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DTSTART;TZID=America/Chicago:20260226T190000
DTEND;TZID=America/Chicago:20260226T200000
DTSTAMP:20260423T155049
CREATED:20240620T144219Z
LAST-MODIFIED:20251209T192223Z
UID:10001403-1772132400-1772136000@umdf.org
SUMMARY:Central Region Virtual Support Meeting
DESCRIPTION:Central Region Virtual Support Meeting \nUMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips\, share your story and connect with others. We hope you will attend and see that you are not alone. \nFourth Thursday of each month • 7:00pm – 8:00pm Central \nLearn more & register here. \nRegistration is required\, and you will receive a confirmation email with information to join the meeting. If you have any questions\, contact Margaret Moore at margaret.moore@5mr.c80.myftpupload.com or 412-744-1061 Ext 105. \nVisit the UMDF Event Calendar for all updates and upcoming events here.  \nSpecial Thanks to our Sponsors\nEdith L. Trees Charitable Trust • Jack Edwards Family Impact Fund
URL:https://umdf.org/event/central-region-virtual-support-meeting-2/2026-02-26/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260224T120000
DTEND;TZID=America/New_York:20260224T133000
DTSTAMP:20260423T155049
CREATED:20251124T175816Z
LAST-MODIFIED:20251205T200913Z
UID:10004209-1771934400-1771939800@umdf.org
SUMMARY:Mindfulness with Mary Series (monthly)
DESCRIPTION:Please join us for a monthly Mindfulness series with UMDF Support Ambassador\, Mary Canton. We will host these sessions every fourth Tuesday from 12:00pm -1:30pm ET. \nYou can register HERE
URL:https://umdf.org/event/mindfulness-with-mary-series-2-2-2/2026-02-24/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260223T200000
DTEND;TZID=America/New_York:20260223T213000
DTSTAMP:20260423T155049
CREATED:20260219T125302Z
LAST-MODIFIED:20260309T145651Z
UID:10004400-1771876800-1771882200@umdf.org
SUMMARY:LHON Assistive Technology
DESCRIPTION:This Zoom event is for anyone interested in discussing LHON & Assistive Technology. The event is led by Sara Nappi. Sara is affected by LHON\, and she is an Assistive Technology instructor. \nThere is also a Facebook group: LHON Assistive Technology\n\nTo join the Zoom event\, use the link below:\nhttps://umdf.zoom.us/j/95371313871\n\nMeeting ID: 953 7131 3871\n\nOr join by phone with one tap mobile:\n+16699006833\,\,95371313871#\n+16468769923\,\,95371313871#\n\nCanada: +16475580588\,\,95371313871#\nAustralia: +61280152088\,\,95371313871#\nUK: +442034815240\,\,95371313871#\nFor callers in other countries\, find your local number here:\nhttps://zoom.us/u/aYbvpoNU9\nMeeting ID: 953 7131 3871 \nPlease direct message Sara Nappi with any questions\, concerns or topic suggestions. \n\n\n\n\n\nMore details\nMore details\nCopy to my calendar\nCopy to my calendar
URL:https://umdf.org/event/lhon-assistive-technology-2/2026-02-23/
CATEGORIES:LHON,Support Meeting
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260221T100000
DTEND;TZID=America/New_York:20260221T120000
DTSTAMP:20260423T155049
CREATED:20240111T130250Z
LAST-MODIFIED:20250206T185233Z
UID:10002978-1771668000-1771675200@umdf.org
SUMMARY:Northeast PA Support Meeting
DESCRIPTION:  \nSupport Meeting- Northeast PA \nThird Saturday of each Month- In-Person \n10:00pm – 12:00pm Eastern\nSt. Luke’s Hospital\nPriscilla Payne Hurd Education Room\nRoom 104\n801 Ostrum Street\nBethlehem\, PA 18015\n \n  \nYou are not alone. Join us to share coping tips and connect with others. \nWe will meet the 3rd Saturday of each month! \n1:00pm – 3:00pm \nFor questions\, please contact Grace Robinson or Janelle Frank\, the Support Group Leaders:\ngracerobinson13@gmail.com or janelle.frank13@gmail.com
URL:https://umdf.org/event/support-group-meeting-nepa-2-2021-01-16-2021-02-20-2-2/2026-02-21/
CATEGORIES:Northeast
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260220T200000
DTEND;TZID=America/New_York:20260220T210000
DTSTAMP:20260423T155049
CREATED:20250113T183749Z
LAST-MODIFIED:20250113T183753Z
UID:10002146-1771617600-1771621200@umdf.org
SUMMARY:Teen and Young Adult Virtual Meet-Up Ages 16-35
DESCRIPTION:UMDF Teen/Young Adult \n“Virtual Meet-Up” \nTeens and Young Adults Age 16-35 \nEvery Friday!\n8:00pm ET \nJoin us EVERY Friday for a VIRTUAL Meet-Up! \nJoin us for this “Virtual Meet-Up”! It is tough being stuck at home\, but you are not alone. Let’s get together\, share coping tips and have some FUN! \nUMDF Support Ambassadors\, Kristi Dellinger and Devin Shuman will lead these calls.\nSee you on Friday! \nRegister in advance for this meeting:\nIf you registered last week\, you can use the same information to join every week!\nClick Here to Register Now \nAfter registering\, you will receive a confirmation email containing information about joining the meeting. \nIf you have questions\, please email Margaret Moore at margaret.moore@umdf.org
URL:https://umdf.org/event/young-adult-virtual-happy-hour-ages-16-35-2-2-2-2021-01-22-2-3-2/2026-02-20/
CATEGORIES:Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260218T200000
DTEND;TZID=America/New_York:20260218T213000
DTSTAMP:20260423T155049
CREATED:20250206T185144Z
LAST-MODIFIED:20260309T144427Z
UID:10004456-1771444800-1771450200@umdf.org
SUMMARY:Dads of LHON - Affected "Kids of All Ages"
DESCRIPTION:The bimonthly call for Dads of LHON-Affected “Kids of All Ages” takes place on the third Wednesday of every other month at 8:00pm Eastern/5:00pm Pacific. If you’re a dad of someone affected by LHON\, consider joining the call and sharing your experiences with others in a similar situation.  Hosts Tony Wright and Jim Tolve host this open-discussion format call. Reach out to Jim Tolve at jetragnar@gmail.com or Tony Wright at AWright201@gmail.com with any questions. \nThere’s also a Facebook group for Dads of LHON-Affected”Kids of All Ages” located at this link: https://www.facebook.com/groups/175672076390420 \nJoin Details:\nOne option is to use Internet Audio to call at no charge at: https://umdf.zoom.us/j/95371313871 \nMeeting ID: 953 7131 3871 \nOr if your phone plan includes Unlimited Minutes\, then here are Toll Charge numbers to one-click call:\n+16699006833\,\,95371313871#\n+16468769923\,\,95371313871#
URL:https://umdf.org/event/dads-of-lhon-affected-kids-of-all-ages/2026-02-18/
CATEGORIES:LHON,Support Meeting
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260217T200000
DTEND;TZID=America/New_York:20260217T213000
DTSTAMP:20260423T155049
CREATED:20250206T193637Z
LAST-MODIFIED:20250206T193754Z
UID:10003695-1771358400-1771363800@umdf.org
SUMMARY:Spouses of LHON - Affected Individuals
DESCRIPTION:Are you the spouse (or similar) of someone affected by LHON? Would you like to network with others in a similar situation? Consider joining our event for Spouses of LHON-Affected Individuals Zoom event. This Zoom event is a great opportunity to get to know each other and share LHON-related experiences. \nJoin Details:\nOne option is to use Internet Audio to call at no charge at:\nhttps://umdf.zoom.us/j/95371313871\nMeeting ID: 953 7131 3871 \nOr if your phone plan includes Unlimited Minutes\, then here are Toll Charge numbers to one-click call: \n+13017158592\,\,95371313871# US\n+13126266799\,\,95371313871# US\nCanada: +16475580588\,\,95371313871#\nAustralia: +61280152088\,\,95371313871#\nUK: +442034815240\,\,95371313871#\n\nFor callers in other countries\, find your local number here:\nhttps://zoom.us/u/aYbvpoNU9\nMeeting ID: 953 7131 3871
URL:https://umdf.org/event/spouses-of-lhon-affected-individuals/2026-02-17/
CATEGORIES:LHON,Support Meeting
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260217T120000
DTEND;TZID=America/New_York:20260217T130000
DTSTAMP:20260423T155049
CREATED:20251126T100120Z
LAST-MODIFIED:20260212T173124Z
UID:10004299-1771329600-1771333200@umdf.org
SUMMARY:UMDF Ask the Mito Doc Webcast Series – Understanding MELAS and Current Therapies/Treatments
DESCRIPTION:The United Mitochondrial Disease Foundation is pleased to offer the Ask the Mito Doc Webcast Series on a monthly basis to keep our patients and families connected to the mitochondrial medical community.  Each month\, we will highlight a specific topic with a short presentation and allow 15-20 minutes for question and answer time with the clinicians and guest speakers. \n\nJoin us on February 17\, 2026\nat 9:00am Pacific/10:00am Mountain/11:00am Central/12:00pm Eastern \nClick Here to Register \nAgenda \n\nUnderstanding MELAS and Current Therapies/Treatments \nModerator: Margaret Moore\, UMDF Associate Director of Support & Education \nSpeaker: \n\nAmel Karaa\, MD\, Massachusetts General Hospital\n\n\n\nWe invite you to submit your questions for the Ask the Mito Doc webcast in advance.  We will take as many questions as possible before\, during and after the webinar.  Question and Answer Protocol – Most questions pertinent to the monthly topic are typically addressed during the presentation(s).  Please note that not all questions can be answered through this forum.  If you submit a question and do not receive a response\, please do not hesitate to contact us at margaret.moore@umdf.org.  \nClick Here to Submit Your Question! \nWe hope you can join us February 17\, 2026.  Registration is required.  After registering\, you will receive a confirmation email with Zoom credentials.  \nIf you are new to using ZOOM\, we suggest that you log in early on your computer or the device you plan to use.  Feel free to log in to the meeting link today.  It is so important that you do this in advance as we may not be able to assist you once the webcast begins.  If you have any questions\, contact Margaret Moore at margaret.moore@umdf.org or 412-744-1061\, ext 105. \nWe are committed to providing needed support for our patient community.   \nCall our support line at 1-888-900-MITO to speak with a member of our patient services team.\nAlways remember\, we are here to help you and your family through your journey! \nSpecial Thanks to \n  \n \n 
URL:https://umdf.org/event/umdf-ask-the-mito-doc-webcast-series-understanding-melas/
CATEGORIES:Ask the Mito Doc,Education
ORGANIZER;CN="Kara Strittmatter":MAILTO:kara@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260213T200000
DTEND;TZID=America/New_York:20260213T210000
DTSTAMP:20260423T155049
CREATED:20250113T183749Z
LAST-MODIFIED:20250113T183753Z
UID:10002145-1771012800-1771016400@umdf.org
SUMMARY:Teen and Young Adult Virtual Meet-Up Ages 16-35
DESCRIPTION:UMDF Teen/Young Adult \n“Virtual Meet-Up” \nTeens and Young Adults Age 16-35 \nEvery Friday!\n8:00pm ET \nJoin us EVERY Friday for a VIRTUAL Meet-Up! \nJoin us for this “Virtual Meet-Up”! It is tough being stuck at home\, but you are not alone. Let’s get together\, share coping tips and have some FUN! \nUMDF Support Ambassadors\, Kristi Dellinger and Devin Shuman will lead these calls.\nSee you on Friday! \nRegister in advance for this meeting:\nIf you registered last week\, you can use the same information to join every week!\nClick Here to Register Now \nAfter registering\, you will receive a confirmation email containing information about joining the meeting. \nIf you have questions\, please email Margaret Moore at margaret.moore@umdf.org
URL:https://umdf.org/event/young-adult-virtual-happy-hour-ages-16-35-2-2-2-2021-01-22-2-3-2/2026-02-13/
CATEGORIES:Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260213T120000
DTEND;TZID=America/New_York:20260213T170000
DTSTAMP:20260423T155049
CREATED:20260114T163835Z
LAST-MODIFIED:20260114T164040Z
UID:10004341-1770984000-1771002000@umdf.org
SUMMARY:PPA2 Virtual Conference
DESCRIPTION:UMDF Cohosting PPA2 Virtual Conference this February \nUMDF is proud to join the medical community in cohosting the first-ever PPA2 Virtual Conference  on Friday\, February 13 at 12pm EST via Zoom. \nThe conference\, which is focused on “Connecting Clinical Care and Scientific Discovery\,” is being organized and moderated by Amy Goldstein\, MD and Hilary Vernon\, MD\, PhD. While all in the community are welcome to join\, the conference content is largely geared toward researchers and clinicians. \nAmongst the topics are PPA2 Deficiency Associated Heart Failure\, Pharmaceuticals and Alcohol\, Biochemistry/Pathway and Biochemical Management\, Enzymatics and Diagnosis\, Gene Therapy\, and iPSC Model and Disease Pathology. \nClick here to register.
URL:https://umdf.org/event/ppa2-virtual-conference/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260211T120000
DTEND;TZID=America/New_York:20260211T130000
DTSTAMP:20260423T155049
CREATED:20250108T144422Z
LAST-MODIFIED:20250121T173952Z
UID:10003573-1770811200-1770814800@umdf.org
SUMMARY:Support Group for All
DESCRIPTION:When: The Second Wednesday of each month at 12:00 PM Eastern Time (US and Canada) \nRegister in advance for this meeting: \nhttps://umdf.zoom.us/meeting/register/tZcpcumsrTsiH9w1_pPmjbc-KqRCAIrmQCKt \nAfter registering\, you will receive a confirmation email containing information about joining the meeting.
URL:https://umdf.org/event/support-group-for-all/2026-02-11/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260210T100000
DTEND;TZID=America/New_York:20260210T170000
DTSTAMP:20260423T155049
CREATED:20260114T163554Z
LAST-MODIFIED:20260114T163554Z
UID:10004340-1770717600-1770742800@umdf.org
SUMMARY:MELAS EL-PFDD
DESCRIPTION:MELAS EL-PFDD Registration Now Open \nUMDF is proud to join MitoAction\, International Mito Patients\, and the Muscular Dystrophy Association to co-host the MELAS Externally Led Patient Focused Drug Development (EL-PFDD) meeting on February 10\, 2026. \nThis virtual event is open to all members of the mitochondrial disease community\, including patients\, caregivers\, clinicians\, researchers\, and industry partners. Click here to register. \nEL-PFDD meetings like this are FDA-recognized forums that bring patients and caregivers together to share lived experiences and treatment priorities\, ensuring their voices inform drug development.
URL:https://umdf.org/event/melas-el-pfdd/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260206T200000
DTEND;TZID=America/New_York:20260206T210000
DTSTAMP:20260423T155049
CREATED:20250113T183749Z
LAST-MODIFIED:20250113T183753Z
UID:10002144-1770408000-1770411600@umdf.org
SUMMARY:Teen and Young Adult Virtual Meet-Up Ages 16-35
DESCRIPTION:UMDF Teen/Young Adult \n“Virtual Meet-Up” \nTeens and Young Adults Age 16-35 \nEvery Friday!\n8:00pm ET \nJoin us EVERY Friday for a VIRTUAL Meet-Up! \nJoin us for this “Virtual Meet-Up”! It is tough being stuck at home\, but you are not alone. Let’s get together\, share coping tips and have some FUN! \nUMDF Support Ambassadors\, Kristi Dellinger and Devin Shuman will lead these calls.\nSee you on Friday! \nRegister in advance for this meeting:\nIf you registered last week\, you can use the same information to join every week!\nClick Here to Register Now \nAfter registering\, you will receive a confirmation email containing information about joining the meeting. \nIf you have questions\, please email Margaret Moore at margaret.moore@umdf.org
URL:https://umdf.org/event/young-adult-virtual-happy-hour-ages-16-35-2-2-2-2021-01-22-2-3-2/2026-02-06/
CATEGORIES:Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260205T200000
DTEND;TZID=America/New_York:20260205T210000
DTSTAMP:20260423T155049
CREATED:20231019T142537Z
LAST-MODIFIED:20251209T192747Z
UID:10002432-1770321600-1770325200@umdf.org
SUMMARY:Adult Virtual Support Meeting
DESCRIPTION:Adult Virtual Support Meeting \nHello Adults impacted by Mitochondrial Disease! Please join us for an Adult Virtual Support Meeting. \nWe will get to know each other\, share resources\, and build community! \nJoin us for a VIRTUAL MEETING!\nThe FIRST Thursday of every month!\n8:00pm-9:00pm ET\nRegister HERE \nAfter registering\, you will receive a confirmation email containing information about joining the meeting. \nFor questions\, please email Margaret Moore at: margaret.moore@5mr.c80.myftpupload.com \nTHANK YOU TO OUR SPONSORS \nEdith L. Trees Charitable Trust \nAstellas \nJack Edwards Family Impact Fund \n  \n 
URL:https://umdf.org/event/adult-virtual-support-meetingsep2022-2-2/2026-02-05/
CATEGORIES:Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260204T200000
DTEND;TZID=America/New_York:20260204T210000
DTSTAMP:20260423T155049
CREATED:20250227T153450Z
LAST-MODIFIED:20250313T133520Z
UID:10003794-1770235200-1770238800@umdf.org
SUMMARY:LHON Live! Monthly Call
DESCRIPTION:NOTE: Unless specific to a geographic location – all LHON virtual meetings will be set in Eastern Time. \nThis call is for everyone interested in LHON…those affected\, carriers\, or sighted supporters…all are welcome.  You can speak up and share your thoughts\, or just listen to what others have to say…It’s your call!  Hosts Jessica Loomer and Andy Marks facilitate this call. \nRecordings from prior LHON Live! calls are located at this link: https://www.umdf.org/types/lhon/ \nReach out to Jessica Loomer at jessica.loomer@gmail.com or Andy Marks at marks.andy.c@gmail.com with any questions. \nJoin Details:\nOne option is to use Internet Audio to call at no charge at: https://umdf.zoom.us/j/95371313871\nMeeting ID: 953 7131 3871 \nOr if your phone plan includes Unlimited Minutes\, then here are Toll Charge numbers to one-click call: \n+13017158592\,\,95371313871# US\n+13126266799\,\,95371313871# US\nCanada: +16475580588\,\,95371313871#\nAustralia: +61280152088\,\,95371313871#\nUK: +442034815240\,\,95371313871# \nFor callers in other countries\, find your local number here: https://zoom.us/u/aYbvpoNU9\nMeeting ID: 953 7131 3871 \nClick Here for Previous LHON Live! Recordings  \n 
URL:https://umdf.org/event/lhon-live-monthly-call/2026-02-04/
CATEGORIES:LHON,Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20260202T100000
DTEND;TZID=America/Los_Angeles:20260202T110000
DTSTAMP:20260423T155049
CREATED:20240708T192355Z
LAST-MODIFIED:20250828T233020Z
UID:10003193-1770026400-1770030000@umdf.org
SUMMARY:California Virtual Support Group Meeting
DESCRIPTION:UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips\, share your story and connect with others. We hope you will attend and see that you are not alone. \nThe first Monday of each month• 10:00am – 11:00am Pacific \nLearn more & register here. \nRegistration is required\, and you will receive a confirmation email with information to join the meeting. If you have any questions\, contact Margaret Moore at margaret.moore@5mr.c80.myftpupload.com or 412-354-1553. \nVisit the UMDF Event Calendar for all updates and upcoming events here. \nSpecial Thanks to our Sponsors\nEdith L. Trees Charitable Trust
URL:https://umdf.org/event/california-virtual-support-group-meeting-2022-09-05-3-2-2-2/2026-02-02/
CATEGORIES:Pacific,Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260202T100000
DTEND;TZID=America/New_York:20260202T110000
DTSTAMP:20260423T155049
CREATED:20220301T170012Z
LAST-MODIFIED:20220923T194001Z
UID:10004346-1770026400-1770030000@umdf.org
SUMMARY:California Virtual Support Group Meeting
DESCRIPTION:UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips\, share your story and connect with others. We hope you will attend and see that you are not alone. \nMonday\, March 7 • 10:00pm – 11:00am Pacific \nLearn more & register here. \nRegistration is required\, and you will receive a confirmation email with information to join the meeting. If you have any questions\, contact Margaret Moore at margaret.moore@5mr.c80.myftpupload.com or 412-354-1553. \nVisit the UMDF Event Calendar for all updates and upcoming events here. \nSpecial Thanks to our Sponsors\nEdith L. Trees Charitable Trust • Astellas • Jack Edwards Family Impact Fund
URL:https://umdf.org/event/california-virtual-support-group-meeting/2026-02-02/
CATEGORIES:Pacific,Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260130T200000
DTEND;TZID=America/New_York:20260130T210000
DTSTAMP:20260423T155049
CREATED:20250113T183749Z
LAST-MODIFIED:20250113T183753Z
UID:10002143-1769803200-1769806800@umdf.org
SUMMARY:Teen and Young Adult Virtual Meet-Up Ages 16-35
DESCRIPTION:UMDF Teen/Young Adult \n“Virtual Meet-Up” \nTeens and Young Adults Age 16-35 \nEvery Friday!\n8:00pm ET \nJoin us EVERY Friday for a VIRTUAL Meet-Up! \nJoin us for this “Virtual Meet-Up”! It is tough being stuck at home\, but you are not alone. Let’s get together\, share coping tips and have some FUN! \nUMDF Support Ambassadors\, Kristi Dellinger and Devin Shuman will lead these calls.\nSee you on Friday! \nRegister in advance for this meeting:\nIf you registered last week\, you can use the same information to join every week!\nClick Here to Register Now \nAfter registering\, you will receive a confirmation email containing information about joining the meeting. \nIf you have questions\, please email Margaret Moore at margaret.moore@umdf.org
URL:https://umdf.org/event/young-adult-virtual-happy-hour-ages-16-35-2-2-2-2021-01-22-2-3-2/2026-01-30/
CATEGORIES:Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260127T120000
DTEND;TZID=America/New_York:20260127T133000
DTSTAMP:20260423T155049
CREATED:20251124T175816Z
LAST-MODIFIED:20251205T200913Z
UID:10004208-1769515200-1769520600@umdf.org
SUMMARY:Mindfulness with Mary Series (monthly)
DESCRIPTION:Please join us for a monthly Mindfulness series with UMDF Support Ambassador\, Mary Canton. We will host these sessions every fourth Tuesday from 12:00pm -1:30pm ET. \nYou can register HERE
URL:https://umdf.org/event/mindfulness-with-mary-series-2-2-2/2026-01-27/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260123T200000
DTEND;TZID=America/New_York:20260123T210000
DTSTAMP:20260423T155049
CREATED:20250113T183749Z
LAST-MODIFIED:20250113T183753Z
UID:10002142-1769198400-1769202000@umdf.org
SUMMARY:Teen and Young Adult Virtual Meet-Up Ages 16-35
DESCRIPTION:UMDF Teen/Young Adult \n“Virtual Meet-Up” \nTeens and Young Adults Age 16-35 \nEvery Friday!\n8:00pm ET \nJoin us EVERY Friday for a VIRTUAL Meet-Up! \nJoin us for this “Virtual Meet-Up”! It is tough being stuck at home\, but you are not alone. Let’s get together\, share coping tips and have some FUN! \nUMDF Support Ambassadors\, Kristi Dellinger and Devin Shuman will lead these calls.\nSee you on Friday! \nRegister in advance for this meeting:\nIf you registered last week\, you can use the same information to join every week!\nClick Here to Register Now \nAfter registering\, you will receive a confirmation email containing information about joining the meeting. \nIf you have questions\, please email Margaret Moore at margaret.moore@umdf.org
URL:https://umdf.org/event/young-adult-virtual-happy-hour-ages-16-35-2-2-2-2021-01-22-2-3-2/2026-01-23/
CATEGORIES:Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20260122T190000
DTEND;TZID=America/Chicago:20260122T200000
DTSTAMP:20260423T155049
CREATED:20240620T144219Z
LAST-MODIFIED:20251209T192223Z
UID:10001402-1769108400-1769112000@umdf.org
SUMMARY:Central Region Virtual Support Meeting
DESCRIPTION:Central Region Virtual Support Meeting \nUMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips\, share your story and connect with others. We hope you will attend and see that you are not alone. \nFourth Thursday of each month • 7:00pm – 8:00pm Central \nLearn more & register here. \nRegistration is required\, and you will receive a confirmation email with information to join the meeting. If you have any questions\, contact Margaret Moore at margaret.moore@5mr.c80.myftpupload.com or 412-744-1061 Ext 105. \nVisit the UMDF Event Calendar for all updates and upcoming events here.  \nSpecial Thanks to our Sponsors\nEdith L. Trees Charitable Trust • Jack Edwards Family Impact Fund
URL:https://umdf.org/event/central-region-virtual-support-meeting-2/2026-01-22/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260120T190000
DTEND;TZID=America/New_York:20260120T200000
DTSTAMP:20260423T155049
CREATED:20251126T095236Z
LAST-MODIFIED:20251126T095236Z
UID:10004298-1768935600-1768939200@umdf.org
SUMMARY:UMDF Ask the Mito Doc Webcast Series – CardiacMito 2026: Genetics and Clinical Insights to Jumpstart the Year
DESCRIPTION:The United Mitochondrial Disease Foundation is pleased to offer the Ask the Mito Doc Webcast Series on a monthly basis to keep our patients and families connected to the mitochondrial medical community.  Each month\, we will highlight a specific topic with a short presentation and allow 15-20 minutes for question and answer time with the clinicians and guest speakers. \n\nJoin us on January 20\, 2026\nat 4:00pm Pacific/5:00pm Mountain/6:00pm Central/7:00pm Eastern \nClick Here to Register \nAgenda \n\nCardiacMito 2026: Genetics and Clinical Insights to Jumpstart the Year \nModerator: Margaret Moore\, UMDF Associate Director of Support & Education \nSpeakers: \n\nHilary Vernon\, MD\, PhD\, Johns Hopkins University School of Medicine \nAndreas S. Barth\, MD\, PhD\, FAHA\, Johns Hopkins University \nRebecca McClellan\, MGC\, CGC\, Kennedy Krieger Institute\n\n\n\nWe invite you to submit your questions for the Ask the Mito Doc webcast in advance.  We will take as many questions as possible before\, during and after the webinar.  Question and Answer Protocol – Most questions pertinent to the monthly topic are typically addressed during the presentation(s).  Please note that not all questions can be answered through this forum.  If you submit a question and do not receive a response\, please do not hesitate to contact us at margaret.moore@umdf.org.  \nClick Here to Submit Your Question! \nWe hope you can join us January 20\, 2026.  Registration is required.  After registering\, you will receive a confirmation email with Zoom credentials.  \nIf you are new to using ZOOM\, we suggest that you log in early on your computer or the device you plan to use.  Feel free to log in to the meeting link today.  It is so important that you do this in advance as we may not be able to assist you once the webcast begins.  If you have any questions\, contact Margaret Moore at margaret.moore@umdf.org or 412-744-1061\, ext 105. \nWe are committed to providing needed support for our patient community.   \nCall our support line at 1-888-900-MITO to speak with a member of our patient services team.\nAlways remember\, we are here to help you and your family through your journey! \nSpecial Thanks to \n  \n \n 
URL:https://umdf.org/event/umdf-ask-the-mito-doc-webcast-series-cardiacmito2026/
CATEGORIES:Ask the Mito Doc,Education
ORGANIZER;CN="Kara Strittmatter":MAILTO:kara@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260117T100000
DTEND;TZID=America/New_York:20260117T120000
DTSTAMP:20260423T155049
CREATED:20240111T130250Z
LAST-MODIFIED:20250206T185233Z
UID:10002977-1768644000-1768651200@umdf.org
SUMMARY:Northeast PA Support Meeting
DESCRIPTION:  \nSupport Meeting- Northeast PA \nThird Saturday of each Month- In-Person \n10:00pm – 12:00pm Eastern\nSt. Luke’s Hospital\nPriscilla Payne Hurd Education Room\nRoom 104\n801 Ostrum Street\nBethlehem\, PA 18015\n \n  \nYou are not alone. Join us to share coping tips and connect with others. \nWe will meet the 3rd Saturday of each month! \n1:00pm – 3:00pm \nFor questions\, please contact Grace Robinson or Janelle Frank\, the Support Group Leaders:\ngracerobinson13@gmail.com or janelle.frank13@gmail.com
URL:https://umdf.org/event/support-group-meeting-nepa-2-2021-01-16-2021-02-20-2-2/2026-01-17/
CATEGORIES:Northeast
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260116T200000
DTEND;TZID=America/New_York:20260116T210000
DTSTAMP:20260423T155049
CREATED:20250113T183749Z
LAST-MODIFIED:20250113T183753Z
UID:10002141-1768593600-1768597200@umdf.org
SUMMARY:Teen and Young Adult Virtual Meet-Up Ages 16-35
DESCRIPTION:UMDF Teen/Young Adult \n“Virtual Meet-Up” \nTeens and Young Adults Age 16-35 \nEvery Friday!\n8:00pm ET \nJoin us EVERY Friday for a VIRTUAL Meet-Up! \nJoin us for this “Virtual Meet-Up”! It is tough being stuck at home\, but you are not alone. Let’s get together\, share coping tips and have some FUN! \nUMDF Support Ambassadors\, Kristi Dellinger and Devin Shuman will lead these calls.\nSee you on Friday! \nRegister in advance for this meeting:\nIf you registered last week\, you can use the same information to join every week!\nClick Here to Register Now \nAfter registering\, you will receive a confirmation email containing information about joining the meeting. \nIf you have questions\, please email Margaret Moore at margaret.moore@umdf.org
URL:https://umdf.org/event/young-adult-virtual-happy-hour-ages-16-35-2-2-2-2021-01-22-2-3-2/2026-01-16/
CATEGORIES:Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260114T120000
DTEND;TZID=America/New_York:20260114T130000
DTSTAMP:20260423T155049
CREATED:20250108T144422Z
LAST-MODIFIED:20250121T173952Z
UID:10003572-1768392000-1768395600@umdf.org
SUMMARY:Support Group for All
DESCRIPTION:When: The Second Wednesday of each month at 12:00 PM Eastern Time (US and Canada) \nRegister in advance for this meeting: \nhttps://umdf.zoom.us/meeting/register/tZcpcumsrTsiH9w1_pPmjbc-KqRCAIrmQCKt \nAfter registering\, you will receive a confirmation email containing information about joining the meeting.
URL:https://umdf.org/event/support-group-for-all/2026-01-14/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260109T200000
DTEND;TZID=America/New_York:20260109T210000
DTSTAMP:20260423T155049
CREATED:20250113T183749Z
LAST-MODIFIED:20250113T183753Z
UID:10002140-1767988800-1767992400@umdf.org
SUMMARY:Teen and Young Adult Virtual Meet-Up Ages 16-35
DESCRIPTION:UMDF Teen/Young Adult \n“Virtual Meet-Up” \nTeens and Young Adults Age 16-35 \nEvery Friday!\n8:00pm ET \nJoin us EVERY Friday for a VIRTUAL Meet-Up! \nJoin us for this “Virtual Meet-Up”! It is tough being stuck at home\, but you are not alone. Let’s get together\, share coping tips and have some FUN! \nUMDF Support Ambassadors\, Kristi Dellinger and Devin Shuman will lead these calls.\nSee you on Friday! \nRegister in advance for this meeting:\nIf you registered last week\, you can use the same information to join every week!\nClick Here to Register Now \nAfter registering\, you will receive a confirmation email containing information about joining the meeting. \nIf you have questions\, please email Margaret Moore at margaret.moore@umdf.org
URL:https://umdf.org/event/young-adult-virtual-happy-hour-ages-16-35-2-2-2-2021-01-22-2-3-2/2026-01-09/
CATEGORIES:Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260107T200000
DTEND;TZID=America/New_York:20260107T210000
DTSTAMP:20260423T155049
CREATED:20250227T153450Z
LAST-MODIFIED:20250313T133520Z
UID:10003793-1767816000-1767819600@umdf.org
SUMMARY:LHON Live! Monthly Call
DESCRIPTION:NOTE: Unless specific to a geographic location – all LHON virtual meetings will be set in Eastern Time. \nThis call is for everyone interested in LHON…those affected\, carriers\, or sighted supporters…all are welcome.  You can speak up and share your thoughts\, or just listen to what others have to say…It’s your call!  Hosts Jessica Loomer and Andy Marks facilitate this call. \nRecordings from prior LHON Live! calls are located at this link: https://www.umdf.org/types/lhon/ \nReach out to Jessica Loomer at jessica.loomer@gmail.com or Andy Marks at marks.andy.c@gmail.com with any questions. \nJoin Details:\nOne option is to use Internet Audio to call at no charge at: https://umdf.zoom.us/j/95371313871\nMeeting ID: 953 7131 3871 \nOr if your phone plan includes Unlimited Minutes\, then here are Toll Charge numbers to one-click call: \n+13017158592\,\,95371313871# US\n+13126266799\,\,95371313871# US\nCanada: +16475580588\,\,95371313871#\nAustralia: +61280152088\,\,95371313871#\nUK: +442034815240\,\,95371313871# \nFor callers in other countries\, find your local number here: https://zoom.us/u/aYbvpoNU9\nMeeting ID: 953 7131 3871 \nClick Here for Previous LHON Live! Recordings  \n 
URL:https://umdf.org/event/lhon-live-monthly-call/2026-01-07/
CATEGORIES:LHON,Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260105T120000
DTEND;TZID=America/New_York:20260105T130000
DTSTAMP:20260423T155049
CREATED:20251231T152559Z
LAST-MODIFIED:20251231T185430Z
UID:10004338-1767614400-1767618000@umdf.org
SUMMARY:UMDF Bench-to-Bedside Clinical Trials Update - Part 2
DESCRIPTION:UMDF Bench-to-Bedside – Clinical Trials Update – Part 2\n\nModerator: Philip Yeske\, PhD and Amel Karaa\, MD \nClick Here to Register  \nMitochondrial Disease Clinical Trial Updates – Part 2 \nSpeakers: \n\nPatrice Rioux\, PhD\, Co-Founder\, Director and CEO\, Thiogenesis Therapeutics\nRobert Fischer\, PhD\, CEO/CSO\, OMEICOS Therapeutics\nNiven R. Narain\, PhD\, President & CEO\, BPGBio\nAshish Dugar\, PhD\, MBA\, Chief Development Officer\, Pretzel Therapeutics\nSharon Hamm\, PharmD\, Senior Vice President\, Saol Therapeutics\nGiovanni Passiatore\,  Senior Director\, Medical Affairs\, Chiesi Global Rare Diseases\nDaniel DiPietro\, Co-Founder\, Pierrepont Therapeutics\n\n  \nTime: 12:00pm ET/11:00am CT/9:00a PT \n 
URL:https://umdf.org/event/umdf-bench-to-bedside-clinical-trials-update-part-2-2026/
CATEGORIES:Ask the Mito Doc,Education,Support Meeting
ORGANIZER;CN="Kara Strittmatter":MAILTO:kara@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20260105T100000
DTEND;TZID=America/Los_Angeles:20260105T110000
DTSTAMP:20260423T155049
CREATED:20240708T192355Z
LAST-MODIFIED:20250828T233020Z
UID:10003192-1767607200-1767610800@umdf.org
SUMMARY:California Virtual Support Group Meeting
DESCRIPTION:UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips\, share your story and connect with others. We hope you will attend and see that you are not alone. \nThe first Monday of each month• 10:00am – 11:00am Pacific \nLearn more & register here. \nRegistration is required\, and you will receive a confirmation email with information to join the meeting. If you have any questions\, contact Margaret Moore at margaret.moore@5mr.c80.myftpupload.com or 412-354-1553. \nVisit the UMDF Event Calendar for all updates and upcoming events here. \nSpecial Thanks to our Sponsors\nEdith L. Trees Charitable Trust
URL:https://umdf.org/event/california-virtual-support-group-meeting-2022-09-05-3-2-2-2/2026-01-05/
CATEGORIES:Pacific,Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260105T100000
DTEND;TZID=America/New_York:20260105T110000
DTSTAMP:20260423T155049
CREATED:20220301T170012Z
LAST-MODIFIED:20220923T194001Z
UID:10004345-1767607200-1767610800@umdf.org
SUMMARY:California Virtual Support Group Meeting
DESCRIPTION:UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips\, share your story and connect with others. We hope you will attend and see that you are not alone. \nMonday\, March 7 • 10:00pm – 11:00am Pacific \nLearn more & register here. \nRegistration is required\, and you will receive a confirmation email with information to join the meeting. If you have any questions\, contact Margaret Moore at margaret.moore@5mr.c80.myftpupload.com or 412-354-1553. \nVisit the UMDF Event Calendar for all updates and upcoming events here. \nSpecial Thanks to our Sponsors\nEdith L. Trees Charitable Trust • Astellas • Jack Edwards Family Impact Fund
URL:https://umdf.org/event/california-virtual-support-group-meeting/2026-01-05/
CATEGORIES:Pacific,Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
END:VCALENDAR