtual Support Group Meeting
UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips, share your story and connect with others. We hope you will attend and see that you are not alone. The first Monday of each month• 10:00am – 11:00am Pacific Learn more & […]
TK2d Virtual Support Meeting November 2022
TK2d "Virtual" Support Meeting Are you or your loved one impacted by TK2 (Thymidine Kinase 2) deficiency? If so, please join us for a Virtual Support Meeting! We will get to know each other, share resources and build community! Representatives from UCB, will be joining us, Join us for a VIRTUAL MEETING! Wednesday, November 9,2022 12:00 […]
OH – Songs for Sarah 2022
Turtle Creek Tavern 5571 N Hamilton Road, Columbus, OH, United StatesDate: Friday, November 11, 2022 Location: Turtle Creek Tavern, Columbus Ohio Start Time: 8:00 PM Performers: School of Rock (Gahanna) House Band Glare Keith Cousineau tOd and Bad Ideas Benefiting the United Mitochondrial Disease Foundation Thank you to our in-kind donors: Turtle Creek Tavern X Audio & Ohio Streaming Productions School of Rock (Gahanna) House […]
UMDF Ask the Mito Doc Webcast Series – Maintaining Immune Health in Mitochondrial Disease
Fall and Winter brings in the cold/flu/COVID season and many holidays to navigate. Join us to hear from Dr. Peter McGuire and get an update on current trends with Immune Health and Mito.
Western New York Support Meeting
"Virtual AND In-Person" Support Meeting- Western New York You are not alone. Join us to share coping tips and connect with others. We are now meeting in-person. Please let us know if you will be attending by registering HERE. The third Thursday of each month 6:00pm - 7:00pm Register in advance for this meeting. *** […]
Cousins for a Cure Gala – NJ
The Mansion on Main Street 3000 Main Street, Voorhees Township, NJ, United Statesspecial fundraising event Thursday, November 17, 2022 6:00 PM The Mansion on Main Street 3000 Main Street Voorhees Township, NJ 08043 The Cousins for a Cure event will benefit the United Mitochondrial Disease Foundation's Logan Sloane Aronson Research Fund for mitochondrial disease in honor of Sydney Breslow. 100% of the proceeds from this event will support […]
Northeast PA Support Meeting
Support Meeting- Northeast PA Third Saturday of each Month- In-Person 1:00pm – 3:00pm Eastern St. Luke's Hospital Priscilla Payne Hurd Education Room Room 104 801 Ostrum Street Bethlehem, PA 18015 You are not alone. Join us to share coping tips and connect with others. We will meet the 3rd Saturday of each month! […]
Parent and Caregiver Virtual Support Meeting
Parent and Caregiver Virtual Support Meeting Hello Parents and Caregivers impacted by Mitochondrial Disease! Please join us for a Parent and Caregiver Virtual Support Meeting. We will get to know each other, share resources, and build community! Join us for a VIRTUAL MEETING! The THIRD Monday of every month! 8:00pm-9:00pm ET Register HERE After registering, you […]
Navigating Employment with LHON
This call takes place quarterly the fourth Wednesday of each month at 8:00pm ET/5:00pm PT unless otherwise noted and is hosted by Zak Turner. If you are interested in LHON and employment-related matters, you are invited to join. Reach out to Zak Turner at zakturner24@gmail.com with any questions. Wednesday, February 23, 2022 at 5:00pm Pacific/8:00pm […]
LHON – Teens
LHON Teens This call is for all teens (under 18) affected by LHON. Hosts Jeremy Poincenot and Molly Garrone will lead this call. Reach out to Molly Garrone at mollyeknox@gmail.com with any questions. The calls takes place from 5:00pm-6:00pm Pacific/8:00pm-9:00pm Eastern - calendar has an Eastern Time setting for this event. Consider joining the call […]
LHON Live! Monthly Call
NOTE: Unless specific to a geographic location - all LHON virtual meetings will be set in Eastern Time. This call is for everyone interested in LHON...those affected, carriers, or sighted supporters...all are welcome. You can speak up and share your thoughts, or just listen to what others have to say...It's your call! Hosts for the Call: […]
UMDF Ask the Mito Doc Webcast Series – What to Expect as an Adult Mito Patient
This month, Dr. Michio Hirano will repeat his Mito Med 2022 talk which is focused on our Adult Mito Community. This is a great opportunity to hear from Dr. Hirano and ask your questions!