Event Series LHON – Teens

LHON – Teens

This call is ONLY for teens (under 18) who are affected with LHON vision loss. Hosts Jeremy Poincenot and Molly Garrone lead this call. This call takes place at 5:00pm PST/8:00pm EST every other month on the first Tuesday of the month for an hour and a half unless otherwise noted.

LHON Live! Monthly Call

NOTE: Unless specific to a geographic location - all LHON virtual meetings will be set in Eastern Time. This call is for everyone interested in LHON...those affected, carriers, or sighted supporters...all […]

Energy for Life Walk – Seattle

Warren G. Magnuson Park 7400 Sand Point Way NE, Seattle, WA

ENERGY FOR LIFE WALK SEATTLE OCTOBER 6, 2024 LOCATION Warren G. Magnuson Park SCHEDULE Site Opens: 8:30 AM Opening Ceremony: 9:10 AM CONTACT Angela Sommer - 412-744-1066

Energy for Life Walk – Orlando

Blanchard Park 2451 Dean Road, Orlando, PA, United States

ENERGY FOR LIFE WALK ORLANDO OCTOBER 12, 2024 LOCATION Blanchard Park SCHEDULE Site Opens: 9:00 AM Opening Ceremony: 10:00 AM CONTACT Monika Hancock - 412-225-9066

Dads of LHON-Affected “Kids of All Ages”

NOTE: Unless specific to a geographic location - all LHON virtual meetings will be set in Eastern Time. The monthly call for Dads of LHON-Affected "Kids of All Ages" takes […]