Virtual Energy for Life Walkathon-Charlotte
Join us for the 12th Annual Energy For Life Walkathon-Charlotte 2021! Event Details Saturday, October 9, 2021 Virtual Energy for Life Walkathon: Charlotte 2021 The COVID-19 pandemic has changed life as we know it, but it did not change the need for funding vital programs and services that support our patient families and accelerate the […]
Moms of LHON-Affected “Kids of All Ages” (Saturday)
This additional bimonthly call is also for Moms of LHON-Affected "Kids of All Ages" takes place on the third Saturday of every month at 12:00pm EST/9:00am PST.
Adult Virtual Support Meeting
Adult Virtual Support Meeting Hello Adults impacted by Mitochondrial Disease! Please join us for an Adult Virtual Support Meeting. We will get to know each other, share resources, and build community! Join us for a VIRTUAL MEETING! The FIRST Thursday of every month! 8:00pm-9:00pm ET Register HERE After registering, you will receive a confirmation email containing information about joining […]
UMDF Ask the Mito Doc Webcast Series – Special End of the Year Webcast
We are wrapping up 2021 with EIGHT clinicians - you will not want to miss this opportunity. We know that it is difficult to get through all of the questions when presentations are part of the webcast. December 14 will be a full hour and 15 minutes dedicated to Q&A. Join us!
Moms of LHON-Affected “Kids of All Ages” (Saturday)
This additional bimonthly call is also for Moms of LHON-Affected "Kids of All Ages" takes place on the third Saturday of every month at 12:00pm EST/9:00am PST.
UMDF Ask the Mito Doc Webcast Series – Starting the New Year with Transitioning
Transitioning medical care from pediatric to adulthood can be an extremely daunting process. Our speakers will share helpful information that will serve as a excellent toolkit to guide you and/or your loved one through the process.
Dads of LHON-Affected “Kids of All Ages”
NOTE: Unless specific to a geographic location - all LHON virtual meetings will be set in Eastern Time. The bimonthly call for Dads of LHON-Affected "Kids of All Ages" takes place on the third Wednesday of every other month at 8:00pm EST/5:00pm PST. Hosts Tony Wright and Jim Tolve host this open-discussion format call. If you're a […]
UMDF Ask the Mito Doc Webcast Series – Understanding Genetic Testing
Transitioning medical care from pediatric to adulthood can be an extremely daunting process. Our speakers will share helpful information that will serve as a excellent toolkit to guide you and/or your loved one through the process.
ARS Virtual Support Meeting March 2022
ARS "Virtual" Support Meeting Are you or your loved one impacted by a mitochondrial ARS gene mutation?? Mito ARS genes are a family of related genes known as Aminoacyl-tRNA Synthetases (ARSs). If so, please join us for a Virtual Support Meeting! We will get to know each other, share resources and build community! Join us […]
California Virtual Support Group Meeting
UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips, share your story and connect with others. We hope you will attend and see that you are not alone. Monday, March 7 • 10:00pm – 11:00am Pacific Learn more & register here. […]
LHON – Midwest Connect
This call is for those living in the Midwest with an interest in LHON. Consider joining the call and sharing your experiences with others in a similar situation. This call takes place quarterly on the Third Monday of each month at 7pm-8pm Central/8:00pm-9:00pm Eastern. March 21 from 8:00pm – 9:00pm Eastern June 20 from 8:00pm […]
UMDF Ask the Mito Doc Webcast Series – The Power of the Patient Voice
Transitioning medical care from pediatric to adulthood can be an extremely daunting process. Our speakers will share helpful information that will serve as a excellent toolkit to guide you and/or your loved one through the process.