BEGIN:VCALENDAR VERSION:2.0 PRODID:-//UMDF - ECPv6.15.20//NONSGML v1.0//EN CALSCALE:GREGORIAN METHOD:PUBLISH X-WR-CALNAME:UMDF X-ORIGINAL-URL:https://umdf.org X-WR-CALDESC:Events for UMDF REFRESH-INTERVAL;VALUE=DURATION:PT1H X-Robots-Tag:noindex X-PUBLISHED-TTL:PT1H BEGIN:VTIMEZONE TZID:America/New_York BEGIN:DAYLIGHT TZOFFSETFROM:-0500 TZOFFSETTO:-0400 TZNAME:EDT DTSTART:20230312T070000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0400 TZOFFSETTO:-0500 TZNAME:EST DTSTART:20231105T060000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:-0500 TZOFFSETTO:-0400 TZNAME:EDT DTSTART:20240310T070000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0400 TZOFFSETTO:-0500 TZNAME:EST DTSTART:20241103T060000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:-0500 TZOFFSETTO:-0400 TZNAME:EDT DTSTART:20250309T070000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0400 TZOFFSETTO:-0500 TZNAME:EST DTSTART:20251102T060000 END:STANDARD END:VTIMEZONE BEGIN:VTIMEZONE TZID:America/Chicago BEGIN:DAYLIGHT TZOFFSETFROM:-0600 TZOFFSETTO:-0500 TZNAME:CDT DTSTART:20230312T080000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0500 TZOFFSETTO:-0600 TZNAME:CST DTSTART:20231105T070000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:-0600 TZOFFSETTO:-0500 TZNAME:CDT DTSTART:20240310T080000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0500 TZOFFSETTO:-0600 TZNAME:CST DTSTART:20241103T070000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:-0600 TZOFFSETTO:-0500 TZNAME:CDT DTSTART:20250309T080000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0500 TZOFFSETTO:-0600 TZNAME:CST DTSTART:20251102T070000 END:STANDARD END:VTIMEZONE BEGIN:VEVENT DTSTART;TZID=America/New_York:20240719T200000 DTEND;TZID=America/New_York:20240719T210000 DTSTAMP:20260423T123344 CREATED:20230622T182147Z LAST-MODIFIED:20230622T182745Z UID:10002063-1721419200-1721422800@umdf.org SUMMARY:Teen and Young Adult Virtual Meet-Up Ages 16-35 DESCRIPTION:UMDF Teen/Young Adult \n“Virtual Meet-Up” \nTeens and Young Adults Age 16-35 \nEvery Friday!\n8:00pm ET \nJoin us EVERY Friday for a VIRTUAL Meet-Up! \nJoin us for this “Virtual Meet-Up”! It is tough being stuck at home\, but you are not alone. Let’s get together\, share coping tips and have some FUN! \nUMDF Support Ambassadors\, Kristi Dellinger and Devin Shuman will lead these calls.\nSee you on Friday! \nRegister in advance for this meeting:\nIf you registered last week\, you can use the same information to join every week!\nClick Here to Register Now \nAfter registering\, you will receive a confirmation email containing information about joining the meeting. \nIf you have questions\, please email Margaret Moore at margaret.moore@5mr.c80.myftpupload.com URL:https://umdf.org/event/young-adult-virtual-happy-hour-ages-16-35-2-2-2-2021-01-22-2-3/2024-07-19/ CATEGORIES:Support Meeting ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20240712T200000 DTEND;TZID=America/New_York:20240712T210000 DTSTAMP:20260423T123344 CREATED:20230622T182147Z LAST-MODIFIED:20230622T182745Z UID:10002062-1720814400-1720818000@umdf.org SUMMARY:Teen and Young Adult Virtual Meet-Up Ages 16-35 DESCRIPTION:UMDF Teen/Young Adult \n“Virtual Meet-Up” \nTeens and Young Adults Age 16-35 \nEvery Friday!\n8:00pm ET \nJoin us EVERY Friday for a VIRTUAL Meet-Up! \nJoin us for this “Virtual Meet-Up”! It is tough being stuck at home\, but you are not alone. Let’s get together\, share coping tips and have some FUN! \nUMDF Support Ambassadors\, Kristi Dellinger and Devin Shuman will lead these calls.\nSee you on Friday! \nRegister in advance for this meeting:\nIf you registered last week\, you can use the same information to join every week!\nClick Here to Register Now \nAfter registering\, you will receive a confirmation email containing information about joining the meeting. \nIf you have questions\, please email Margaret Moore at margaret.moore@5mr.c80.myftpupload.com URL:https://umdf.org/event/young-adult-virtual-happy-hour-ages-16-35-2-2-2-2021-01-22-2-3/2024-07-12/ CATEGORIES:Support Meeting ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20240708T200000 DTEND;TZID=America/New_York:20240708T210000 DTSTAMP:20260423T123344 CREATED:20240109T033238Z LAST-MODIFIED:20240109T033329Z UID:10002857-1720468800-1720472400@umdf.org SUMMARY:LHON DC-Area Connect DESCRIPTION:This call is for those living in the DC-Area with an interest in LHON. Consider joining the call and sharing your experiences with others in a similar situation. Reach out to Lissa Poincenot at lhonpoince@aol.com with any questions. \nThere‘s also a Facebook group for those in the DC-Area located at this link: https://www.facebook.com/groups/243446586122096 \nJoin Details:\nOne option is to use Internet Audio to call at no charge at: https://umdf.zoom.us/j/95371313871 \nMeeting ID: 953 7131 3871 \nOr if your phone plan includes Unlimited Minutes\, then here are Toll Charge numbers to one-click call:\n+16699006833\,\,95371313871#\n+16468769923\,\,95371313871# URL:https://umdf.org/event/lhon-dc-area-connect/2024-07-08/ CATEGORIES:LHON,Support Meeting END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20240707T200000 DTEND;TZID=America/New_York:20240707T210000 DTSTAMP:20260423T123344 CREATED:20250109T015842Z LAST-MODIFIED:20250129T212652Z UID:10003737-1720382400-1720386000@umdf.org SUMMARY:LHON Live! Monthly Call DESCRIPTION:NOTE: Unless specific to a geographic location – all LHON virtual meetings will be set in Eastern Time. \nThis call is for everyone interested in LHON…those affected\, carriers\, or sighted supporters…all are welcome.  You can speak up and share your thoughts\, or just listen to what others have to say…It’s your call!  Hosts Jessica Loomer and Andy Marks facilitate this call. \nRecordings from prior LHON Live! calls are located at this link: https://www.umdf.org/types/lhon/ \nReach out to Jessica Loomer at jessica.loomer@gmail.com or Andy Marks at marks.andy.c@gmail.com with any questions. \nJoin Details:\nOne option is to use Internet Audio to call at no charge at: https://umdf.zoom.us/j/95371313871\nMeeting ID: 953 7131 3871 \nOr if your phone plan includes Unlimited Minutes\, then here are Toll Charge numbers to one-click call: \n+13017158592\,\,95371313871# US\n+13126266799\,\,95371313871# US\nCanada: +16475580588\,\,95371313871#\nAustralia: +61280152088\,\,95371313871#\nUK: +442034815240\,\,95371313871# \nFor callers in other countries\, find your local number here: https://zoom.us/u/aYbvpoNU9\nMeeting ID: 953 7131 3871 \nClick Here for Previous LHON Live! Recordings \n  URL:https://umdf.org/event/lhon-live-monthly-call-2-2-2-3/2024-07-07/ CATEGORIES:LHON,Support Meeting ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20240705T200000 DTEND;TZID=America/New_York:20240705T210000 DTSTAMP:20260423T123344 CREATED:20230622T182147Z LAST-MODIFIED:20230622T182745Z UID:10002061-1720209600-1720213200@umdf.org SUMMARY:Teen and Young Adult Virtual Meet-Up Ages 16-35 DESCRIPTION:UMDF Teen/Young Adult \n“Virtual Meet-Up” \nTeens and Young Adults Age 16-35 \nEvery Friday!\n8:00pm ET \nJoin us EVERY Friday for a VIRTUAL Meet-Up! \nJoin us for this “Virtual Meet-Up”! It is tough being stuck at home\, but you are not alone. Let’s get together\, share coping tips and have some FUN! \nUMDF Support Ambassadors\, Kristi Dellinger and Devin Shuman will lead these calls.\nSee you on Friday! \nRegister in advance for this meeting:\nIf you registered last week\, you can use the same information to join every week!\nClick Here to Register Now \nAfter registering\, you will receive a confirmation email containing information about joining the meeting. \nIf you have questions\, please email Margaret Moore at margaret.moore@5mr.c80.myftpupload.com URL:https://umdf.org/event/young-adult-virtual-happy-hour-ages-16-35-2-2-2-2021-01-22-2-3/2024-07-05/ CATEGORIES:Support Meeting ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20240704T200000 DTEND;TZID=America/New_York:20240704T210000 DTSTAMP:20260423T123344 CREATED:20231019T142537Z LAST-MODIFIED:20251209T192747Z UID:10004069-1720123200-1720126800@umdf.org SUMMARY:Adult Virtual Support Meeting DESCRIPTION:Adult Virtual Support Meeting \nHello Adults impacted by Mitochondrial Disease! Please join us for an Adult Virtual Support Meeting. \nWe will get to know each other\, share resources\, and build community! \nJoin us for a VIRTUAL MEETING!\nThe FIRST Thursday of every month!\n8:00pm-9:00pm ET\nRegister HERE \nAfter registering\, you will receive a confirmation email containing information about joining the meeting. \nFor questions\, please email Margaret Moore at: margaret.moore@5mr.c80.myftpupload.com \nTHANK YOU TO OUR SPONSORS \nEdith L. Trees Charitable Trust \nAstellas \nJack Edwards Family Impact Fund \n  \n  URL:https://umdf.org/event/adult-virtual-support-meetingsep2022-2-2/2024-07-04/ CATEGORIES:Support Meeting ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20240701T100000 DTEND;TZID=America/New_York:20240701T110000 DTSTAMP:20260423T123344 CREATED:20220301T170012Z LAST-MODIFIED:20220923T194001Z UID:10003828-1719828000-1719831600@umdf.org SUMMARY:California Virtual Support Group Meeting DESCRIPTION:UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips\, share your story and connect with others. We hope you will attend and see that you are not alone. \nMonday\, March 7 • 10:00pm – 11:00am Pacific \nLearn more & register here. \nRegistration is required\, and you will receive a confirmation email with information to join the meeting. If you have any questions\, contact Margaret Moore at margaret.moore@5mr.c80.myftpupload.com or 412-354-1553. \nVisit the UMDF Event Calendar for all updates and upcoming events here. \nSpecial Thanks to our Sponsors\nEdith L. Trees Charitable Trust • Astellas • Jack Edwards Family Impact Fund URL:https://umdf.org/event/california-virtual-support-group-meeting/2024-07-01/ CATEGORIES:Pacific,Support Meeting ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20240628T200000 DTEND;TZID=America/New_York:20240628T210000 DTSTAMP:20260423T123344 CREATED:20230622T182147Z LAST-MODIFIED:20230622T182745Z UID:10002060-1719604800-1719608400@umdf.org SUMMARY:Teen and Young Adult Virtual Meet-Up Ages 16-35 DESCRIPTION:UMDF Teen/Young Adult \n“Virtual Meet-Up” \nTeens and Young Adults Age 16-35 \nEvery Friday!\n8:00pm ET \nJoin us EVERY Friday for a VIRTUAL Meet-Up! \nJoin us for this “Virtual Meet-Up”! It is tough being stuck at home\, but you are not alone. Let’s get together\, share coping tips and have some FUN! \nUMDF Support Ambassadors\, Kristi Dellinger and Devin Shuman will lead these calls.\nSee you on Friday! \nRegister in advance for this meeting:\nIf you registered last week\, you can use the same information to join every week!\nClick Here to Register Now \nAfter registering\, you will receive a confirmation email containing information about joining the meeting. \nIf you have questions\, please email Margaret Moore at margaret.moore@5mr.c80.myftpupload.com URL:https://umdf.org/event/young-adult-virtual-happy-hour-ages-16-35-2-2-2-2021-01-22-2-3/2024-06-28/ CATEGORIES:Support Meeting ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20240627T160000 DTEND;TZID=America/New_York:20240627T173000 DTSTAMP:20260423T123344 CREATED:20240619T022354Z LAST-MODIFIED:20240619T022355Z UID:10002940-1719504000-1719509400@umdf.org SUMMARY:UMDF Ask the Mito Doc Webcast Series – UMDF Mito Med 2024 Ask the Mito Doc Session - Virtual Option DESCRIPTION:The United Mitochondrial Disease Foundation is pleased to offer the Ask the Mito Doc Webcast Series on a monthly basis to keep our patients and families connected to the mitochondrial medical community.  Each month\, we will highlight a specific topic with a short presentation and allow 15-20 minutes for question and answer time with the clinicians and guest speakers. \n\nJoin us on June 27\, 2024\nat 1:00pm Pacific/3:00pm Central/4:00pm Eastern \nClick Here to Register \nAgenda \n\nUMDF Mitochondrial Medicine 2024\nAsk the Mito Doc Panel Session – Virtual Option\nSpeakers:\nTBD \n  \n\n\nWe invite you to submit your questions for the Ask the Mito Doc webcast in advance.  We will take as many questions as possible before\, during and after the webinar.  Question and Answer Protocol – Most questions pertinent to the monthly topic are typically addressed during the presentation(s).  Please note that not all questions can be answered through this forum.  If you submit a question and do not receive a response\, please do not hesitate to contact us at margaret.moore@5mr.c80.myftpupload.com. \nClick Here to Submit Your Question! \nWe hope you can join us on June 27\, 2024.  Registration is required.  After registering\, you will receive a confirmation email with Zoom credentials.  \nIf you are new to using ZOOM\, we suggest that you log in early on your computer or the device you plan to use.  Feel free to log in to the meeting link today.  It is so important that you do this in advance as we may not be able to assist you once the webcast begins.  If you have any questions\, contact Margaret Moore at margaret.moore@5mr.c80.myftpupload.com or 412-744-1061\, ext 105. \nWe are committed to providing needed support for our patient community.  \nCall our support line at 1-888-900-MITO to speak with a member of our patient services team.\nAlways remember\, we are here to help you and your family through your journey! \nSpecial Thanks to \nEdith L. Trees Charitable Trust\n  \n \n  URL:https://umdf.org/event/umdf-ask-the-mito-doc-webcast-series-mitomed2024askmitodoc-2/ CATEGORIES:Ask the Mito Doc,Education ORGANIZER;CN="Kara Strittmatter":MAILTO:kara@umdf.org END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20240626 DTEND;VALUE=DATE:20240630 DTSTAMP:20260423T123344 CREATED:20230814T193350Z LAST-MODIFIED:20240122T231529Z UID:10002331-1719360000-1719705599@umdf.org SUMMARY:UMDF Mitochondrial Medicine 2024 in Cleveland\, Ohio DESCRIPTION:Save the DATE to join us June 26-29\, 2024\nTo register and learn more\, visit umdfconference.org for updates\nHilton Downtown Cleveland\nCall for Abstracts will open in December 2023.\n2024 Registration will open in February 1\, 2024. URL:https://umdf.org/event/umdf-mitochondrial-medicine-2024-cleveland/ LOCATION:Hilton Downtown Cleveland\, 100 Lakeside Ave E\, Cleveland\, OH 44114\, OH\, 44114\, United States CATEGORIES:Education,Scientific Meeting,Support Meeting ORGANIZER;CN="Kara Strittmatter":MAILTO:kara@umdf.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20240621T200000 DTEND;TZID=America/New_York:20240621T210000 DTSTAMP:20260423T123344 CREATED:20230622T182147Z LAST-MODIFIED:20230622T182745Z UID:10002059-1719000000-1719003600@umdf.org SUMMARY:Teen and Young Adult Virtual Meet-Up Ages 16-35 DESCRIPTION:UMDF Teen/Young Adult \n“Virtual Meet-Up” \nTeens and Young Adults Age 16-35 \nEvery Friday!\n8:00pm ET \nJoin us EVERY Friday for a VIRTUAL Meet-Up! \nJoin us for this “Virtual Meet-Up”! It is tough being stuck at home\, but you are not alone. Let’s get together\, share coping tips and have some FUN! \nUMDF Support Ambassadors\, Kristi Dellinger and Devin Shuman will lead these calls.\nSee you on Friday! \nRegister in advance for this meeting:\nIf you registered last week\, you can use the same information to join every week!\nClick Here to Register Now \nAfter registering\, you will receive a confirmation email containing information about joining the meeting. \nIf you have questions\, please email Margaret Moore at margaret.moore@5mr.c80.myftpupload.com URL:https://umdf.org/event/young-adult-virtual-happy-hour-ages-16-35-2-2-2-2021-01-22-2-3/2024-06-21/ CATEGORIES:Support Meeting ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20240615T100000 DTEND;TZID=America/New_York:20240615T120000 DTSTAMP:20260423T123344 CREATED:20240111T130250Z LAST-MODIFIED:20250206T185233Z UID:10002958-1718445600-1718452800@umdf.org SUMMARY:Northeast PA Support Meeting DESCRIPTION:  \nSupport Meeting- Northeast PA \nThird Saturday of each Month- In-Person \n10:00pm – 12:00pm Eastern\nSt. Luke’s Hospital\nPriscilla Payne Hurd Education Room\nRoom 104\n801 Ostrum Street\nBethlehem\, PA 18015\n \n  \nYou are not alone. Join us to share coping tips and connect with others. \nWe will meet the 3rd Saturday of each month! \n1:00pm – 3:00pm \nFor questions\, please contact Grace Robinson or Janelle Frank\, the Support Group Leaders:\ngracerobinson13@gmail.com or janelle.frank13@gmail.com URL:https://umdf.org/event/support-group-meeting-nepa-2-2021-01-16-2021-02-20-2-2/2024-06-15/ CATEGORIES:Northeast ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20240614T200000 DTEND;TZID=America/New_York:20240614T210000 DTSTAMP:20260423T123344 CREATED:20230622T182147Z LAST-MODIFIED:20230622T182745Z UID:10002058-1718395200-1718398800@umdf.org SUMMARY:Teen and Young Adult Virtual Meet-Up Ages 16-35 DESCRIPTION:UMDF Teen/Young Adult \n“Virtual Meet-Up” \nTeens and Young Adults Age 16-35 \nEvery Friday!\n8:00pm ET \nJoin us EVERY Friday for a VIRTUAL Meet-Up! \nJoin us for this “Virtual Meet-Up”! It is tough being stuck at home\, but you are not alone. Let’s get together\, share coping tips and have some FUN! \nUMDF Support Ambassadors\, Kristi Dellinger and Devin Shuman will lead these calls.\nSee you on Friday! \nRegister in advance for this meeting:\nIf you registered last week\, you can use the same information to join every week!\nClick Here to Register Now \nAfter registering\, you will receive a confirmation email containing information about joining the meeting. \nIf you have questions\, please email Margaret Moore at margaret.moore@5mr.c80.myftpupload.com URL:https://umdf.org/event/young-adult-virtual-happy-hour-ages-16-35-2-2-2-2021-01-22-2-3/2024-06-14/ CATEGORIES:Support Meeting ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20240607T200000 DTEND;TZID=America/New_York:20240607T210000 DTSTAMP:20260423T123344 CREATED:20250109T015842Z LAST-MODIFIED:20250129T212652Z UID:10003736-1717790400-1717794000@umdf.org SUMMARY:LHON Live! Monthly Call DESCRIPTION:NOTE: Unless specific to a geographic location – all LHON virtual meetings will be set in Eastern Time. \nThis call is for everyone interested in LHON…those affected\, carriers\, or sighted supporters…all are welcome.  You can speak up and share your thoughts\, or just listen to what others have to say…It’s your call!  Hosts Jessica Loomer and Andy Marks facilitate this call. \nRecordings from prior LHON Live! calls are located at this link: https://www.umdf.org/types/lhon/ \nReach out to Jessica Loomer at jessica.loomer@gmail.com or Andy Marks at marks.andy.c@gmail.com with any questions. \nJoin Details:\nOne option is to use Internet Audio to call at no charge at: https://umdf.zoom.us/j/95371313871\nMeeting ID: 953 7131 3871 \nOr if your phone plan includes Unlimited Minutes\, then here are Toll Charge numbers to one-click call: \n+13017158592\,\,95371313871# US\n+13126266799\,\,95371313871# US\nCanada: +16475580588\,\,95371313871#\nAustralia: +61280152088\,\,95371313871#\nUK: +442034815240\,\,95371313871# \nFor callers in other countries\, find your local number here: https://zoom.us/u/aYbvpoNU9\nMeeting ID: 953 7131 3871 \nClick Here for Previous LHON Live! Recordings \n  URL:https://umdf.org/event/lhon-live-monthly-call-2-2-2-3/2024-06-07/ CATEGORIES:LHON,Support Meeting ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20240607T200000 DTEND;TZID=America/New_York:20240607T210000 DTSTAMP:20260423T123344 CREATED:20230622T182147Z LAST-MODIFIED:20230622T182745Z UID:10002057-1717790400-1717794000@umdf.org SUMMARY:Teen and Young Adult Virtual Meet-Up Ages 16-35 DESCRIPTION:UMDF Teen/Young Adult \n“Virtual Meet-Up” \nTeens and Young Adults Age 16-35 \nEvery Friday!\n8:00pm ET \nJoin us EVERY Friday for a VIRTUAL Meet-Up! \nJoin us for this “Virtual Meet-Up”! It is tough being stuck at home\, but you are not alone. Let’s get together\, share coping tips and have some FUN! \nUMDF Support Ambassadors\, Kristi Dellinger and Devin Shuman will lead these calls.\nSee you on Friday! \nRegister in advance for this meeting:\nIf you registered last week\, you can use the same information to join every week!\nClick Here to Register Now \nAfter registering\, you will receive a confirmation email containing information about joining the meeting. \nIf you have questions\, please email Margaret Moore at margaret.moore@5mr.c80.myftpupload.com URL:https://umdf.org/event/young-adult-virtual-happy-hour-ages-16-35-2-2-2-2021-01-22-2-3/2024-06-07/ CATEGORIES:Support Meeting ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20240606T200000 DTEND;TZID=America/New_York:20240606T210000 DTSTAMP:20260423T123344 CREATED:20231019T142537Z LAST-MODIFIED:20251209T192747Z UID:10002412-1717704000-1717707600@umdf.org SUMMARY:Adult Virtual Support Meeting DESCRIPTION:Adult Virtual Support Meeting \nHello Adults impacted by Mitochondrial Disease! Please join us for an Adult Virtual Support Meeting. \nWe will get to know each other\, share resources\, and build community! \nJoin us for a VIRTUAL MEETING!\nThe FIRST Thursday of every month!\n8:00pm-9:00pm ET\nRegister HERE \nAfter registering\, you will receive a confirmation email containing information about joining the meeting. \nFor questions\, please email Margaret Moore at: margaret.moore@5mr.c80.myftpupload.com \nTHANK YOU TO OUR SPONSORS \nEdith L. Trees Charitable Trust \nAstellas \nJack Edwards Family Impact Fund \n  \n  URL:https://umdf.org/event/adult-virtual-support-meetingsep2022-2-2/2024-06-06/ CATEGORIES:Support Meeting ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20240603T100000 DTEND;TZID=America/New_York:20240603T110000 DTSTAMP:20260423T123344 CREATED:20220301T170012Z LAST-MODIFIED:20220923T194001Z UID:10003827-1717408800-1717412400@umdf.org SUMMARY:California Virtual Support Group Meeting DESCRIPTION:UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips\, share your story and connect with others. We hope you will attend and see that you are not alone. \nMonday\, March 7 • 10:00pm – 11:00am Pacific \nLearn more & register here. \nRegistration is required\, and you will receive a confirmation email with information to join the meeting. If you have any questions\, contact Margaret Moore at margaret.moore@5mr.c80.myftpupload.com or 412-354-1553. \nVisit the UMDF Event Calendar for all updates and upcoming events here. \nSpecial Thanks to our Sponsors\nEdith L. Trees Charitable Trust • Astellas • Jack Edwards Family Impact Fund URL:https://umdf.org/event/california-virtual-support-group-meeting/2024-06-03/ CATEGORIES:Pacific,Support Meeting ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20240531T200000 DTEND;TZID=America/New_York:20240531T210000 DTSTAMP:20260423T123344 CREATED:20230622T182147Z LAST-MODIFIED:20230622T182745Z UID:10002056-1717185600-1717189200@umdf.org SUMMARY:Teen and Young Adult Virtual Meet-Up Ages 16-35 DESCRIPTION:UMDF Teen/Young Adult \n“Virtual Meet-Up” \nTeens and Young Adults Age 16-35 \nEvery Friday!\n8:00pm ET \nJoin us EVERY Friday for a VIRTUAL Meet-Up! \nJoin us for this “Virtual Meet-Up”! It is tough being stuck at home\, but you are not alone. Let’s get together\, share coping tips and have some FUN! \nUMDF Support Ambassadors\, Kristi Dellinger and Devin Shuman will lead these calls.\nSee you on Friday! \nRegister in advance for this meeting:\nIf you registered last week\, you can use the same information to join every week!\nClick Here to Register Now \nAfter registering\, you will receive a confirmation email containing information about joining the meeting. \nIf you have questions\, please email Margaret Moore at margaret.moore@5mr.c80.myftpupload.com URL:https://umdf.org/event/young-adult-virtual-happy-hour-ages-16-35-2-2-2-2021-01-22-2-3/2024-05-31/ CATEGORIES:Support Meeting ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20240529T190000 DTEND;TZID=America/New_York:20240529T200000 DTSTAMP:20260423T123344 CREATED:20240122T224406Z LAST-MODIFIED:20240122T230204Z UID:10002939-1717009200-1717012800@umdf.org SUMMARY:UMDF Ask the Mito Doc Webcast Series – Mitochondrial Disease Primer DESCRIPTION:The United Mitochondrial Disease Foundation is pleased to offer the Ask the Mito Doc Webcast Series on a monthly basis to keep our patients and families connected to the mitochondrial medical community.  Each month\, we will highlight a specific topic with a short presentation and allow 15-20 minutes for question and answer time with the clinicians and guest speakers. \n\nJoin us on May 29\, 2024\nat 4:00pm Pacific/6:00pm Central/7:00pm Eastern \nClick Here to Register \nAgenda \n\nMitochondrial Disease Primer\nSpeaker:\nMelissa Walker\, MD\, PhD\, Massachusetts General Hospital\, Boston\, MA \n  \n\n\nWe invite you to submit your questions for the Ask the Mito Doc webcast in advance.  We will take as many questions as possible before\, during and after the webinar.  Question and Answer Protocol – Most questions pertinent to the monthly topic are typically addressed during the presentation(s).  Please note that not all questions can be answered through this forum.  If you submit a question and do not receive a response\, please do not hesitate to contact us at margaret.moore@5mr.c80.myftpupload.com. \nClick Here to Submit Your Question! \nWe hope you can join us on May 29\, 2024.  Registration is required.  After registering\, you will receive a confirmation email with Zoom credentials.  \nIf you are new to using ZOOM\, we suggest that you log in early on your computer or the device you plan to use.  Feel free to log in to the meeting link today.  It is so important that you do this in advance as we may not be able to assist you once the webcast begins.  If you have any questions\, contact Margaret Moore at margaret.moore@5mr.c80.myftpupload.com or 412-744-1061\, ext 105. \nWe are committed to providing needed support for our patient community.  \nCall our support line at 1-888-900-MITO to speak with a member of our patient services team.\nAlways remember\, we are here to help you and your family through your journey! \nSpecial Thanks to \nEdith L. Trees Charitable Trust\n  \n \n  URL:https://umdf.org/event/umdf-ask-the-mito-doc-webcast-series-mitoprimer2024/ CATEGORIES:Ask the Mito Doc,Education ORGANIZER;CN="Kara Strittmatter":MAILTO:kara@umdf.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20240524T200000 DTEND;TZID=America/New_York:20240524T210000 DTSTAMP:20260423T123344 CREATED:20230622T182147Z LAST-MODIFIED:20230622T182745Z UID:10002055-1716580800-1716584400@umdf.org SUMMARY:Teen and Young Adult Virtual Meet-Up Ages 16-35 DESCRIPTION:UMDF Teen/Young Adult \n“Virtual Meet-Up” \nTeens and Young Adults Age 16-35 \nEvery Friday!\n8:00pm ET \nJoin us EVERY Friday for a VIRTUAL Meet-Up! \nJoin us for this “Virtual Meet-Up”! It is tough being stuck at home\, but you are not alone. Let’s get together\, share coping tips and have some FUN! \nUMDF Support Ambassadors\, Kristi Dellinger and Devin Shuman will lead these calls.\nSee you on Friday! \nRegister in advance for this meeting:\nIf you registered last week\, you can use the same information to join every week!\nClick Here to Register Now \nAfter registering\, you will receive a confirmation email containing information about joining the meeting. \nIf you have questions\, please email Margaret Moore at margaret.moore@5mr.c80.myftpupload.com URL:https://umdf.org/event/young-adult-virtual-happy-hour-ages-16-35-2-2-2-2021-01-22-2-3/2024-05-24/ CATEGORIES:Support Meeting ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/Chicago:20240523T190000 DTEND;TZID=America/Chicago:20240523T200000 DTSTAMP:20260423T123344 CREATED:20230118T181306Z LAST-MODIFIED:20231120T211129Z UID:10001382-1716490800-1716494400@umdf.org SUMMARY:Central Region Virtual Support Meeting DESCRIPTION:Central Region Virtual Support Meeting \nUMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips\, share your story and connect with others. We hope you will attend and see that you are not alone. \nThursday\, January 26 • 7:00pm – 8:00pm Central \nLearn more & register here. \nRegistration is required\, and you will receive a confirmation email with information to join the meeting. If you have any questions\, contact Margaret Moore at margaret.moore@5mr.c80.myftpupload.com or 412-744-1061 Ext 105. \nVisit the UMDF Event Calendar for all updates and upcoming events here.  \nSpecial Thanks to our Sponsors\nEdith L. Trees Charitable Trust • Jack Edwards Family Impact Fund URL:https://umdf.org/event/central-region-virtual-support-meeting/2024-05-23/ END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20240518T100000 DTEND;TZID=America/New_York:20240518T120000 DTSTAMP:20260423T123344 CREATED:20240111T130250Z LAST-MODIFIED:20250206T185233Z UID:10002957-1716026400-1716033600@umdf.org SUMMARY:Northeast PA Support Meeting DESCRIPTION:  \nSupport Meeting- Northeast PA \nThird Saturday of each Month- In-Person \n10:00pm – 12:00pm Eastern\nSt. Luke’s Hospital\nPriscilla Payne Hurd Education Room\nRoom 104\n801 Ostrum Street\nBethlehem\, PA 18015\n \n  \nYou are not alone. Join us to share coping tips and connect with others. \nWe will meet the 3rd Saturday of each month! \n1:00pm – 3:00pm \nFor questions\, please contact Grace Robinson or Janelle Frank\, the Support Group Leaders:\ngracerobinson13@gmail.com or janelle.frank13@gmail.com URL:https://umdf.org/event/support-group-meeting-nepa-2-2021-01-16-2021-02-20-2-2/2024-05-18/ CATEGORIES:Northeast ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20240517T200000 DTEND;TZID=America/New_York:20240517T210000 DTSTAMP:20260423T123344 CREATED:20230622T182147Z LAST-MODIFIED:20230622T182745Z UID:10002054-1715976000-1715979600@umdf.org SUMMARY:Teen and Young Adult Virtual Meet-Up Ages 16-35 DESCRIPTION:UMDF Teen/Young Adult \n“Virtual Meet-Up” \nTeens and Young Adults Age 16-35 \nEvery Friday!\n8:00pm ET \nJoin us EVERY Friday for a VIRTUAL Meet-Up! \nJoin us for this “Virtual Meet-Up”! It is tough being stuck at home\, but you are not alone. Let’s get together\, share coping tips and have some FUN! \nUMDF Support Ambassadors\, Kristi Dellinger and Devin Shuman will lead these calls.\nSee you on Friday! \nRegister in advance for this meeting:\nIf you registered last week\, you can use the same information to join every week!\nClick Here to Register Now \nAfter registering\, you will receive a confirmation email containing information about joining the meeting. \nIf you have questions\, please email Margaret Moore at margaret.moore@5mr.c80.myftpupload.com URL:https://umdf.org/event/young-adult-virtual-happy-hour-ages-16-35-2-2-2-2021-01-22-2-3/2024-05-17/ CATEGORIES:Support Meeting ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20240510T200000 DTEND;TZID=America/New_York:20240510T210000 DTSTAMP:20260423T123344 CREATED:20230622T182147Z LAST-MODIFIED:20230622T182745Z UID:10002053-1715371200-1715374800@umdf.org SUMMARY:Teen and Young Adult Virtual Meet-Up Ages 16-35 DESCRIPTION:UMDF Teen/Young Adult \n“Virtual Meet-Up” \nTeens and Young Adults Age 16-35 \nEvery Friday!\n8:00pm ET \nJoin us EVERY Friday for a VIRTUAL Meet-Up! \nJoin us for this “Virtual Meet-Up”! It is tough being stuck at home\, but you are not alone. Let’s get together\, share coping tips and have some FUN! \nUMDF Support Ambassadors\, Kristi Dellinger and Devin Shuman will lead these calls.\nSee you on Friday! \nRegister in advance for this meeting:\nIf you registered last week\, you can use the same information to join every week!\nClick Here to Register Now \nAfter registering\, you will receive a confirmation email containing information about joining the meeting. \nIf you have questions\, please email Margaret Moore at margaret.moore@5mr.c80.myftpupload.com URL:https://umdf.org/event/young-adult-virtual-happy-hour-ages-16-35-2-2-2-2021-01-22-2-3/2024-05-10/ CATEGORIES:Support Meeting ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20240507T200000 DTEND;TZID=America/New_York:20240507T210000 DTSTAMP:20260423T123344 CREATED:20250109T015842Z LAST-MODIFIED:20250129T212652Z UID:10003735-1715112000-1715115600@umdf.org SUMMARY:LHON Live! Monthly Call DESCRIPTION:NOTE: Unless specific to a geographic location – all LHON virtual meetings will be set in Eastern Time. \nThis call is for everyone interested in LHON…those affected\, carriers\, or sighted supporters…all are welcome.  You can speak up and share your thoughts\, or just listen to what others have to say…It’s your call!  Hosts Jessica Loomer and Andy Marks facilitate this call. \nRecordings from prior LHON Live! calls are located at this link: https://www.umdf.org/types/lhon/ \nReach out to Jessica Loomer at jessica.loomer@gmail.com or Andy Marks at marks.andy.c@gmail.com with any questions. \nJoin Details:\nOne option is to use Internet Audio to call at no charge at: https://umdf.zoom.us/j/95371313871\nMeeting ID: 953 7131 3871 \nOr if your phone plan includes Unlimited Minutes\, then here are Toll Charge numbers to one-click call: \n+13017158592\,\,95371313871# US\n+13126266799\,\,95371313871# US\nCanada: +16475580588\,\,95371313871#\nAustralia: +61280152088\,\,95371313871#\nUK: +442034815240\,\,95371313871# \nFor callers in other countries\, find your local number here: https://zoom.us/u/aYbvpoNU9\nMeeting ID: 953 7131 3871 \nClick Here for Previous LHON Live! Recordings \n  URL:https://umdf.org/event/lhon-live-monthly-call-2-2-2-3/2024-05-07/ CATEGORIES:LHON,Support Meeting ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20240506T100000 DTEND;TZID=America/New_York:20240506T110000 DTSTAMP:20260423T123344 CREATED:20220301T170012Z LAST-MODIFIED:20220923T194001Z UID:10003826-1714989600-1714993200@umdf.org SUMMARY:California Virtual Support Group Meeting DESCRIPTION:UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips\, share your story and connect with others. We hope you will attend and see that you are not alone. \nMonday\, March 7 • 10:00pm – 11:00am Pacific \nLearn more & register here. \nRegistration is required\, and you will receive a confirmation email with information to join the meeting. If you have any questions\, contact Margaret Moore at margaret.moore@5mr.c80.myftpupload.com or 412-354-1553. \nVisit the UMDF Event Calendar for all updates and upcoming events here. \nSpecial Thanks to our Sponsors\nEdith L. Trees Charitable Trust • Astellas • Jack Edwards Family Impact Fund URL:https://umdf.org/event/california-virtual-support-group-meeting/2024-05-06/ CATEGORIES:Pacific,Support Meeting ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20240503T200000 DTEND;TZID=America/New_York:20240503T210000 DTSTAMP:20260423T123344 CREATED:20230622T182147Z LAST-MODIFIED:20230622T182745Z UID:10002052-1714766400-1714770000@umdf.org SUMMARY:Teen and Young Adult Virtual Meet-Up Ages 16-35 DESCRIPTION:UMDF Teen/Young Adult \n“Virtual Meet-Up” \nTeens and Young Adults Age 16-35 \nEvery Friday!\n8:00pm ET \nJoin us EVERY Friday for a VIRTUAL Meet-Up! \nJoin us for this “Virtual Meet-Up”! It is tough being stuck at home\, but you are not alone. Let’s get together\, share coping tips and have some FUN! \nUMDF Support Ambassadors\, Kristi Dellinger and Devin Shuman will lead these calls.\nSee you on Friday! \nRegister in advance for this meeting:\nIf you registered last week\, you can use the same information to join every week!\nClick Here to Register Now \nAfter registering\, you will receive a confirmation email containing information about joining the meeting. \nIf you have questions\, please email Margaret Moore at margaret.moore@5mr.c80.myftpupload.com URL:https://umdf.org/event/young-adult-virtual-happy-hour-ages-16-35-2-2-2-2021-01-22-2-3/2024-05-03/ CATEGORIES:Support Meeting ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20240502T200000 DTEND;TZID=America/New_York:20240502T210000 DTSTAMP:20260423T123344 CREATED:20231019T142537Z LAST-MODIFIED:20251209T192747Z UID:10002411-1714680000-1714683600@umdf.org SUMMARY:Adult Virtual Support Meeting DESCRIPTION:Adult Virtual Support Meeting \nHello Adults impacted by Mitochondrial Disease! Please join us for an Adult Virtual Support Meeting. \nWe will get to know each other\, share resources\, and build community! \nJoin us for a VIRTUAL MEETING!\nThe FIRST Thursday of every month!\n8:00pm-9:00pm ET\nRegister HERE \nAfter registering\, you will receive a confirmation email containing information about joining the meeting. \nFor questions\, please email Margaret Moore at: margaret.moore@5mr.c80.myftpupload.com \nTHANK YOU TO OUR SPONSORS \nEdith L. Trees Charitable Trust \nAstellas \nJack Edwards Family Impact Fund \n  \n  URL:https://umdf.org/event/adult-virtual-support-meetingsep2022-2-2/2024-05-02/ CATEGORIES:Support Meeting ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20240430T190000 DTEND;TZID=America/New_York:20240430T200000 DTSTAMP:20260423T123344 CREATED:20240116T142229Z LAST-MODIFIED:20240116T142244Z UID:10002875-1714503600-1714507200@umdf.org SUMMARY:UMDF Ask the Mito Doc Webcast Series – MELAS 101 DESCRIPTION:The United Mitochondrial Disease Foundation is pleased to offer the Ask the Mito Doc Webcast Series on a monthly basis to keep our patients and families connected to the mitochondrial medical community.  Each month\, we will highlight a specific topic with a short presentation and allow 15-20 minutes for question and answer time with the clinicians and guest speakers. \n\nJoin us on April 30\, 2024\nat 4:00pm Pacific/6:00pm Central/7:00pm Eastern \nClick Here to Register \nAgenda \n\nMELAS 101\nSpeakers:\nMichio Hirano\, MD\, Columbia University\, New York\, NY\nFernando Scaglia\, MD\, Baylor College of Medicine\, Houston\, TX \n  \n\n\nWe invite you to submit your questions for the Ask the Mito Doc webcast in advance.  We will take as many questions as possible before\, during and after the webinar.  Question and Answer Protocol – Most questions pertinent to the monthly topic are typically addressed during the presentation(s).  Please note that not all questions can be answered through this forum.  If you submit a question and do not receive a response\, please do not hesitate to contact us at margaret.moore@5mr.c80.myftpupload.com. \nClick Here to Submit Your Question! \nWe hope you can join us on April 30\, 2024.  Registration is required.  After registering\, you will receive a confirmation email with Zoom credentials.  \nIf you are new to using ZOOM\, we suggest that you log in early on your computer or the device you plan to use.  Feel free to log in to the meeting link today.  It is so important that you do this in advance as we may not be able to assist you once the webcast begins.  If you have any questions\, contact Margaret Moore at margaret.moore@5mr.c80.myftpupload.com or 412-744-1061\, ext 105. \nWe are committed to providing needed support for our patient community.  \nCall our support line at 1-888-900-MITO to speak with a member of our patient services team.\nAlways remember\, we are here to help you and your family through your journey! \nSpecial Thanks to \nEdith L. Trees Charitable Trust\n  \n \n  URL:https://umdf.org/event/umdf-ask-the-mito-doc-webcast-series-melas-2/ CATEGORIES:Ask the Mito Doc,Education ORGANIZER;CN="Kara Strittmatter":MAILTO:kara@umdf.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20240426T200000 DTEND;TZID=America/New_York:20240426T210000 DTSTAMP:20260423T123344 CREATED:20230622T182147Z LAST-MODIFIED:20230622T182745Z UID:10002051-1714161600-1714165200@umdf.org SUMMARY:Teen and Young Adult Virtual Meet-Up Ages 16-35 DESCRIPTION:UMDF Teen/Young Adult \n“Virtual Meet-Up” \nTeens and Young Adults Age 16-35 \nEvery Friday!\n8:00pm ET \nJoin us EVERY Friday for a VIRTUAL Meet-Up! \nJoin us for this “Virtual Meet-Up”! It is tough being stuck at home\, but you are not alone. Let’s get together\, share coping tips and have some FUN! \nUMDF Support Ambassadors\, Kristi Dellinger and Devin Shuman will lead these calls.\nSee you on Friday! \nRegister in advance for this meeting:\nIf you registered last week\, you can use the same information to join every week!\nClick Here to Register Now \nAfter registering\, you will receive a confirmation email containing information about joining the meeting. \nIf you have questions\, please email Margaret Moore at margaret.moore@5mr.c80.myftpupload.com URL:https://umdf.org/event/young-adult-virtual-happy-hour-ages-16-35-2-2-2-2021-01-22-2-3/2024-04-26/ CATEGORIES:Support Meeting ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org END:VEVENT END:VCALENDAR