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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250901T100000
DTEND;TZID=America/New_York:20250901T110000
DTSTAMP:20260501T092941
CREATED:20220301T170012Z
LAST-MODIFIED:20220923T194001Z
UID:10004067-1756720800-1756724400@umdf.org
SUMMARY:California Virtual Support Group Meeting
DESCRIPTION:UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips\, share your story and connect with others. We hope you will attend and see that you are not alone. \nMonday\, March 7 • 10:00pm – 11:00am Pacific \nLearn more & register here. \nRegistration is required\, and you will receive a confirmation email with information to join the meeting. If you have any questions\, contact Margaret Moore at margaret.moore@5mr.c80.myftpupload.com or 412-354-1553. \nVisit the UMDF Event Calendar for all updates and upcoming events here. \nSpecial Thanks to our Sponsors\nEdith L. Trees Charitable Trust • Astellas • Jack Edwards Family Impact Fund
URL:https://umdf.org/event/california-virtual-support-group-meeting/2025-09-01/
CATEGORIES:Pacific,Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250903T120000
DTEND;TZID=America/New_York:20250903T130000
DTSTAMP:20260501T092941
CREATED:20250225T190610Z
LAST-MODIFIED:20251107T154248Z
UID:10003766-1756900800-1756904400@umdf.org
SUMMARY:Volunteer Interest Meeting
DESCRIPTION:Learn about all the ways that YOU can Be the Energy for the #mito community. Wherever your talents or interests lie — whether they be in support\, advocacy\, or fundraising toward treatments — you could be a change maker for patients and families impacted by #mitochondrialdisease. Register here: https://umdf.secure.nonprofitsoapbox.com/vol \n 
URL:https://umdf.org/event/volunteer-interest-meeting-2025/2025-09-03/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250903T200000
DTEND;TZID=America/New_York:20250903T210000
DTSTAMP:20260501T092941
CREATED:20250227T153450Z
LAST-MODIFIED:20250313T133520Z
UID:10003789-1756929600-1756933200@umdf.org
SUMMARY:LHON Live! Monthly Call
DESCRIPTION:NOTE: Unless specific to a geographic location – all LHON virtual meetings will be set in Eastern Time. \nThis call is for everyone interested in LHON…those affected\, carriers\, or sighted supporters…all are welcome.  You can speak up and share your thoughts\, or just listen to what others have to say…It’s your call!  Hosts Jessica Loomer and Andy Marks facilitate this call. \nRecordings from prior LHON Live! calls are located at this link: https://www.umdf.org/types/lhon/ \nReach out to Jessica Loomer at jessica.loomer@gmail.com or Andy Marks at marks.andy.c@gmail.com with any questions. \nJoin Details:\nOne option is to use Internet Audio to call at no charge at: https://umdf.zoom.us/j/95371313871\nMeeting ID: 953 7131 3871 \nOr if your phone plan includes Unlimited Minutes\, then here are Toll Charge numbers to one-click call: \n+13017158592\,\,95371313871# US\n+13126266799\,\,95371313871# US\nCanada: +16475580588\,\,95371313871#\nAustralia: +61280152088\,\,95371313871#\nUK: +442034815240\,\,95371313871# \nFor callers in other countries\, find your local number here: https://zoom.us/u/aYbvpoNU9\nMeeting ID: 953 7131 3871 \nClick Here for Previous LHON Live! Recordings  \n 
URL:https://umdf.org/event/lhon-live-monthly-call/2025-09-03/
CATEGORIES:LHON,Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250904T200000
DTEND;TZID=America/New_York:20250904T210000
DTSTAMP:20260501T092941
CREATED:20231019T142537Z
LAST-MODIFIED:20251209T192747Z
UID:10002427-1757016000-1757019600@umdf.org
SUMMARY:Adult Virtual Support Meeting
DESCRIPTION:Adult Virtual Support Meeting \nHello Adults impacted by Mitochondrial Disease! Please join us for an Adult Virtual Support Meeting. \nWe will get to know each other\, share resources\, and build community! \nJoin us for a VIRTUAL MEETING!\nThe FIRST Thursday of every month!\n8:00pm-9:00pm ET\nRegister HERE \nAfter registering\, you will receive a confirmation email containing information about joining the meeting. \nFor questions\, please email Margaret Moore at: margaret.moore@5mr.c80.myftpupload.com \nTHANK YOU TO OUR SPONSORS \nEdith L. Trees Charitable Trust \nAstellas \nJack Edwards Family Impact Fund \n  \n 
URL:https://umdf.org/event/adult-virtual-support-meetingsep2022-2-2/2025-09-04/
CATEGORIES:Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250905T100000
DTEND;TZID=America/New_York:20250905T113000
DTSTAMP:20260501T092941
CREATED:20250818T160538Z
LAST-MODIFIED:20250828T182855Z
UID:10004054-1757066400-1757071800@umdf.org
SUMMARY:Mitochondrial Replacement Therapy Bench-to-Bedside Seminar
DESCRIPTION:OPEN TO ALL \nUMDF Bench-to-Bedside Seminar\nMitochondrial Replacement Therapy (MRT): Shared Experiences from the UK & Australia and Implications in the US\n​​​​​​\nFriday\, Sept. 5 at 10:00 am ET \nLast month\, researchers in the United Kingdom published two papers sharing promising results from eight births utilizing mitochondrial replacement therapy\, a fertility technique that helps prevent the transmission of mitochondrial disease to future generations. The technique involves transferring the nuclear DNA from a mother’s fertilized egg into a fertilized donor egg with healthy mitochondria\, resulting in a child who is genetically related to both parents but with a much lower risk of inheriting mitochondrial disease. The technique is currently legal to use in clinical research in the UK and Australia\, but not in the United States. \nAll — patients\, families\, clinicians\, and researchers — are welcome to join us for a special MRT-focused Bench-to-Bedside on September 5 at 10am ET featuring non-profit leaders and clinicians who have personal experience with the science and political components of MRT\, including: ​​​​​ \nModerator:\nPhilip E. Yeske\, PhD\, UMDF Science & Alliance Officer \nSpeakers/Panelists:\nSean Murray\, Mito Foundation CEO\nClare Stuart\, Mito Foundation Policy and Advocacy Manager\nClair Wright\, Lily Foundation\nMichio Hirano\, MD\, Columbia University Medical Center\nDieter Egli\, PhD\, Columbia Stem Cell Initiative\nRobert McFarland\, MA MBBS PhD MRCP MRCPH\, Director of the NHS Highly Specialised Service for Rare Mitochondrial Disorders\nMary Herbert\, PhD\, Monash Biomedicine Discovery Institute \nPlease register using the below link. Questions can be submitted before the seminar here.
URL:https://umdf.org/event/mitochondrial-replacement-therapy-bench-to-bedside-seminar/
LOCATION:https://pi.umdf.org/e/346741/ster-WN-o3vM4-f-RA-rKnCsUGizfQ/95v178/1092070774/h/-e2rUlMP2zMOXO2mEVk1FF94RTzzTzT_7wV7h0nrp6E
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250905T200000
DTEND;TZID=America/New_York:20250905T210000
DTSTAMP:20260501T092941
CREATED:20250113T183749Z
LAST-MODIFIED:20250113T183753Z
UID:10002122-1757102400-1757106000@umdf.org
SUMMARY:Teen and Young Adult Virtual Meet-Up Ages 16-35
DESCRIPTION:UMDF Teen/Young Adult \n“Virtual Meet-Up” \nTeens and Young Adults Age 16-35 \nEvery Friday!\n8:00pm ET \nJoin us EVERY Friday for a VIRTUAL Meet-Up! \nJoin us for this “Virtual Meet-Up”! It is tough being stuck at home\, but you are not alone. Let’s get together\, share coping tips and have some FUN! \nUMDF Support Ambassadors\, Kristi Dellinger and Devin Shuman will lead these calls.\nSee you on Friday! \nRegister in advance for this meeting:\nIf you registered last week\, you can use the same information to join every week!\nClick Here to Register Now \nAfter registering\, you will receive a confirmation email containing information about joining the meeting. \nIf you have questions\, please email Margaret Moore at margaret.moore@umdf.org
URL:https://umdf.org/event/young-adult-virtual-happy-hour-ages-16-35-2-2-2-2021-01-22-2-3-2/2025-09-05/
CATEGORIES:Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20250909
DTEND;VALUE=DATE:20250910
DTSTAMP:20260501T092941
CREATED:20250818T154729Z
LAST-MODIFIED:20250818T160108Z
UID:10004053-1757376000-1757462399@umdf.org
SUMMARY:TK2d Tuesday
DESCRIPTION:Join UMDF as we mark TK2d Tuesday. Thymidine kinase 2 deficiency (TK2d) is a rare genetic mitochondrial disease caused by inherited mutations in TK2\, a nuclear gene responsible for making a mitochondrial enzyme called thymidine kinase 2. These mutations reduce the amount and quality of mitochondrial DNAs inside cells. \nLearn more about TK2d at umdf.org/tk2d. \nTK2d is supported by UCB. \n \n  \n 
URL:https://umdf.org/event/tk2d-tuesday-2/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250910T120000
DTEND;TZID=America/New_York:20250910T130000
DTSTAMP:20260501T092941
CREATED:20250108T144422Z
LAST-MODIFIED:20250121T173952Z
UID:10003568-1757505600-1757509200@umdf.org
SUMMARY:Support Group for All
DESCRIPTION:When: The Second Wednesday of each month at 12:00 PM Eastern Time (US and Canada) \nRegister in advance for this meeting: \nhttps://umdf.zoom.us/meeting/register/tZcpcumsrTsiH9w1_pPmjbc-KqRCAIrmQCKt \nAfter registering\, you will receive a confirmation email containing information about joining the meeting.
URL:https://umdf.org/event/support-group-for-all/2025-09-10/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250912T200000
DTEND;TZID=America/New_York:20250912T210000
DTSTAMP:20260501T092941
CREATED:20250113T183749Z
LAST-MODIFIED:20250113T183753Z
UID:10002123-1757707200-1757710800@umdf.org
SUMMARY:Teen and Young Adult Virtual Meet-Up Ages 16-35
DESCRIPTION:UMDF Teen/Young Adult \n“Virtual Meet-Up” \nTeens and Young Adults Age 16-35 \nEvery Friday!\n8:00pm ET \nJoin us EVERY Friday for a VIRTUAL Meet-Up! \nJoin us for this “Virtual Meet-Up”! It is tough being stuck at home\, but you are not alone. Let’s get together\, share coping tips and have some FUN! \nUMDF Support Ambassadors\, Kristi Dellinger and Devin Shuman will lead these calls.\nSee you on Friday! \nRegister in advance for this meeting:\nIf you registered last week\, you can use the same information to join every week!\nClick Here to Register Now \nAfter registering\, you will receive a confirmation email containing information about joining the meeting. \nIf you have questions\, please email Margaret Moore at margaret.moore@umdf.org
URL:https://umdf.org/event/young-adult-virtual-happy-hour-ages-16-35-2-2-2-2021-01-22-2-3-2/2025-09-12/
CATEGORIES:Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20250915
DTEND;VALUE=DATE:20250922
DTSTAMP:20260501T092941
CREATED:20241028T142657Z
LAST-MODIFIED:20241028T142657Z
UID:10003243-1757894400-1758499199@umdf.org
SUMMARY:World Mitochondrial Disease Week 2025
DESCRIPTION:
URL:https://umdf.org/event/world-mitochondrial-disease-week-2025/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250915T200000
DTEND;TZID=America/New_York:20250915T210000
DTSTAMP:20260501T092941
CREATED:20240117T130219Z
LAST-MODIFIED:20260209T142232Z
UID:10003855-1757966400-1757970000@umdf.org
SUMMARY:Parent and Caregiver Virtual Support Meeting
DESCRIPTION:Parent and Caregiver Virtual Support Meeting \nHello Parents and Caregivers impacted by Mitochondrial Disease! Please join us for a Parent and Caregiver Virtual Support Meeting. \nWe will get to know each other\, share resources\, and build community! \nJoin us for a VIRTUAL MEETING!\nThe THIRD Monday of every month!\n8:00pm-9:00pm ET\nRegister HERE \nAfter registering\, you will receive a confirmation email containing information about joining the meeting. \nFor questions\, please email Margaret Moore at: margaret.moore@umdf.org \nTHANK YOU TO OUR SPONSORS \nEdith L. Trees Charitable Trust \nAstellas \nJack Edwards Family Impact Fund
URL:https://umdf.org/event/parent-and-caregiver-virtual-support-meeting/2025-09-15/
CATEGORIES:Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250916T190000
DTEND;TZID=America/New_York:20250916T200000
DTSTAMP:20260501T092941
CREATED:20250811T145139Z
LAST-MODIFIED:20250811T153901Z
UID:10004051-1758049200-1758052800@umdf.org
SUMMARY:UMDF Ask the Mito Doc Webcast Series – Seizures in Patients with Mito
DESCRIPTION:The United Mitochondrial Disease Foundation is pleased to offer the Ask the Mito Doc Webcast Series on a monthly basis to keep our patients and families connected to the mitochondrial medical community.  Each month\, we will highlight a specific topic with a short presentation and allow 15-20 minutes for question and answer time with the clinicians and guest speakers. \n\nJoin us on September 16\, 2025\nat 4:00pm Pacific/5:00pm Mountain/6:00pm Central/7:00pm Eastern \nClick Here to Register \nAgenda \n\nSeizure Management in Patients with Mitochondrial Disease\nSpeakers: \n\nRussell Saneto\, DO\, PhD\, Seattle Children’s Hospital\, Seattle\, Washington\n\n\n\nWe invite you to submit your questions for the Ask the Mito Doc webcast in advance.  We will take as many questions as possible before\, during and after the webinar.  Question and Answer Protocol – Most questions pertinent to the monthly topic are typically addressed during the presentation(s).  Please note that not all questions can be answered through this forum.  If you submit a question and do not receive a response\, please do not hesitate to contact us at margaret.moore@umdf.org.  \nClick Here to Submit Your Question! \nWe hope you can join us September 16\, 2025.  Registration is required.  After registering\, you will receive a confirmation email with Zoom credentials.  \nIf you are new to using ZOOM\, we suggest that you log in early on your computer or the device you plan to use.  Feel free to log in to the meeting link today.  It is so important that you do this in advance as we may not be able to assist you once the webcast begins.  If you have any questions\, contact Margaret Moore at margaret.moore@umdf.org or 412-744-1061\, ext 105. \nWe are committed to providing needed support for our patient community.   \nCall our support line at 1-888-900-MITO to speak with a member of our patient services team.\nAlways remember\, we are here to help you and your family through your journey! \nSpecial Thanks to \n  \n \n 
URL:https://umdf.org/event/umdf-ask-the-mito-doc-webcast-series-seizuresinmito/
CATEGORIES:Ask the Mito Doc,Education
ORGANIZER;CN="Kara Strittmatter":MAILTO:kara@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250918T150000
DTEND;TZID=America/New_York:20250918T160000
DTSTAMP:20260501T092941
CREATED:20250911T144801Z
LAST-MODIFIED:20250911T145011Z
UID:10004068-1758207600-1758211200@umdf.org
SUMMARY:Community Webinar with Saol Therapeutics to Discuss SL1009 (DCA)
DESCRIPTION:Register Here Community Webinar with Saol Therapeutics to Discuss SL1009 (DCA)\nThursday\, September 18\, 3:00 PM – 4:00 PM EDT  \nLast week\, Saol Therapeutics shared the FDA has issued a Complete Response Letter (CRL) regarding the company’s application for dichloroacetate (DCA) to treat Pyruvate Dehydrogenase Complex Deficiency (PDCD). In this CRL\, the FDA declined to approve DCA at this time and requested that Saol initiate a new clinical trial to address remaining questions. Here you will find a community statement from Saol. \nWe are deeply disappointed by this outcome and mindful of what it means for families awaiting options. Our collective organizations remain committed to advocating for timely\, patient-centered next steps\, engaging with regulators\, and keeping you informed as more details emerge. You can read our full statement here. \nAs part of that commitment\, you’re invited to a special webinar on Thursday\, September 18\, at 3pm EDT\, where you can submit questions and hear directly from Saol leadership regarding DCA\, the clinical trial\, and the path forward with the FDA. Any questions you would like to ask can be submitted on the registration page. \nHost:\nFrances Pimentel\, Hope for PDCD \nFeatured speakers include:\nDave Penake\, CEO\, Saol Therapeutics\nKyle Ashton\, PhD\, Head of Medical Affairs\, Saol Therapeutics\nSharon Hamm\, Pharm.D.\, RPH\, Chief Development Officer\, Saol Therapeutics\nBrian Nappi\, Chief Strategy Officer\, Saol Therapeutics
URL:https://umdf.org/event/community-webinar-with-saol-therapeutics-to-discuss-sl1009-dca/
CATEGORIES:Clinical Trials,Education
ORGANIZER;CN="Kara Strittmatter":MAILTO:kara@umdf.org
LOCATION:https://umdf.org/event/community-webinar-with-saol-therapeutics-to-discuss-sl1009-dca/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250918T190000
DTEND;TZID=America/New_York:20250918T200000
DTSTAMP:20260501T092941
CREATED:20210727T145309Z
LAST-MODIFIED:20210727T145309Z
UID:10001158-1758222000-1758225600@umdf.org
SUMMARY:LHON - New York\, New Jersey\, Pennsylvania Connect
DESCRIPTION:Please Join Us! \nThis call for those living in New York\, New Jersey\, or Pennsylvania with an interest in LHON takes place quarterly on the third Thursday of the month at 7:00pm EST. Hosts Jim and Mary Tolve facilitate this call. Consider joining the call and sharing your experiences with others in a similar situation. \nThe following Facebook Groups are also available: \n\nNew York Group – Click here\nNew Jersey Group – Click here\nPennsylvania Group – Click here\n\nReach out to Jim Tolve at jetragnar@gmail.com with any questions. \nJoin Details:\nOne option is to use Internet Audio to call at no charge at:\nhttps://umdf.zoom.us/j/95371313871\nMeeting ID: 953 7131 3871 \nOr if your phone plan includes Unlimited Minutes\, then here are Toll Charge numbers to one-click call:\n+13017158592\,\,95371313871# US\n+13126266799\,\,95371313871# US
URL:https://umdf.org/event/lhon-new-york-new-jersey-pennsylvania-connect-2024-12-19/
CATEGORIES:LHON,Support Meeting
ORGANIZER;CN="Kara Strittmatter":MAILTO:kara@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20250919
DTEND;VALUE=DATE:20250920
DTSTAMP:20260501T092941
CREATED:20250818T154236Z
LAST-MODIFIED:20250818T154236Z
UID:10004052-1758240000-1758326399@umdf.org
SUMMARY:LHON Awareness Day
DESCRIPTION:Join UMDF as we mark Leber hereditary optic neuropathy day!  \nLeber hereditary optic neuropathy (LHON) is a rare inherited mitochondrial disorder. Its primary symptom is sudden\, painless loss of central vision. The typical onset pattern is for one eye to become affected\, then the other eye to begin losing vision within a few weeks or months; though in rare cases\, the interval between eyes can be years or decades. Onset begins with a small scotoma (blurry spot) in or around the center of vision that rapidly gets larger over about eight months\, then stabilizes. The person affected experiences profound vision loss and legal blindness (visual acuity worse than 20/200). There is a wide range of outcomes in terms of how much peripheral vision remains\, but most individuals affected by LHON retain some peripheral vision and never become totally blind.
URL:https://umdf.org/event/lhon-awareness-day-3/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250919T200000
DTEND;TZID=America/New_York:20250919T210000
DTSTAMP:20260501T092941
CREATED:20250113T183749Z
LAST-MODIFIED:20250113T183753Z
UID:10002124-1758312000-1758315600@umdf.org
SUMMARY:Teen and Young Adult Virtual Meet-Up Ages 16-35
DESCRIPTION:UMDF Teen/Young Adult \n“Virtual Meet-Up” \nTeens and Young Adults Age 16-35 \nEvery Friday!\n8:00pm ET \nJoin us EVERY Friday for a VIRTUAL Meet-Up! \nJoin us for this “Virtual Meet-Up”! It is tough being stuck at home\, but you are not alone. Let’s get together\, share coping tips and have some FUN! \nUMDF Support Ambassadors\, Kristi Dellinger and Devin Shuman will lead these calls.\nSee you on Friday! \nRegister in advance for this meeting:\nIf you registered last week\, you can use the same information to join every week!\nClick Here to Register Now \nAfter registering\, you will receive a confirmation email containing information about joining the meeting. \nIf you have questions\, please email Margaret Moore at margaret.moore@umdf.org
URL:https://umdf.org/event/young-adult-virtual-happy-hour-ages-16-35-2-2-2-2021-01-22-2-3-2/2025-09-19/
CATEGORIES:Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250920T100000
DTEND;TZID=America/New_York:20250920T120000
DTSTAMP:20260501T092941
CREATED:20240111T130250Z
LAST-MODIFIED:20250206T185233Z
UID:10002973-1758362400-1758369600@umdf.org
SUMMARY:Northeast PA Support Meeting
DESCRIPTION:  \nSupport Meeting- Northeast PA \nThird Saturday of each Month- In-Person \n10:00pm – 12:00pm Eastern\nSt. Luke’s Hospital\nPriscilla Payne Hurd Education Room\nRoom 104\n801 Ostrum Street\nBethlehem\, PA 18015\n \n  \nYou are not alone. Join us to share coping tips and connect with others. \nWe will meet the 3rd Saturday of each month! \n1:00pm – 3:00pm \nFor questions\, please contact Grace Robinson or Janelle Frank\, the Support Group Leaders:\ngracerobinson13@gmail.com or janelle.frank13@gmail.com
URL:https://umdf.org/event/support-group-meeting-nepa-2-2021-01-16-2021-02-20-2-2/2025-09-20/
CATEGORIES:Northeast
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250923T120000
DTEND;TZID=America/New_York:20250923T133000
DTSTAMP:20260501T092941
CREATED:20250108T143501Z
LAST-MODIFIED:20250820T133523Z
UID:10003367-1758628800-1758634200@umdf.org
SUMMARY:Mindfulness with Mary Series (monthly)
DESCRIPTION:Please join us for a monthly Mindfulness series with UMDF Support Ambassador\, Mary Canton. We will host these sessions every fourth Tuesday from 12:00pm -1:30pm ET. \nYou can register HERE
URL:https://umdf.org/event/mindfulness-with-mary-series-2-2/2025-09-23/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20250925T190000
DTEND;TZID=America/Chicago:20250925T200000
DTSTAMP:20260501T092941
CREATED:20240620T144219Z
LAST-MODIFIED:20251209T192223Z
UID:10001398-1758826800-1758830400@umdf.org
SUMMARY:Central Region Virtual Support Meeting
DESCRIPTION:Central Region Virtual Support Meeting \nUMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips\, share your story and connect with others. We hope you will attend and see that you are not alone. \nFourth Thursday of each month • 7:00pm – 8:00pm Central \nLearn more & register here. \nRegistration is required\, and you will receive a confirmation email with information to join the meeting. If you have any questions\, contact Margaret Moore at margaret.moore@5mr.c80.myftpupload.com or 412-744-1061 Ext 105. \nVisit the UMDF Event Calendar for all updates and upcoming events here.  \nSpecial Thanks to our Sponsors\nEdith L. Trees Charitable Trust • Jack Edwards Family Impact Fund
URL:https://umdf.org/event/central-region-virtual-support-meeting-2/2025-09-25/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250926T200000
DTEND;TZID=America/New_York:20250926T210000
DTSTAMP:20260501T092941
CREATED:20250113T183749Z
LAST-MODIFIED:20250113T183753Z
UID:10002125-1758916800-1758920400@umdf.org
SUMMARY:Teen and Young Adult Virtual Meet-Up Ages 16-35
DESCRIPTION:UMDF Teen/Young Adult \n“Virtual Meet-Up” \nTeens and Young Adults Age 16-35 \nEvery Friday!\n8:00pm ET \nJoin us EVERY Friday for a VIRTUAL Meet-Up! \nJoin us for this “Virtual Meet-Up”! It is tough being stuck at home\, but you are not alone. Let’s get together\, share coping tips and have some FUN! \nUMDF Support Ambassadors\, Kristi Dellinger and Devin Shuman will lead these calls.\nSee you on Friday! \nRegister in advance for this meeting:\nIf you registered last week\, you can use the same information to join every week!\nClick Here to Register Now \nAfter registering\, you will receive a confirmation email containing information about joining the meeting. \nIf you have questions\, please email Margaret Moore at margaret.moore@umdf.org
URL:https://umdf.org/event/young-adult-virtual-happy-hour-ages-16-35-2-2-2-2021-01-22-2-3-2/2025-09-26/
CATEGORIES:Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
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END:VCALENDAR