LHON – Midwest Connect
This call is for those living in the Midwest with an interest in LHON. Consider joining the call and sharing your experiences with others in a similar situation. This call takes place quarterly on the Third Monday of each month at 7pm-8pm Central/8:00pm-9:00pm Eastern. March 21 from 8:00pm – 9:00pm Eastern June 20 from 8:00pm […]
Parent and Caregiver Virtual Support Meeting
Parent and Caregiver Virtual Support Meeting Hello Parents and Caregivers impacted by Mitochondrial Disease! Please join us for a Parent and Caregiver Virtual Support Meeting. We will get to know each other, share resources, and build community! Join us for a VIRTUAL MEETING! The THIRD Monday of every month! 8:00pm-9:00pm ET Register HERE After registering, you […]
LHON – Southwest Connect
LHON - Southwest Connect This call for those living in the Southwest with an interest in LHON takes place quarterly on the third Tuesday of the month at 8:00pm Pacific. Host Donna Basse facilitates this call. Consider joining the call and sharing your experiences with others in a similar situation. Reach out to Donna Basse […]
UMDF Ask the Mito Doc Webcast Series – Best Practices within a Mitochondrial Care Network Team – Navigating Patient Care
We are exciting to kick off the fall Ask the Mito Doc Monthly webcast series with one of the Mitochondrial Care Network Teams - join us and have your questions ready!
Moms of LHON-Affected “Kids of All Ages” (Wednesday)
Join us for the Moms of LHON-Affected "Kids of All Ages" virtual meeting.
UMDF and MEPAN – Special Virtual Meet the Researcher Webcast
Join us Thursday, September 21 at 11:00 AM ET/10:00 AM CT/8:00 AM PT Click Here to Register The UMDF is working with our MEPAN families to organize this special virtual webcast to share information from this past June's meeting in Charlotte. Speakers and/or scientific attendees with an interest or experience with Mito Transfer/Fatty Acid Synthesis […]
Western New York Support Meeting
"Virtual AND In-Person" Support Meeting- Western New York You are not alone. Join us to share coping tips and connect with others. We are now meeting in-person. Please let us know if you will be attending by registering HERE. The third Thursday of each month 6:00pm - 7:00pm Register in advance for this meeting. *** […]
LHON – New York, New Jersey, Pennsylvania Connect
This call is for those living in New York, New Jersey, or Pennsylvania with an interest in LHON. Hosts Jim and Mary Tolve facilitate this call. Consider joining the call and sharing your experiences with others in a similar situation. There's also a Facebook group for those in New York located at this link: New […]
CHOP 4th Annual Next Generation Therapeutics Virtual Panel
For the past three years, the Mitochondrial Medicine team from Children’s Hospital of Philadelphia (CHOP) has convened a virtual Next Generation Therapeutics panel to spark discussion between clinicians, industry leaders, patients and families affected by mitochondrial disease. CHOP is thrilled to host the 4th Annual Next Generation Therapeutics Virtual Panel, presented by UCB, from 10 a.m. to noon […]
Teen and Young Adult Virtual Meet-Up Ages 16-35
UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It is tough being stuck at home, but you are not alone. Let's get together, share coping tips and have some FUN! UMDF Support Ambassadors, Kristi […]
Energy for Life Walk: Detroit
Rotary Park Six Mile Road & Hubbard Street, Livonia, MI, United StatesEnergy for Life Walkathon: Detroit 2023 When: September 23, 2023 Where: Rotary Park, Pavilions 3 & 4 Six Mile Rd & Hubbard St | Livonia, MI 48152 Contact: events@umdf.org Schedule of Events 9:00 am - Walk Registration, Bake Sale & Auction Kick-off 10:00 am - Opening Ceremony 10:30 am - 1 Mile Walk Starts 11:30 […]