BEGIN:VCALENDAR VERSION:2.0 PRODID:-//UMDF - ECPv6.15.20//NONSGML v1.0//EN CALSCALE:GREGORIAN METHOD:PUBLISH X-ORIGINAL-URL:https://umdf.org X-WR-CALDESC:Events for UMDF REFRESH-INTERVAL;VALUE=DURATION:PT1H X-Robots-Tag:noindex X-PUBLISHED-TTL:PT1H BEGIN:VTIMEZONE TZID:America/New_York BEGIN:DAYLIGHT TZOFFSETFROM:-0500 TZOFFSETTO:-0400 TZNAME:EDT DTSTART:20230312T070000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0400 TZOFFSETTO:-0500 TZNAME:EST DTSTART:20231105T060000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:-0500 TZOFFSETTO:-0400 TZNAME:EDT DTSTART:20240310T070000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0400 TZOFFSETTO:-0500 TZNAME:EST DTSTART:20241103T060000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:-0500 TZOFFSETTO:-0400 TZNAME:EDT DTSTART:20250309T070000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0400 TZOFFSETTO:-0500 TZNAME:EST DTSTART:20251102T060000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:-0500 TZOFFSETTO:-0400 TZNAME:EDT DTSTART:20260308T070000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0400 TZOFFSETTO:-0500 TZNAME:EST DTSTART:20261101T060000 END:STANDARD END:VTIMEZONE BEGIN:VTIMEZONE TZID:America/Los_Angeles BEGIN:DAYLIGHT TZOFFSETFROM:-0800 TZOFFSETTO:-0700 TZNAME:PDT DTSTART:20240310T100000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0700 TZOFFSETTO:-0800 TZNAME:PST DTSTART:20241103T090000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:-0800 TZOFFSETTO:-0700 TZNAME:PDT DTSTART:20250309T100000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0700 TZOFFSETTO:-0800 TZNAME:PST DTSTART:20251102T090000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:-0800 TZOFFSETTO:-0700 TZNAME:PDT DTSTART:20260308T100000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0700 TZOFFSETTO:-0800 TZNAME:PST DTSTART:20261101T090000 END:STANDARD END:VTIMEZONE BEGIN:VTIMEZONE TZID:America/Chicago BEGIN:DAYLIGHT TZOFFSETFROM:-0600 TZOFFSETTO:-0500 TZNAME:CDT DTSTART:20240310T080000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0500 TZOFFSETTO:-0600 TZNAME:CST DTSTART:20241103T070000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:-0600 TZOFFSETTO:-0500 TZNAME:CDT DTSTART:20250309T080000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0500 TZOFFSETTO:-0600 TZNAME:CST DTSTART:20251102T070000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:-0600 TZOFFSETTO:-0500 TZNAME:CDT DTSTART:20260308T080000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0500 TZOFFSETTO:-0600 TZNAME:CST DTSTART:20261101T070000 END:STANDARD END:VTIMEZONE BEGIN:VEVENT DTSTART;TZID=America/New_York:20241227T200000 DTEND;TZID=America/New_York:20241227T210000 DTSTAMP:20260423T110331 CREATED:20230622T182147Z LAST-MODIFIED:20230622T182745Z UID:10002086-1735329600-1735333200@umdf.org SUMMARY:Teen and Young Adult Virtual Meet-Up Ages 16-35 DESCRIPTION:UMDF Teen/Young Adult \n“Virtual Meet-Up” \nTeens and Young Adults Age 16-35 \nEvery Friday!\n8:00pm ET \nJoin us EVERY Friday for a VIRTUAL Meet-Up! \nJoin us for this “Virtual Meet-Up”! It is tough being stuck at home\, but you are not alone. Let’s get together\, share coping tips and have some FUN! \nUMDF Support Ambassadors\, Kristi Dellinger and Devin Shuman will lead these calls.\nSee you on Friday! \nRegister in advance for this meeting:\nIf you registered last week\, you can use the same information to join every week!\nClick Here to Register Now \nAfter registering\, you will receive a confirmation email containing information about joining the meeting. \nIf you have questions\, please email Margaret Moore at margaret.moore@5mr.c80.myftpupload.com URL:https://umdf.org/event/young-adult-virtual-happy-hour-ages-16-35-2-2-2-2021-01-22-2-3/2024-12-27/ CATEGORIES:Support Meeting ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20250102T200000 DTEND;TZID=America/New_York:20250102T210000 DTSTAMP:20260423T110331 CREATED:20231019T142537Z LAST-MODIFIED:20251209T192747Z UID:10002419-1735848000-1735851600@umdf.org SUMMARY:Adult Virtual Support Meeting DESCRIPTION:Adult Virtual Support Meeting \nHello Adults impacted by Mitochondrial Disease! Please join us for an Adult Virtual Support Meeting. \nWe will get to know each other\, share resources\, and build community! \nJoin us for a VIRTUAL MEETING!\nThe FIRST Thursday of every month!\n8:00pm-9:00pm ET\nRegister HERE \nAfter registering\, you will receive a confirmation email containing information about joining the meeting. \nFor questions\, please email Margaret Moore at: margaret.moore@5mr.c80.myftpupload.com \nTHANK YOU TO OUR SPONSORS \nEdith L. Trees Charitable Trust \nAstellas \nJack Edwards Family Impact Fund \n  \n  URL:https://umdf.org/event/adult-virtual-support-meetingsep2022-2-2/2025-01-02/ CATEGORIES:Support Meeting ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20250103T200000 DTEND;TZID=America/New_York:20250103T210000 DTSTAMP:20260423T110331 CREATED:20230622T182147Z LAST-MODIFIED:20230622T182745Z UID:10002087-1735934400-1735938000@umdf.org SUMMARY:Teen and Young Adult Virtual Meet-Up Ages 16-35 DESCRIPTION:UMDF Teen/Young Adult \n“Virtual Meet-Up” \nTeens and Young Adults Age 16-35 \nEvery Friday!\n8:00pm ET \nJoin us EVERY Friday for a VIRTUAL Meet-Up! \nJoin us for this “Virtual Meet-Up”! It is tough being stuck at home\, but you are not alone. Let’s get together\, share coping tips and have some FUN! \nUMDF Support Ambassadors\, Kristi Dellinger and Devin Shuman will lead these calls.\nSee you on Friday! \nRegister in advance for this meeting:\nIf you registered last week\, you can use the same information to join every week!\nClick Here to Register Now \nAfter registering\, you will receive a confirmation email containing information about joining the meeting. \nIf you have questions\, please email Margaret Moore at margaret.moore@5mr.c80.myftpupload.com URL:https://umdf.org/event/young-adult-virtual-happy-hour-ages-16-35-2-2-2-2021-01-22-2-3/2025-01-03/ CATEGORIES:Support Meeting ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20250106T100000 DTEND;TZID=America/New_York:20250106T110000 DTSTAMP:20260423T110331 CREATED:20220301T170012Z LAST-MODIFIED:20220923T194001Z UID:10003834-1736157600-1736161200@umdf.org SUMMARY:California Virtual Support Group Meeting DESCRIPTION:UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips\, share your story and connect with others. We hope you will attend and see that you are not alone. \nMonday\, March 7 • 10:00pm – 11:00am Pacific \nLearn more & register here. \nRegistration is required\, and you will receive a confirmation email with information to join the meeting. If you have any questions\, contact Margaret Moore at margaret.moore@5mr.c80.myftpupload.com or 412-354-1553. \nVisit the UMDF Event Calendar for all updates and upcoming events here. \nSpecial Thanks to our Sponsors\nEdith L. Trees Charitable Trust • Astellas • Jack Edwards Family Impact Fund URL:https://umdf.org/event/california-virtual-support-group-meeting/2025-01-06/ CATEGORIES:Pacific,Support Meeting ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/Los_Angeles:20250106T100000 DTEND;TZID=America/Los_Angeles:20250106T110000 DTSTAMP:20260423T110331 CREATED:20240708T192355Z LAST-MODIFIED:20250828T233020Z UID:10003180-1736157600-1736161200@umdf.org SUMMARY:California Virtual Support Group Meeting DESCRIPTION:UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips\, share your story and connect with others. We hope you will attend and see that you are not alone. \nThe first Monday of each month• 10:00am – 11:00am Pacific \nLearn more & register here. \nRegistration is required\, and you will receive a confirmation email with information to join the meeting. If you have any questions\, contact Margaret Moore at margaret.moore@5mr.c80.myftpupload.com or 412-354-1553. \nVisit the UMDF Event Calendar for all updates and upcoming events here. \nSpecial Thanks to our Sponsors\nEdith L. Trees Charitable Trust URL:https://umdf.org/event/california-virtual-support-group-meeting-2022-09-05-3-2-2-2/2025-01-06/ CATEGORIES:Pacific,Support Meeting ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20250107T120000 DTEND;TZID=America/New_York:20250107T133000 DTSTAMP:20260423T110331 CREATED:20241113T170359Z LAST-MODIFIED:20250103T212935Z UID:10003251-1736251200-1736256600@umdf.org SUMMARY:Mindfulness with Mary Series (monthly) DESCRIPTION:Please join us for a monthly Mindfulness series with UMDF Support Ambassador\, Mary Canton. We will host these sessions every fourth Tuesday from 12:00pm -1:30pm ET. \nYou can register HERE URL:https://umdf.org/event/mindfulness-with-mary-series-2/ END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20250107T200000 DTEND;TZID=America/New_York:20250107T210000 DTSTAMP:20260423T110331 CREATED:20250109T015842Z LAST-MODIFIED:20250129T212652Z UID:10003742-1736280000-1736283600@umdf.org SUMMARY:LHON Live! Monthly Call DESCRIPTION:NOTE: Unless specific to a geographic location – all LHON virtual meetings will be set in Eastern Time. \nThis call is for everyone interested in LHON…those affected\, carriers\, or sighted supporters…all are welcome.  You can speak up and share your thoughts\, or just listen to what others have to say…It’s your call!  Hosts Jessica Loomer and Andy Marks facilitate this call. \nRecordings from prior LHON Live! calls are located at this link: https://www.umdf.org/types/lhon/ \nReach out to Jessica Loomer at jessica.loomer@gmail.com or Andy Marks at marks.andy.c@gmail.com with any questions. \nJoin Details:\nOne option is to use Internet Audio to call at no charge at: https://umdf.zoom.us/j/95371313871\nMeeting ID: 953 7131 3871 \nOr if your phone plan includes Unlimited Minutes\, then here are Toll Charge numbers to one-click call: \n+13017158592\,\,95371313871# US\n+13126266799\,\,95371313871# US\nCanada: +16475580588\,\,95371313871#\nAustralia: +61280152088\,\,95371313871#\nUK: +442034815240\,\,95371313871# \nFor callers in other countries\, find your local number here: https://zoom.us/u/aYbvpoNU9\nMeeting ID: 953 7131 3871 \nClick Here for Previous LHON Live! Recordings \n  URL:https://umdf.org/event/lhon-live-monthly-call-2-2-2-3/2025-01-07/ CATEGORIES:LHON,Support Meeting ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20250108T120000 DTEND;TZID=America/New_York:20250108T130000 DTSTAMP:20260423T110331 CREATED:20250108T144422Z LAST-MODIFIED:20250121T173952Z UID:10003370-1736337600-1736341200@umdf.org SUMMARY:Support Group for All DESCRIPTION:When: The Second Wednesday of each month at 12:00 PM Eastern Time (US and Canada) \nRegister in advance for this meeting: \nhttps://umdf.zoom.us/meeting/register/tZcpcumsrTsiH9w1_pPmjbc-KqRCAIrmQCKt \nAfter registering\, you will receive a confirmation email containing information about joining the meeting. URL:https://umdf.org/event/support-group-for-all/2025-01-08/ END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20250110T200000 DTEND;TZID=America/New_York:20250110T210000 DTSTAMP:20260423T110331 CREATED:20230622T182147Z LAST-MODIFIED:20230622T182745Z UID:10002088-1736539200-1736542800@umdf.org SUMMARY:Teen and Young Adult Virtual Meet-Up Ages 16-35 DESCRIPTION:UMDF Teen/Young Adult \n“Virtual Meet-Up” \nTeens and Young Adults Age 16-35 \nEvery Friday!\n8:00pm ET \nJoin us EVERY Friday for a VIRTUAL Meet-Up! \nJoin us for this “Virtual Meet-Up”! It is tough being stuck at home\, but you are not alone. Let’s get together\, share coping tips and have some FUN! \nUMDF Support Ambassadors\, Kristi Dellinger and Devin Shuman will lead these calls.\nSee you on Friday! \nRegister in advance for this meeting:\nIf you registered last week\, you can use the same information to join every week!\nClick Here to Register Now \nAfter registering\, you will receive a confirmation email containing information about joining the meeting. \nIf you have questions\, please email Margaret Moore at margaret.moore@5mr.c80.myftpupload.com URL:https://umdf.org/event/young-adult-virtual-happy-hour-ages-16-35-2-2-2-2021-01-22-2-3/2025-01-10/ CATEGORIES:Support Meeting ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20250113T120000 DTEND;TZID=America/New_York:20250113T130000 DTSTAMP:20260423T110331 CREATED:20241122T181042Z LAST-MODIFIED:20241211T093657Z UID:10003269-1736769600-1736773200@umdf.org SUMMARY:UMDF Bench-to-Bedside Clinical Trials Update - Part 2 DESCRIPTION:UMDF Bench-to-Bedside – Clinical Trials Update – Part 2\n\nModerator: Philip Yeske\, PhD and Zuela Zolkipli Cunningham\, MD \nClick Here to Register \nThe Effects of L-arginine on Cerebrovascular Reactivity\, Perfusion and Neurovascular Coupling in MELAS Syndrome \nSpeaker:  Ingrid Tein\, BSc\, MD\, FRCP(C) – Hospital for Sick Children (SickKids)\, Toronto\, CA\n \nClinical Trial Updates – Part 2 – Presenters: \n\n\n\n Fernando Scaglia\, MD – Baylor College of Medicine\, Houston\, TX\n Jan Smeitink\, MD\, PhD – Khondrion\n Chad Glasser\, PharmD\, MPH – Tisento Therapeutics\n Magnus Hansson\, MD\, PhD – Abliva\n\n\n\nTime: 12:00pm ET/11:00am CT/9:00a PT \n  URL:https://umdf.org/event/umdf-bench-to-bedside-clinical-trials-update-part-2/ CATEGORIES:Ask the Mito Doc,Education,Support Meeting ORGANIZER;CN="Kara Strittmatter":MAILTO:kara@umdf.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20250115T190000 DTEND;TZID=America/New_York:20250115T200000 DTSTAMP:20260423T110331 CREATED:20241025T152436Z LAST-MODIFIED:20241025T153813Z UID:10003242-1736967600-1736971200@umdf.org SUMMARY:UMDF Ask the Mito Doc Webcast Series – A Comprehensive Vision: Understanding Chronic Progressive External Ophthalmoplegia (CPEO) from the Eyes to the Body DESCRIPTION:The United Mitochondrial Disease Foundation is pleased to offer the Ask the Mito Doc Webcast Series on a monthly basis to keep our patients and families connected to the mitochondrial medical community.  Each month\, we will highlight a specific topic with a short presentation and allow 15-20 minutes for question and answer time with the clinicians and guest speakers. \n\nJoin us on January 15\, 2025\nat 4:00pm Pacific/5:00pm Mountain/6:00pm Central/7:00pm Eastern \nClick Here to Register \nAgenda \n\nA Comprehensive Vision: Understanding Chronic Progressive \nExternal Ophthalmoplegia (CPEO) from the Eyes to the Body\nSpeakers: \n\nZarazuela Zolkipli Cunningham\, MD\, Children’s Hospital of Philadelphia\nRustum Karanjia MD\, PhD\, University of Ottawa Eye Institute\n\n\n\nWe invite you to submit your questions for the Ask the Mito Doc webcast in advance.  We will take as many questions as possible before\, during and after the webinar.  Question and Answer Protocol – Most questions pertinent to the monthly topic are typically addressed during the presentation(s).  Please note that not all questions can be answered through this forum.  If you submit a question and do not receive a response\, please do not hesitate to contact us at margaret.moore@5mr.c80.myftpupload.com. \nClick Here to Submit Your Question! \nWe hope you can join us on January 15\, 2025.  Registration is required.  After registering\, you will receive a confirmation email with Zoom credentials.  \nIf you are new to using ZOOM\, we suggest that you log in early on your computer or the device you plan to use.  Feel free to log in to the meeting link today.  It is so important that you do this in advance as we may not be able to assist you once the webcast begins.  If you have any questions\, contact Margaret Moore at margaret.moore@5mr.c80.myftpupload.com or 412-744-1061\, ext 105. \nWe are committed to providing needed support for our patient community.  \nCall our support line at 1-888-900-MITO to speak with a member of our patient services team.\nAlways remember\, we are here to help you and your family through your journey! \nSpecial Thanks to \nEdith L. Trees Charitable Trust\n  \n \n  URL:https://umdf.org/event/umdf-ask-the-mito-doc-webcast-series-cpeo-jan2025/ CATEGORIES:Ask the Mito Doc,Education ORGANIZER;CN="Kara Strittmatter":MAILTO:kara@umdf.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20250117T200000 DTEND;TZID=America/New_York:20250117T210000 DTSTAMP:20260423T110331 CREATED:20250113T183749Z LAST-MODIFIED:20250113T183753Z UID:10002089-1737144000-1737147600@umdf.org SUMMARY:Teen and Young Adult Virtual Meet-Up Ages 16-35 DESCRIPTION:UMDF Teen/Young Adult \n“Virtual Meet-Up” \nTeens and Young Adults Age 16-35 \nEvery Friday!\n8:00pm ET \nJoin us EVERY Friday for a VIRTUAL Meet-Up! \nJoin us for this “Virtual Meet-Up”! It is tough being stuck at home\, but you are not alone. Let’s get together\, share coping tips and have some FUN! \nUMDF Support Ambassadors\, Kristi Dellinger and Devin Shuman will lead these calls.\nSee you on Friday! \nRegister in advance for this meeting:\nIf you registered last week\, you can use the same information to join every week!\nClick Here to Register Now \nAfter registering\, you will receive a confirmation email containing information about joining the meeting. \nIf you have questions\, please email Margaret Moore at margaret.moore@umdf.org URL:https://umdf.org/event/young-adult-virtual-happy-hour-ages-16-35-2-2-2-2021-01-22-2-3-2/2025-01-17/ CATEGORIES:Support Meeting ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20250118T100000 DTEND;TZID=America/New_York:20250118T120000 DTSTAMP:20260423T110331 CREATED:20240111T130250Z LAST-MODIFIED:20250206T185233Z UID:10003636-1737194400-1737201600@umdf.org SUMMARY:Northeast PA Support Meeting DESCRIPTION:  \nSupport Meeting- Northeast PA \nThird Saturday of each Month- In-Person \n10:00pm – 12:00pm Eastern\nSt. Luke’s Hospital\nPriscilla Payne Hurd Education Room\nRoom 104\n801 Ostrum Street\nBethlehem\, PA 18015\n \n  \nYou are not alone. Join us to share coping tips and connect with others. \nWe will meet the 3rd Saturday of each month! \n1:00pm – 3:00pm \nFor questions\, please contact Grace Robinson or Janelle Frank\, the Support Group Leaders:\ngracerobinson13@gmail.com or janelle.frank13@gmail.com URL:https://umdf.org/event/support-group-meeting-nepa-2-2021-01-16-2021-02-20-2-2/2025-01-18/ CATEGORIES:Northeast ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/Chicago:20250123T190000 DTEND;TZID=America/Chicago:20250123T200000 DTSTAMP:20260423T110331 CREATED:20240620T144219Z LAST-MODIFIED:20251209T192223Z UID:10001390-1737658800-1737662400@umdf.org SUMMARY:Central Region Virtual Support Meeting DESCRIPTION:Central Region Virtual Support Meeting \nUMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips\, share your story and connect with others. We hope you will attend and see that you are not alone. \nFourth Thursday of each month • 7:00pm – 8:00pm Central \nLearn more & register here. \nRegistration is required\, and you will receive a confirmation email with information to join the meeting. If you have any questions\, contact Margaret Moore at margaret.moore@5mr.c80.myftpupload.com or 412-744-1061 Ext 105. \nVisit the UMDF Event Calendar for all updates and upcoming events here.  \nSpecial Thanks to our Sponsors\nEdith L. Trees Charitable Trust • Jack Edwards Family Impact Fund URL:https://umdf.org/event/central-region-virtual-support-meeting-2/2025-01-23/ END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20250124T200000 DTEND;TZID=America/New_York:20250124T210000 DTSTAMP:20260423T110331 CREATED:20250113T183749Z LAST-MODIFIED:20250113T183753Z UID:10002090-1737748800-1737752400@umdf.org SUMMARY:Teen and Young Adult Virtual Meet-Up Ages 16-35 DESCRIPTION:UMDF Teen/Young Adult \n“Virtual Meet-Up” \nTeens and Young Adults Age 16-35 \nEvery Friday!\n8:00pm ET \nJoin us EVERY Friday for a VIRTUAL Meet-Up! \nJoin us for this “Virtual Meet-Up”! It is tough being stuck at home\, but you are not alone. Let’s get together\, share coping tips and have some FUN! \nUMDF Support Ambassadors\, Kristi Dellinger and Devin Shuman will lead these calls.\nSee you on Friday! \nRegister in advance for this meeting:\nIf you registered last week\, you can use the same information to join every week!\nClick Here to Register Now \nAfter registering\, you will receive a confirmation email containing information about joining the meeting. \nIf you have questions\, please email Margaret Moore at margaret.moore@umdf.org URL:https://umdf.org/event/young-adult-virtual-happy-hour-ages-16-35-2-2-2-2021-01-22-2-3-2/2025-01-24/ CATEGORIES:Support Meeting ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20250128T120000 DTEND;TZID=America/New_York:20250128T133000 DTSTAMP:20260423T110331 CREATED:20250108T143501Z LAST-MODIFIED:20250820T133523Z UID:10003252-1738065600-1738071000@umdf.org SUMMARY:Mindfulness with Mary Series (monthly) DESCRIPTION:Please join us for a monthly Mindfulness series with UMDF Support Ambassador\, Mary Canton. We will host these sessions every fourth Tuesday from 12:00pm -1:30pm ET. \nYou can register HERE URL:https://umdf.org/event/mindfulness-with-mary-series-2-2/2025-01-28/ END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20250131T200000 DTEND;TZID=America/New_York:20250131T210000 DTSTAMP:20260423T110331 CREATED:20250113T183749Z LAST-MODIFIED:20250113T183753Z UID:10002091-1738353600-1738357200@umdf.org SUMMARY:Teen and Young Adult Virtual Meet-Up Ages 16-35 DESCRIPTION:UMDF Teen/Young Adult \n“Virtual Meet-Up” \nTeens and Young Adults Age 16-35 \nEvery Friday!\n8:00pm ET \nJoin us EVERY Friday for a VIRTUAL Meet-Up! \nJoin us for this “Virtual Meet-Up”! It is tough being stuck at home\, but you are not alone. Let’s get together\, share coping tips and have some FUN! \nUMDF Support Ambassadors\, Kristi Dellinger and Devin Shuman will lead these calls.\nSee you on Friday! \nRegister in advance for this meeting:\nIf you registered last week\, you can use the same information to join every week!\nClick Here to Register Now \nAfter registering\, you will receive a confirmation email containing information about joining the meeting. \nIf you have questions\, please email Margaret Moore at margaret.moore@umdf.org URL:https://umdf.org/event/young-adult-virtual-happy-hour-ages-16-35-2-2-2-2021-01-22-2-3-2/2025-01-31/ CATEGORIES:Support Meeting ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/Los_Angeles:20250201T120000 DTEND;TZID=America/Los_Angeles:20250201T130000 DTSTAMP:20260423T110331 CREATED:20210325T120929Z LAST-MODIFIED:20250123T163838Z UID:10003621-1738411200-1738414800@umdf.org SUMMARY:LHON MS Zoom Event DESCRIPTION:LHON MS Zoom Event\nThis Zoom event is for those in the LHON community who also live with MS. Our goal is to develop connections among those who have both LHON and MS. This call takes place quarterly on select dates.\n\nThere is also a Facebook group: LHON-MS group\n\nReach out to Lissa Poincenot at lhonpoince@aol.com with any questions.\n\nJoin Details:\nOne option is to use Internet Audio to call at no charge at:\nhttps://umdf.zoom.us/j/95371313871 \nMeeting ID: 953 7131 3871\nOr if your phone plan includes Unlimited Minutes\, then here are Toll Charge numbers to one-click call:\n+16699006833\,\,95371313871#\n+16468769923\,\,95371313871# \n  URL:https://umdf.org/event/lhon-ms-zoom-event-2-2/ CATEGORIES:LHON,Support Meeting ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20250203T100000 DTEND;TZID=America/New_York:20250203T110000 DTSTAMP:20260423T110331 CREATED:20220301T170012Z LAST-MODIFIED:20220923T194001Z UID:10003835-1738576800-1738580400@umdf.org SUMMARY:California Virtual Support Group Meeting DESCRIPTION:UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips\, share your story and connect with others. We hope you will attend and see that you are not alone. \nMonday\, March 7 • 10:00pm – 11:00am Pacific \nLearn more & register here. \nRegistration is required\, and you will receive a confirmation email with information to join the meeting. If you have any questions\, contact Margaret Moore at margaret.moore@5mr.c80.myftpupload.com or 412-354-1553. \nVisit the UMDF Event Calendar for all updates and upcoming events here. \nSpecial Thanks to our Sponsors\nEdith L. Trees Charitable Trust • Astellas • Jack Edwards Family Impact Fund URL:https://umdf.org/event/california-virtual-support-group-meeting/2025-02-03/ CATEGORIES:Pacific,Support Meeting ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/Los_Angeles:20250203T100000 DTEND;TZID=America/Los_Angeles:20250203T110000 DTSTAMP:20260423T110332 CREATED:20240708T192355Z LAST-MODIFIED:20250828T233020Z UID:10003181-1738576800-1738580400@umdf.org SUMMARY:California Virtual Support Group Meeting DESCRIPTION:UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips\, share your story and connect with others. We hope you will attend and see that you are not alone. \nThe first Monday of each month• 10:00am – 11:00am Pacific \nLearn more & register here. \nRegistration is required\, and you will receive a confirmation email with information to join the meeting. If you have any questions\, contact Margaret Moore at margaret.moore@5mr.c80.myftpupload.com or 412-354-1553. \nVisit the UMDF Event Calendar for all updates and upcoming events here. \nSpecial Thanks to our Sponsors\nEdith L. Trees Charitable Trust URL:https://umdf.org/event/california-virtual-support-group-meeting-2022-09-05-3-2-2-2/2025-02-03/ CATEGORIES:Pacific,Support Meeting ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20250206T200000 DTEND;TZID=America/New_York:20250206T210000 DTSTAMP:20260423T110332 CREATED:20231019T142537Z LAST-MODIFIED:20251209T192747Z UID:10002420-1738872000-1738875600@umdf.org SUMMARY:Adult Virtual Support Meeting DESCRIPTION:Adult Virtual Support Meeting \nHello Adults impacted by Mitochondrial Disease! Please join us for an Adult Virtual Support Meeting. \nWe will get to know each other\, share resources\, and build community! \nJoin us for a VIRTUAL MEETING!\nThe FIRST Thursday of every month!\n8:00pm-9:00pm ET\nRegister HERE \nAfter registering\, you will receive a confirmation email containing information about joining the meeting. \nFor questions\, please email Margaret Moore at: margaret.moore@5mr.c80.myftpupload.com \nTHANK YOU TO OUR SPONSORS \nEdith L. Trees Charitable Trust \nAstellas \nJack Edwards Family Impact Fund \n  \n  URL:https://umdf.org/event/adult-virtual-support-meetingsep2022-2-2/2025-02-06/ CATEGORIES:Support Meeting ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20250207T200000 DTEND;TZID=America/New_York:20250207T210000 DTSTAMP:20260423T110332 CREATED:20250109T015842Z LAST-MODIFIED:20250129T212652Z UID:10003743-1738958400-1738962000@umdf.org SUMMARY:LHON Live! Monthly Call DESCRIPTION:NOTE: Unless specific to a geographic location – all LHON virtual meetings will be set in Eastern Time. \nThis call is for everyone interested in LHON…those affected\, carriers\, or sighted supporters…all are welcome.  You can speak up and share your thoughts\, or just listen to what others have to say…It’s your call!  Hosts Jessica Loomer and Andy Marks facilitate this call. \nRecordings from prior LHON Live! calls are located at this link: https://www.umdf.org/types/lhon/ \nReach out to Jessica Loomer at jessica.loomer@gmail.com or Andy Marks at marks.andy.c@gmail.com with any questions. \nJoin Details:\nOne option is to use Internet Audio to call at no charge at: https://umdf.zoom.us/j/95371313871\nMeeting ID: 953 7131 3871 \nOr if your phone plan includes Unlimited Minutes\, then here are Toll Charge numbers to one-click call: \n+13017158592\,\,95371313871# US\n+13126266799\,\,95371313871# US\nCanada: +16475580588\,\,95371313871#\nAustralia: +61280152088\,\,95371313871#\nUK: +442034815240\,\,95371313871# \nFor callers in other countries\, find your local number here: https://zoom.us/u/aYbvpoNU9\nMeeting ID: 953 7131 3871 \nClick Here for Previous LHON Live! Recordings \n  URL:https://umdf.org/event/lhon-live-monthly-call-2-2-2-3/2025-02-07/ CATEGORIES:LHON,Support Meeting ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20250207T200000 DTEND;TZID=America/New_York:20250207T210000 DTSTAMP:20260423T110332 CREATED:20250113T183749Z LAST-MODIFIED:20250113T183753Z UID:10002092-1738958400-1738962000@umdf.org SUMMARY:Teen and Young Adult Virtual Meet-Up Ages 16-35 DESCRIPTION:UMDF Teen/Young Adult \n“Virtual Meet-Up” \nTeens and Young Adults Age 16-35 \nEvery Friday!\n8:00pm ET \nJoin us EVERY Friday for a VIRTUAL Meet-Up! \nJoin us for this “Virtual Meet-Up”! It is tough being stuck at home\, but you are not alone. Let’s get together\, share coping tips and have some FUN! \nUMDF Support Ambassadors\, Kristi Dellinger and Devin Shuman will lead these calls.\nSee you on Friday! \nRegister in advance for this meeting:\nIf you registered last week\, you can use the same information to join every week!\nClick Here to Register Now \nAfter registering\, you will receive a confirmation email containing information about joining the meeting. \nIf you have questions\, please email Margaret Moore at margaret.moore@umdf.org URL:https://umdf.org/event/young-adult-virtual-happy-hour-ages-16-35-2-2-2-2021-01-22-2-3-2/2025-02-07/ CATEGORIES:Support Meeting ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20250212T120000 DTEND;TZID=America/New_York:20250212T130000 DTSTAMP:20260423T110332 CREATED:20250108T144422Z LAST-MODIFIED:20250121T173952Z UID:10003561-1739361600-1739365200@umdf.org SUMMARY:Support Group for All DESCRIPTION:When: The Second Wednesday of each month at 12:00 PM Eastern Time (US and Canada) \nRegister in advance for this meeting: \nhttps://umdf.zoom.us/meeting/register/tZcpcumsrTsiH9w1_pPmjbc-KqRCAIrmQCKt \nAfter registering\, you will receive a confirmation email containing information about joining the meeting. URL:https://umdf.org/event/support-group-for-all/2025-02-12/ END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20250212T190000 DTEND;TZID=America/New_York:20250212T200000 DTSTAMP:20260423T110332 CREATED:20241112T232953Z LAST-MODIFIED:20241113T143155Z UID:10003247-1739386800-1739390400@umdf.org SUMMARY:UMDF Ask the Mito Doc Webcast Series – Comprehensive Care in Kearns-Sayre and Pearson Syndromes: Diagnosis\, Symptom Management\, and Support Strategies DESCRIPTION:The United Mitochondrial Disease Foundation is pleased to offer the Ask the Mito Doc Webcast Series on a monthly basis to keep our patients and families connected to the mitochondrial medical community.  Each month\, we will highlight a specific topic with a short presentation and allow 15-20 minutes for question and answer time with the clinicians and guest speakers. \n\nJoin us on February 12\, 2025\nat 4:00pm Pacific/5:00pm Mountain/6:00pm Central/7:00pm Eastern \nClick here to Register \nAgenda \n\nComprehensive Care in Kearns-Sayre and Pearson Syndromes:\nDiagnosis\, Symptom Management\, and Support Strategies\nSpeakers: \n\nRebecca Ganetzky\, MD\, Children’s Hospital of Philadelphia\nSumit Parikh MD\, The Cleveland Clinic\n\n\n\nWe invite you to submit your questions for the Ask the Mito Doc webcast in advance.  We will take as many questions as possible before\, during and after the webinar.  Question and Answer Protocol – Most questions pertinent to the monthly topic are typically addressed during the presentation(s).  Please note that not all questions can be answered through this forum.  If you submit a question and do not receive a response\, please do not hesitate to contact us at margaret.moore@5mr.c80.myftpupload.com. \nClick Here to Submit Your Question! \nWe hope you can join us on February 12\, 2025.  Registration is required.  After registering\, you will receive a confirmation email with Zoom credentials.  \nIf you are new to using ZOOM\, we suggest that you log in early on your computer or the device you plan to use.  Feel free to log in to the meeting link today.  It is so important that you do this in advance as we may not be able to assist you once the webcast begins.  If you have any questions\, contact Margaret Moore at margaret.moore@5mr.c80.myftpupload.com or 412-744-1061\, ext 105. \nWe are committed to providing needed support for our patient community.  \nCall our support line at 1-888-900-MITO to speak with a member of our patient services team.\nAlways remember\, we are here to help you and your family through your journey! \nSpecial Thanks to \nEdith L. Trees Charitable Trust\n  \n \n  URL:https://umdf.org/event/umdf-ask-the-mito-doc-webcast-series-comprehensive-care-kss-pearson/ CATEGORIES:Ask the Mito Doc,Education ORGANIZER;CN="Kara Strittmatter":MAILTO:kara@umdf.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20250214T200000 DTEND;TZID=America/New_York:20250214T210000 DTSTAMP:20260423T110332 CREATED:20250113T183749Z LAST-MODIFIED:20250113T183753Z UID:10002093-1739563200-1739566800@umdf.org SUMMARY:Teen and Young Adult Virtual Meet-Up Ages 16-35 DESCRIPTION:UMDF Teen/Young Adult \n“Virtual Meet-Up” \nTeens and Young Adults Age 16-35 \nEvery Friday!\n8:00pm ET \nJoin us EVERY Friday for a VIRTUAL Meet-Up! \nJoin us for this “Virtual Meet-Up”! It is tough being stuck at home\, but you are not alone. Let’s get together\, share coping tips and have some FUN! \nUMDF Support Ambassadors\, Kristi Dellinger and Devin Shuman will lead these calls.\nSee you on Friday! \nRegister in advance for this meeting:\nIf you registered last week\, you can use the same information to join every week!\nClick Here to Register Now \nAfter registering\, you will receive a confirmation email containing information about joining the meeting. \nIf you have questions\, please email Margaret Moore at margaret.moore@umdf.org URL:https://umdf.org/event/young-adult-virtual-happy-hour-ages-16-35-2-2-2-2021-01-22-2-3-2/2025-02-14/ CATEGORIES:Support Meeting ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20250218T200000 DTEND;TZID=America/New_York:20250218T213000 DTSTAMP:20260423T110332 CREATED:20250206T193637Z LAST-MODIFIED:20250206T193754Z UID:10003693-1739908800-1739914200@umdf.org SUMMARY:Spouses of LHON - Affected Individuals DESCRIPTION:Are you the spouse (or similar) of someone affected by LHON? Would you like to network with others in a similar situation? Consider joining our event for Spouses of LHON-Affected Individuals Zoom event. This Zoom event is a great opportunity to get to know each other and share LHON-related experiences. \nJoin Details:\nOne option is to use Internet Audio to call at no charge at:\nhttps://umdf.zoom.us/j/95371313871\nMeeting ID: 953 7131 3871 \nOr if your phone plan includes Unlimited Minutes\, then here are Toll Charge numbers to one-click call: \n+13017158592\,\,95371313871# US\n+13126266799\,\,95371313871# US\nCanada: +16475580588\,\,95371313871#\nAustralia: +61280152088\,\,95371313871#\nUK: +442034815240\,\,95371313871#\n\nFor callers in other countries\, find your local number here:\nhttps://zoom.us/u/aYbvpoNU9\nMeeting ID: 953 7131 3871 URL:https://umdf.org/event/spouses-of-lhon-affected-individuals/2025-02-18/ CATEGORIES:LHON,Support Meeting END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20250221T200000 DTEND;TZID=America/New_York:20250221T210000 DTSTAMP:20260423T110332 CREATED:20250113T183749Z LAST-MODIFIED:20250113T183753Z UID:10002094-1740168000-1740171600@umdf.org SUMMARY:Teen and Young Adult Virtual Meet-Up Ages 16-35 DESCRIPTION:UMDF Teen/Young Adult \n“Virtual Meet-Up” \nTeens and Young Adults Age 16-35 \nEvery Friday!\n8:00pm ET \nJoin us EVERY Friday for a VIRTUAL Meet-Up! \nJoin us for this “Virtual Meet-Up”! It is tough being stuck at home\, but you are not alone. Let’s get together\, share coping tips and have some FUN! \nUMDF Support Ambassadors\, Kristi Dellinger and Devin Shuman will lead these calls.\nSee you on Friday! \nRegister in advance for this meeting:\nIf you registered last week\, you can use the same information to join every week!\nClick Here to Register Now \nAfter registering\, you will receive a confirmation email containing information about joining the meeting. \nIf you have questions\, please email Margaret Moore at margaret.moore@umdf.org URL:https://umdf.org/event/young-adult-virtual-happy-hour-ages-16-35-2-2-2-2021-01-22-2-3-2/2025-02-21/ CATEGORIES:Support Meeting ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20250225T120000 DTEND;TZID=America/New_York:20250225T133000 DTSTAMP:20260423T110332 CREATED:20250108T143501Z LAST-MODIFIED:20250820T133523Z UID:10003360-1740484800-1740490200@umdf.org SUMMARY:Mindfulness with Mary Series (monthly) DESCRIPTION:Please join us for a monthly Mindfulness series with UMDF Support Ambassador\, Mary Canton. We will host these sessions every fourth Tuesday from 12:00pm -1:30pm ET. \nYou can register HERE URL:https://umdf.org/event/mindfulness-with-mary-series-2-2/2025-02-25/ END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20250225T200000 DTEND;TZID=America/New_York:20250225T213000 DTSTAMP:20260423T110332 CREATED:20250206T194151Z LAST-MODIFIED:20250313T201615Z UID:10003703-1740513600-1740519000@umdf.org SUMMARY:LHON Assistive Technology DESCRIPTION:This Zoom event is for anyone interested in discussing LHON & Assistive Technology. The event is led by Sara Nappi. Sara is affected by LHON\, and she is an Assistive Technology instructor. \nThere is also a Facebook group: LHON Assistive Technology\n\nTo join the Zoom event\, use the link below:\nhttps://umdf.zoom.us/j/95371313871\n\nMeeting ID: 953 7131 3871\n\nOr join by phone with one tap mobile:\n+16699006833\,\,95371313871#\n+16468769923\,\,95371313871#\n\nCanada: +16475580588\,\,95371313871#\nAustralia: +61280152088\,\,95371313871#\nUK: +442034815240\,\,95371313871#\nFor callers in other countries\, find your local number here:\nhttps://zoom.us/u/aYbvpoNU9\nMeeting ID: 953 7131 3871 \nPlease direct message Sara Nappi with any questions\, concerns or topic suggestions. \n\n\n\n\n\nMore details\nMore details\nCopy to my calendar\nCopy to my calendar URL:https://umdf.org/event/lhon-assistive-technology/2025-02-25/ CATEGORIES:LHON,Support Meeting END:VEVENT END:VCALENDAR