UMDF

Dads of LHON - Affected "Kids of All Ages"
2026-02-18 20:00 - 21:30 (America/New_York)
The bimonthly call for Dads of LHON-Affected “Kids of All Ages” takes place on the third Wednesday of every other month at 8:00pm Eastern/5:00pm Pacific. If you’re a dad of someone affected by LHON, consider joining the call and sharing your experiences with others in a similar situation. Hosts Tony Wright and Jim Tolve host this open-discussion format call. Reach out to Jim Tolve at jetragnar@gmail.com or Tony Wright at AWright201@gmail.com with any questions.
There’s also a Facebook group for Dads of LHON-Affected”Kids of All Ages” located at this link: https://www.facebook.com/groups/175672076390420
Join Details:
One option is to use Internet Audio to call at no charge at: https://umdf.zoom.us/j/95371313871
Meeting ID: 953 7131 3871
Or if your phone plan includes Unlimited Minutes, then here are Toll Charge numbers to one-click call:
+16699006833,,95371313871#
+16468769923,,95371313871#

Teen and Young Adult Virtual Meet-Up Ages 16-35
2026-02-20 20:00 - 21:00, 2026-02-27 20:00 - 21:00, 2026-03-06 20:00 - 21:00, 2026-03-13 20:00 - 21:00, 2026-03-20 20:00 - 21:00, 2026-03-27 20:00 - 21:00, 2026-04-03 20:00 - 21:00 (America/New_York)
UMDF Teen/Young Adult
“Virtual Meet-Up”
Teens and Young Adults Age 16-35
Every Friday!
8:00pm ET
Join us EVERY Friday for a VIRTUAL Meet-Up!
Join us for this “Virtual Meet-Up”! It is tough being stuck at home, but you are not alone. Let’s get together, share coping tips and have some FUN!
UMDF Support Ambassadors, Kristi Dellinger and Devin Shuman will lead these calls.
See you on Friday!
Register in advance for this meeting:
If you registered last week, you can use the same information to join every week!
Click Here to Register Now
After registering, you will receive a confirmation email containing information about joining the meeting.
If you have questions, please email Margaret Moore at margaret.moore@umdf.org

Northeast PA Support Meeting
2026-02-21 10:00 - 12:00, 2026-03-21 10:00 - 12:00 (America/New_York)
Support Meeting- Northeast PA
Third Saturday of each Month- In-Person
10:00pm – 12:00pm Eastern
St. Luke’s Hospital
Priscilla Payne Hurd Education Room
Room 104
801 Ostrum Street
Bethlehem, PA 18015

You are not alone. Join us to share coping tips and connect with others.
We will meet the 3rd Saturday of each month!
1:00pm – 3:00pm
For questions, please contact Grace Robinson or Janelle Frank, the Support Group Leaders:
gracerobinson13@gmail.com or janelle.frank13@gmail.com

LHON Assistive Technology
2026-02-23 20:00 - 21:30 (America/New_York)
This Zoom event is for anyone interested in discussing LHON & Assistive Technology. The event is led by Sara Nappi. Sara is affected by LHON, and she is an Assistive Technology instructor.
There is also a Facebook group: LHON Assistive Technology

To join the Zoom event, use the link below:
https://umdf.zoom.us/j/95371313871

Meeting ID: 953 7131 3871

Or join by phone with one tap mobile:
+16699006833,,95371313871#
+16468769923,,95371313871#

Canada: +16475580588,,95371313871#
Australia: +61280152088,,95371313871#
UK: +442034815240,,95371313871#
For callers in other countries, find your local number here:
https://zoom.us/u/aYbvpoNU9
Meeting ID: 953 7131 3871
Please direct message Sara Nappi with any questions, concerns or topic suggestions.

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Mindfulness with Mary Series (monthly)
2026-02-24 12:00 - 13:30, 2026-03-24 12:00 - 13:30 (America/New_York)
Please join us for a monthly Mindfulness series with UMDF Support Ambassador, Mary Canton. We will host these sessions every fourth Tuesday from 12:00pm -1:30pm ET.
You can register HERE

Central Region Virtual Support Meeting
2026-02-26 19:00 - 20:00, 2026-03-26 19:00 - 20:00 (America/Chicago)
Central Region Virtual Support Meeting
UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips, share your story and connect with others. We hope you will attend and see that you are not alone.
Fourth Thursday of each month • 7:00pm – 8:00pm Central
Learn more & register here.
Registration is required, and you will receive a confirmation email with information to join the meeting. If you have any questions, contact Margaret Moore at margaret.moore@umdf.org or 412-744-1061 Ext 105.
Visit the UMDF Event Calendar for all updates and upcoming events here.
Special Thanks to our Sponsors
Edith L. Trees Charitable Trust • Jack Edwards Family Impact Fund

California Virtual Support Group Meeting
2026-03-02 10:00 - 11:00 (America/New_York)
UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips, share your story and connect with others. We hope you will attend and see that you are not alone.
Monday, March 7 • 10:00pm – 11:00am Pacific
Learn more & register here.
Registration is required, and you will receive a confirmation email with information to join the meeting. If you have any questions, contact Margaret Moore at margaret.moore@5mr.c80.myftpupload.com or 412-354-1553.
Visit the UMDF Event Calendar for all updates and upcoming events here.
Special Thanks to our Sponsors
Edith L. Trees Charitable Trust • Astellas • Jack Edwards Family Impact Fund

California Virtual Support Group Meeting
2026-03-02 10:00 - 11:00 (America/Los_Angeles)
UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips, share your story and connect with others. We hope you will attend and see that you are not alone.
The first Monday of each month• 10:00am – 11:00am Pacific
Learn more & register here.
Registration is required, and you will receive a confirmation email with information to join the meeting. If you have any questions, contact Margaret Moore at margaret.moore@5mr.c80.myftpupload.com or 412-354-1553.
Visit the UMDF Event Calendar for all updates and upcoming events here.
Special Thanks to our Sponsors
Edith L. Trees Charitable Trust

LHON - Affected Women
2026-03-03 20:00 - 21:00 (America/New_York)
If you’re a woman with LHON vision (affected), consider joining the call and sharing your experiences with others in a similar situation. Reach out to Jessica Loomer jessica.loomer@gmail.com with any questions.
There’s also a Facebook group for LHON-Affected Women located at this link: https://www.facebook.com/groups/404650029721330
Join Details:
One option is to use Internet Audio to call at no charge at: https://umdf.zoom.us/j/95371313871
Meeting ID: 953 7131 3871
Or if your phone plan includes Unlimited Minutes, then here are Toll Charge numbers to one-click call:
+16699006833,,95371313871#
+16468769923,,95371313871#
Canada: +16475580588,,95371313871#
Australia: +61280152088,,95371313871#
UK: +442034815240,,95371313871#
For callers in other countries, find your local number here:
https://zoom.us/u/aYbvpoNU9
The Meeting ID is: 95371313871

Volunteer Interest Meeting
2026-03-04 12:00 - 13:00 (America/New_York)
Learn about all the ways that YOU can Be the Energy for the #mito community. Wherever your talents or interests lie — whether they be in support, advocacy, or fundraising toward treatments — you could be a change maker for patients and families impacted by #mitochondrialdisease. Register here: https://umdf.secure.nonprofitsoapbox.com/vol

LHON Live! Monthly Call
2026-03-04 20:00 - 21:00, 2026-04-01 20:00 - 21:00 (America/New_York)
NOTE: Unless specific to a geographic location – all LHON virtual meetings will be set in Eastern Time.
This call is for everyone interested in LHON…those affected, carriers, or sighted supporters…all are welcome. You can speak up and share your thoughts, or just listen to what others have to say…It’s your call! Hosts Jessica Loomer and Andy Marks facilitate this call.
Recordings from prior LHON Live! calls are located at this link: https://www.umdf.org/types/lhon/
Reach out to Jessica Loomer at jessica.loomer@gmail.com or Andy Marks at marks.andy.c@gmail.com with any questions.
Join Details:
One option is to use Internet Audio to call at no charge at: https://umdf.zoom.us/j/95371313871
Meeting ID: 953 7131 3871
Or if your phone plan includes Unlimited Minutes, then here are Toll Charge numbers to one-click call:
+13017158592,,95371313871# US
+13126266799,,95371313871# US
Canada: +16475580588,,95371313871#
Australia: +61280152088,,95371313871#
UK: +442034815240,,95371313871#
For callers in other countries, find your local number here: https://zoom.us/u/aYbvpoNU9
Meeting ID: 953 7131 3871
Click Here for Previous LHON Live! Recordings

Adult Virtual Support Meeting
2026-03-05 20:00 - 21:00, 2026-04-02 20:00 - 21:00 (America/New_York)
Adult Virtual Support Meeting
Hello Adults impacted by Mitochondrial Disease! Please join us for an Adult Virtual Support Meeting.
We will get to know each other, share resources, and build community!
Join us for a VIRTUAL MEETING!
The FIRST Thursday of every month!
8:00pm-9:00pm ET
Register HERE
After registering, you will receive a confirmation email containing information about joining the meeting.
For questions, please email Margaret Moore at: margaret.moore@5mr.c80.myftpupload.com
THANK YOU TO OUR SPONSORS
Edith L. Trees Charitable Trust
Astellas
Jack Edwards Family Impact Fund

UMDF Ask the Mito Doc Webcast Series – Clinical Trial Readiness and Clinical Research Pavilion
2026-03-09 12:00 - 13:00 (America/New_York)
The United Mitochondrial Disease Foundation is pleased to offer the Ask the Mito Doc Webcast Series on a monthly basis to keep our patients and families connected to the mitochondrial medical community. Each month, we will highlight a specific topic with a short presentation and allow 15-20 minutes for question and answer time with the clinicians and guest speakers. NOTE: This is a combined UMDF Bench-to-Bedside and Ask the Mito Doc Webcast

Join us on March 9, 2026
at 9:00am Pacific/10:00am Mountain/11:00am Central/12:00pm Eastern
Click Here to Register
Agenda

Clinical Trial Readiness – Mito Med Conference Clinical Research Pavilion 2025 Learnings and Prepping for 2026
NOTE: This is a combined UMDF Bench-to-Bedside and Ask the Mito Doc Webcast
Moderator: Amel Karaa, MD
Speakers:

Zuela Zolkipli Cunningham, MD, Children’s Hospital of Philadelphia
Carlo Tacconi, CEO, mHealth Technologies, Bolgna, Italy
Sabato Mellone, PhD, University of Bologna, Italy
Damiano Zanotto, PhD, Stevens Institute of Technology, Hoboken, NJ
Tony Adams, MD, Gentle Jogger
Nicole Wilson, UMDF Program Manager

We invite you to submit your questions for the Ask the Mito Doc webcast in advance. We will take as many questions as possible before, during and after the webinar. Question and Answer Protocol – Most questions pertinent to the monthly topic are typically addressed during the presentation(s). Please note that not all questions can be answered through this forum. If you submit a question and do not receive a response, please do not hesitate to contact us at margaret.moore@umdf.org.
Click Here to Submit Your Question!
We hope you can join us March 9, 2026. Registration is required. After registering, you will receive a confirmation email with Zoom credentials.
If you are new to using ZOOM, we suggest that you log in early on your computer or the device you plan to use. Feel free to log in to the meeting link today. It is so important that you do this in advance as we may not be able to assist you once the webcast begins. If you have any questions, contact Margaret Moore at margaret.moore@umdf.org or 412-744-1061, ext 105.
We are committed to providing needed support for our patient community.
Call our support line at 1-888-900-MITO to speak with a member of our patient services team.
Always remember, we are here to help you and your family through your journey!
Special Thanks to

LHON South Central Connect
2026-03-09 18:00 - 19:30 (America/New_York)
This call is for those living in the South Central region with an interest in LHON. Consider joining the call and sharing your experiences with others in a similar situation.
The South Central region includes Texas, Oklahoma, Arkansas, and Louisiana.
There’s also a Facebook group: LHON-Texas, Oklahoma, Arkansas, & Louisiana
Reach out to Donna Basse at sbasse5472@aol.com with any questions.
Join Details:
One option is to use Internet Audio to call at no charge at: https://umdf.zoom.us/j/95371313871

Meeting ID: 953 7131 3871

Or join by phone with one tap mobile:
+16699006833,,95371313871#
+16468769923,,95371313871#

More details
More details
Copy to my calendar
Copy to my calendar

LHON - Northeast Connect
2026-03-10 20:00 - 21:00 (America/New_York)
This call is for those living in the Northeast with an interest in LHON. Consider joining the call and sharing your experiences with others in a similar situation.
The Northeast includes all the New England states (Maine, Vermont, New Hampshire, Massachusetts, Connecticut, & Rhode Island), New York, New Jersey, and Pennsylvania.
There are various Facebook groups for these locations:

New England Group
New York Group
New Jersey Group
Pennsylvania Group

Reach out to Jim Tolve at jetragnar@gmail.com with any questions.
Join Details:
One option is to use Internet Audio to call at no charge at: https://umdf.zoom.us/j/95371313871
Meeting ID: 953 7131 3871
Or if your phone plan includes Unlimited Minutes, then here are Toll Charge numbers to one-click call:
+16699006833,,95371313871#
+16468769923,,95371313871#

Support Group for All
2026-03-11 12:00 - 13:00 (America/New_York)
When: The Second Wednesday of each month at 12:00 PM Eastern Time (US and Canada)
Register in advance for this meeting:
https://umdf.zoom.us/meeting/register/tZcpcumsrTsiH9w1_pPmjbc-KqRCAIrmQCKt
After registering, you will receive a confirmation email containing information about joining the meeting.

Parent and Caregiver Virtual Support Meeting
2026-03-16 20:00 - 21:00 (America/New_York)
Parent and Caregiver Virtual Support Meeting
Hello Parents and Caregivers impacted by Mitochondrial Disease! Please join us for a Parent and Caregiver Virtual Support Meeting.
We will get to know each other, share resources, and build community!
Join us for a VIRTUAL MEETING!
The THIRD Monday of every month!
8:00pm-9:00pm ET
Register HERE
After registering, you will receive a confirmation email containing information about joining the meeting.
For questions, please email Margaret Moore at: margaret.moore@umdf.org
THANK YOU TO OUR SPONSORS
Edith L. Trees Charitable Trust
Astellas
Jack Edwards Family Impact Fund

LHON - New York, New Jersey, Pennsylvania Connect
2026-03-19 19:00 - 20:00 (America/New_York)
Please Join Us!
This call for those living in New York, New Jersey, or Pennsylvania with an interest in LHON takes place quarterly on the third Thursday of the month at 7:00pm EST. Hosts Jim and Mary Tolve facilitate this call. Consider joining the call and sharing your experiences with others in a similar situation.
The following Facebook Groups are also available:

New York Group – Click here
New Jersey Group – Click here
Pennsylvania Group – Click here

Reach out to Jim Tolve at jetragnar@gmail.com with any questions.
Join Details:
One option is to use Internet Audio to call at no charge at:
https://umdf.zoom.us/j/95371313871
Meeting ID: 953 7131 3871
Or if your phone plan includes Unlimited Minutes, then here are Toll Charge numbers to one-click call:
+13017158592,,95371313871# US
+13126266799,,95371313871# US

UMDF Ask the Mito Doc Special Webcast – Updates on New TK2d Therapy Kygevvi
2026-03-20 12:00 - 13:00 (America/New_York)
The United Mitochondrial Disease Foundation is pleased to offer the Ask the Mito Doc Webcast Series on a monthly basis to keep our patients and families connected to the mitochondrial medical community. Each month, we will highlight a specific topic with a short presentation and allow 15-20 minutes for question and answer time with the clinicians and guest speakers.

Join us on March 20, 2026
at 9:00am Pacific/10:00am Mountain/11:00am Central/12:00pm Eastern
Click Here to Register
Agenda

UMDF Ask the Mito Doc Special Webcast – Updates on New TK2d Therapy Kygevvi
Speaker – Sarah Chang, PhD, Medical Strategy Lead, UCB

We invite you to submit your questions for the Ask the Mito Doc webcast in advance. We will take as many questions as possible before, during and after the webinar. Question and Answer Protocol – Most questions pertinent to the monthly topic are typically addressed during the presentation(s). Please note that not all questions can be answered through this forum. If you submit a question and do not receive a response, please do not hesitate to contact us at margaret.moore@umdf.org.
Click Here to Submit Your Question!
We hope you can join us March 20, 2026. Registration is required. After registering, you will receive a confirmation email with Zoom credentials.
If you are new to using ZOOM, we suggest that you log in early on your computer or the device you plan to use. Feel free to log in to the meeting link today. It is so important that you do this in advance as we may not be able to assist you once the webcast begins. If you have any questions, contact Margaret Moore at margaret.moore@umdf.org or 412-744-1061, ext 105.
We are committed to providing needed support for our patient community.
Call our support line at 1-888-900-MITO to speak with a member of our patient services team.
Always remember, we are here to help you and your family through your journey!
Special Thanks to
