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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260902T120000
DTEND;TZID=America/New_York:20260902T130000
DTSTAMP:20260423T151537
CREATED:20250225T190610Z
LAST-MODIFIED:20251107T154248Z
UID:10003770-1788350400-1788354000@umdf.org
SUMMARY:Volunteer Interest Meeting
DESCRIPTION:Learn about all the ways that YOU can Be the Energy for the #mito community. Wherever your talents or interests lie — whether they be in support\, advocacy\, or fundraising toward treatments — you could be a change maker for patients and families impacted by #mitochondrialdisease. Register here: https://umdf.secure.nonprofitsoapbox.com/vol \n 
URL:https://umdf.org/event/volunteer-interest-meeting-2025/2026-09-02/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260902T200000
DTEND;TZID=America/New_York:20260902T210000
DTSTAMP:20260423T151537
CREATED:20250227T153450Z
LAST-MODIFIED:20250313T133520Z
UID:10003801-1788379200-1788382800@umdf.org
SUMMARY:LHON Live! Monthly Call
DESCRIPTION:NOTE: Unless specific to a geographic location – all LHON virtual meetings will be set in Eastern Time. \nThis call is for everyone interested in LHON…those affected\, carriers\, or sighted supporters…all are welcome.  You can speak up and share your thoughts\, or just listen to what others have to say…It’s your call!  Hosts Jessica Loomer and Andy Marks facilitate this call. \nRecordings from prior LHON Live! calls are located at this link: https://www.umdf.org/types/lhon/ \nReach out to Jessica Loomer at jessica.loomer@gmail.com or Andy Marks at marks.andy.c@gmail.com with any questions. \nJoin Details:\nOne option is to use Internet Audio to call at no charge at: https://umdf.zoom.us/j/95371313871\nMeeting ID: 953 7131 3871 \nOr if your phone plan includes Unlimited Minutes\, then here are Toll Charge numbers to one-click call: \n+13017158592\,\,95371313871# US\n+13126266799\,\,95371313871# US\nCanada: +16475580588\,\,95371313871#\nAustralia: +61280152088\,\,95371313871#\nUK: +442034815240\,\,95371313871# \nFor callers in other countries\, find your local number here: https://zoom.us/u/aYbvpoNU9\nMeeting ID: 953 7131 3871 \nClick Here for Previous LHON Live! Recordings  \n 
URL:https://umdf.org/event/lhon-live-monthly-call/2026-09-02/
CATEGORIES:LHON,Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260903T200000
DTEND;TZID=America/New_York:20260903T210000
DTSTAMP:20260423T151537
CREATED:20231019T142537Z
LAST-MODIFIED:20251209T192747Z
UID:10002439-1788465600-1788469200@umdf.org
SUMMARY:Adult Virtual Support Meeting
DESCRIPTION:Adult Virtual Support Meeting \nHello Adults impacted by Mitochondrial Disease! Please join us for an Adult Virtual Support Meeting. \nWe will get to know each other\, share resources\, and build community! \nJoin us for a VIRTUAL MEETING!\nThe FIRST Thursday of every month!\n8:00pm-9:00pm ET\nRegister HERE \nAfter registering\, you will receive a confirmation email containing information about joining the meeting. \nFor questions\, please email Margaret Moore at: margaret.moore@5mr.c80.myftpupload.com \nTHANK YOU TO OUR SPONSORS \nEdith L. Trees Charitable Trust \nAstellas \nJack Edwards Family Impact Fund \n  \n 
URL:https://umdf.org/event/adult-virtual-support-meetingsep2022-2-2/2026-09-03/
CATEGORIES:Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260904T200000
DTEND;TZID=America/New_York:20260904T210000
DTSTAMP:20260423T151537
CREATED:20250113T183749Z
LAST-MODIFIED:20250113T183753Z
UID:10002174-1788552000-1788555600@umdf.org
SUMMARY:Teen and Young Adult Virtual Meet-Up Ages 16-35
DESCRIPTION:UMDF Teen/Young Adult \n“Virtual Meet-Up” \nTeens and Young Adults Age 16-35 \nEvery Friday!\n8:00pm ET \nJoin us EVERY Friday for a VIRTUAL Meet-Up! \nJoin us for this “Virtual Meet-Up”! It is tough being stuck at home\, but you are not alone. Let’s get together\, share coping tips and have some FUN! \nUMDF Support Ambassadors\, Kristi Dellinger and Devin Shuman will lead these calls.\nSee you on Friday! \nRegister in advance for this meeting:\nIf you registered last week\, you can use the same information to join every week!\nClick Here to Register Now \nAfter registering\, you will receive a confirmation email containing information about joining the meeting. \nIf you have questions\, please email Margaret Moore at margaret.moore@umdf.org
URL:https://umdf.org/event/young-adult-virtual-happy-hour-ages-16-35-2-2-2-2021-01-22-2-3-2/2026-09-04/
CATEGORIES:Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20260907T100000
DTEND;TZID=America/Los_Angeles:20260907T110000
DTSTAMP:20260423T151537
CREATED:20240708T192355Z
LAST-MODIFIED:20250828T233020Z
UID:10003200-1788775200-1788778800@umdf.org
SUMMARY:California Virtual Support Group Meeting
DESCRIPTION:UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips\, share your story and connect with others. We hope you will attend and see that you are not alone. \nThe first Monday of each month• 10:00am – 11:00am Pacific \nLearn more & register here. \nRegistration is required\, and you will receive a confirmation email with information to join the meeting. If you have any questions\, contact Margaret Moore at margaret.moore@5mr.c80.myftpupload.com or 412-354-1553. \nVisit the UMDF Event Calendar for all updates and upcoming events here. \nSpecial Thanks to our Sponsors\nEdith L. Trees Charitable Trust
URL:https://umdf.org/event/california-virtual-support-group-meeting-2022-09-05-3-2-2-2/2026-09-07/
CATEGORIES:Pacific,Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260908
DTEND;VALUE=DATE:20260909
DTSTAMP:20260423T151537
CREATED:20260416T141728Z
LAST-MODIFIED:20260416T142923Z
UID:10004466-1788825600-1788911999@umdf.org
SUMMARY:TK2d Tuesday -- TK2d Awareness Day 2026
DESCRIPTION:TK2d Awareness Day 2026 – stay tuned for programming!
URL:https://umdf.org/event/tk2d-tuesday-tk2d-awareness-day-2026/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260909T120000
DTEND;TZID=America/New_York:20260909T130000
DTSTAMP:20260423T151537
CREATED:20250108T144422Z
LAST-MODIFIED:20250121T173952Z
UID:10003580-1788955200-1788958800@umdf.org
SUMMARY:Support Group for All
DESCRIPTION:When: The Second Wednesday of each month at 12:00 PM Eastern Time (US and Canada) \nRegister in advance for this meeting: \nhttps://umdf.zoom.us/meeting/register/tZcpcumsrTsiH9w1_pPmjbc-KqRCAIrmQCKt \nAfter registering\, you will receive a confirmation email containing information about joining the meeting.
URL:https://umdf.org/event/support-group-for-all/2026-09-09/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260911T200000
DTEND;TZID=America/New_York:20260911T210000
DTSTAMP:20260423T151537
CREATED:20250113T183749Z
LAST-MODIFIED:20250113T183753Z
UID:10002175-1789156800-1789160400@umdf.org
SUMMARY:Teen and Young Adult Virtual Meet-Up Ages 16-35
DESCRIPTION:UMDF Teen/Young Adult \n“Virtual Meet-Up” \nTeens and Young Adults Age 16-35 \nEvery Friday!\n8:00pm ET \nJoin us EVERY Friday for a VIRTUAL Meet-Up! \nJoin us for this “Virtual Meet-Up”! It is tough being stuck at home\, but you are not alone. Let’s get together\, share coping tips and have some FUN! \nUMDF Support Ambassadors\, Kristi Dellinger and Devin Shuman will lead these calls.\nSee you on Friday! \nRegister in advance for this meeting:\nIf you registered last week\, you can use the same information to join every week!\nClick Here to Register Now \nAfter registering\, you will receive a confirmation email containing information about joining the meeting. \nIf you have questions\, please email Margaret Moore at margaret.moore@umdf.org
URL:https://umdf.org/event/young-adult-virtual-happy-hour-ages-16-35-2-2-2-2021-01-22-2-3-2/2026-09-11/
CATEGORIES:Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260914
DTEND;VALUE=DATE:20260921
DTSTAMP:20260423T151537
CREATED:20260416T141550Z
LAST-MODIFIED:20260416T141550Z
UID:10004465-1789344000-1789948799@umdf.org
SUMMARY:World Mitochondrial Disease Awareness Week 2026
DESCRIPTION:Sept. 14 – 20\, 2026 is World Mitochondrial Disease Awareness Week. Stay tuned for programming!
URL:https://umdf.org/event/world-mitochondrial-disease-awareness-week-2026/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260915T200000
DTEND;TZID=America/New_York:20260915T210000
DTSTAMP:20260423T151537
CREATED:20260226T144955Z
LAST-MODIFIED:20260226T144955Z
UID:10004425-1789502400-1789506000@umdf.org
SUMMARY:LHON - Affected Women
DESCRIPTION:If you’re a woman with LHON vision (affected)\, consider joining the call and sharing your experiences with others in a similar situation. Reach out to Jessica Loomer jessica.loomer@gmail.com with any questions. \nThere’s also a Facebook group for LHON-Affected Women located at this link: https://www.facebook.com/groups/404650029721330 \nJoin Details:\nOne option is to use Internet Audio to call at no charge at: https://umdf.zoom.us/j/95371313871 \nMeeting ID: 953 7131 3871 \nOr if your phone plan includes Unlimited Minutes\, then here are Toll Charge numbers to one-click call:\n+16699006833\,\,95371313871#\n+16468769923\,\,95371313871# \nCanada: +16475580588\,\,95371313871#\nAustralia: +61280152088\,\,95371313871#\nUK: +442034815240\,\,95371313871# \nFor callers in other countries\, find your local number here:\nhttps://zoom.us/u/aYbvpoNU9\nThe Meeting ID is: 95371313871
URL:https://umdf.org/event/lhon-affected-women/2026-09-15/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260916T200000
DTEND;TZID=America/New_York:20260916T213000
DTSTAMP:20260423T151537
CREATED:20250206T190510Z
LAST-MODIFIED:20260309T144907Z
UID:10003652-1789588800-1789594200@umdf.org
SUMMARY:Moms of LHON - Affected "Kids of All Ages"
DESCRIPTION:If you’re a mom of someone affected by LHON\, consider joining the call and sharing your experiences with others in a similar situation. Reach out to Lissa Poincenot at lhonpoince@aol.com with any questions. \nThere’s also a Facebook group for Moms of LHON-Affected “Kids of All Ages” located at this link: https://www.facebook.com/groups/1862093300546686 \nJoin Details: \nOne option is to use Internet Audio to call at no charge at: https://umdf.zoom.us/j/95371313871 \nMeeting ID: 953 7131 3871 \nOr if your phone plan includes Unlimited Minutes\, then here are Toll Charge numbers to one-click call:\n+16699006833\,\,95371313871#\n+16468769923\,\,95371313871#
URL:https://umdf.org/event/moms-of-lhon-affected-kids-of-all-ages/2026-09-16/
CATEGORIES:LHON,Support Meeting
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260917
DTEND;VALUE=DATE:20260918
DTSTAMP:20260423T151537
CREATED:20260416T141429Z
LAST-MODIFIED:20260416T141429Z
UID:10004464-1789603200-1789689599@umdf.org
SUMMARY:Leigh Syndrome Awareness Day
DESCRIPTION:Every year\, Sept. 17 is set aside for awareness for Leigh syndrome | UMDF \nWatch for special programming to be added in the coming months.
URL:https://umdf.org/event/leigh-syndrome-awareness-day-2026/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260917T190000
DTEND;TZID=America/New_York:20260917T200000
DTSTAMP:20260423T151537
CREATED:20210727T145309Z
LAST-MODIFIED:20210727T145309Z
UID:10001162-1789671600-1789675200@umdf.org
SUMMARY:LHON - New York\, New Jersey\, Pennsylvania Connect
DESCRIPTION:Please Join Us! \nThis call for those living in New York\, New Jersey\, or Pennsylvania with an interest in LHON takes place quarterly on the third Thursday of the month at 7:00pm EST. Hosts Jim and Mary Tolve facilitate this call. Consider joining the call and sharing your experiences with others in a similar situation. \nThe following Facebook Groups are also available: \n\nNew York Group – Click here\nNew Jersey Group – Click here\nPennsylvania Group – Click here\n\nReach out to Jim Tolve at jetragnar@gmail.com with any questions. \nJoin Details:\nOne option is to use Internet Audio to call at no charge at:\nhttps://umdf.zoom.us/j/95371313871\nMeeting ID: 953 7131 3871 \nOr if your phone plan includes Unlimited Minutes\, then here are Toll Charge numbers to one-click call:\n+13017158592\,\,95371313871# US\n+13126266799\,\,95371313871# US
URL:https://umdf.org/event/lhon-new-york-new-jersey-pennsylvania-connect-2024-12-19/
CATEGORIES:LHON,Support Meeting
ORGANIZER;CN="Kara Strittmatter":MAILTO:kara@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260918T200000
DTEND;TZID=America/New_York:20260918T210000
DTSTAMP:20260423T151537
CREATED:20250113T183749Z
LAST-MODIFIED:20250113T183753Z
UID:10002176-1789761600-1789765200@umdf.org
SUMMARY:Teen and Young Adult Virtual Meet-Up Ages 16-35
DESCRIPTION:UMDF Teen/Young Adult \n“Virtual Meet-Up” \nTeens and Young Adults Age 16-35 \nEvery Friday!\n8:00pm ET \nJoin us EVERY Friday for a VIRTUAL Meet-Up! \nJoin us for this “Virtual Meet-Up”! It is tough being stuck at home\, but you are not alone. Let’s get together\, share coping tips and have some FUN! \nUMDF Support Ambassadors\, Kristi Dellinger and Devin Shuman will lead these calls.\nSee you on Friday! \nRegister in advance for this meeting:\nIf you registered last week\, you can use the same information to join every week!\nClick Here to Register Now \nAfter registering\, you will receive a confirmation email containing information about joining the meeting. \nIf you have questions\, please email Margaret Moore at margaret.moore@umdf.org
URL:https://umdf.org/event/young-adult-virtual-happy-hour-ages-16-35-2-2-2-2021-01-22-2-3-2/2026-09-18/
CATEGORIES:Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260919T100000
DTEND;TZID=America/New_York:20260919T120000
DTSTAMP:20260423T151537
CREATED:20240111T130250Z
LAST-MODIFIED:20250206T185233Z
UID:10002985-1789812000-1789819200@umdf.org
SUMMARY:Northeast PA Support Meeting
DESCRIPTION:  \nSupport Meeting- Northeast PA \nThird Saturday of each Month- In-Person \n10:00pm – 12:00pm Eastern\nSt. Luke’s Hospital\nPriscilla Payne Hurd Education Room\nRoom 104\n801 Ostrum Street\nBethlehem\, PA 18015\n \n  \nYou are not alone. Join us to share coping tips and connect with others. \nWe will meet the 3rd Saturday of each month! \n1:00pm – 3:00pm \nFor questions\, please contact Grace Robinson or Janelle Frank\, the Support Group Leaders:\ngracerobinson13@gmail.com or janelle.frank13@gmail.com
URL:https://umdf.org/event/support-group-meeting-nepa-2-2021-01-16-2021-02-20-2-2/2026-09-19/
CATEGORIES:Northeast
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260921T200000
DTEND;TZID=America/New_York:20260921T210000
DTSTAMP:20260423T151537
CREATED:20240117T130219Z
LAST-MODIFIED:20260209T142232Z
UID:10003867-1790020800-1790024400@umdf.org
SUMMARY:Parent and Caregiver Virtual Support Meeting
DESCRIPTION:Parent and Caregiver Virtual Support Meeting \nHello Parents and Caregivers impacted by Mitochondrial Disease! Please join us for a Parent and Caregiver Virtual Support Meeting. \nWe will get to know each other\, share resources\, and build community! \nJoin us for a VIRTUAL MEETING!\nThe THIRD Monday of every month!\n8:00pm-9:00pm ET\nRegister HERE \nAfter registering\, you will receive a confirmation email containing information about joining the meeting. \nFor questions\, please email Margaret Moore at: margaret.moore@umdf.org \nTHANK YOU TO OUR SPONSORS \nEdith L. Trees Charitable Trust \nAstellas \nJack Edwards Family Impact Fund
URL:https://umdf.org/event/parent-and-caregiver-virtual-support-meeting/2026-09-21/
CATEGORIES:Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260922T120000
DTEND;TZID=America/New_York:20260922T133000
DTSTAMP:20260423T151537
CREATED:20251124T175816Z
LAST-MODIFIED:20251205T200913Z
UID:10004216-1790078400-1790083800@umdf.org
SUMMARY:Mindfulness with Mary Series (monthly)
DESCRIPTION:Please join us for a monthly Mindfulness series with UMDF Support Ambassador\, Mary Canton. We will host these sessions every fourth Tuesday from 12:00pm -1:30pm ET. \nYou can register HERE
URL:https://umdf.org/event/mindfulness-with-mary-series-2-2-2/2026-09-22/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20260924T190000
DTEND;TZID=America/Chicago:20260924T200000
DTSTAMP:20260423T151537
CREATED:20240620T144219Z
LAST-MODIFIED:20251209T192223Z
UID:10001410-1790276400-1790280000@umdf.org
SUMMARY:Central Region Virtual Support Meeting
DESCRIPTION:Central Region Virtual Support Meeting \nUMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips\, share your story and connect with others. We hope you will attend and see that you are not alone. \nFourth Thursday of each month • 7:00pm – 8:00pm Central \nLearn more & register here. \nRegistration is required\, and you will receive a confirmation email with information to join the meeting. If you have any questions\, contact Margaret Moore at margaret.moore@5mr.c80.myftpupload.com or 412-744-1061 Ext 105. \nVisit the UMDF Event Calendar for all updates and upcoming events here.  \nSpecial Thanks to our Sponsors\nEdith L. Trees Charitable Trust • Jack Edwards Family Impact Fund
URL:https://umdf.org/event/central-region-virtual-support-meeting-2/2026-09-24/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260925T200000
DTEND;TZID=America/New_York:20260925T210000
DTSTAMP:20260423T151537
CREATED:20250113T183749Z
LAST-MODIFIED:20250113T183753Z
UID:10002177-1790366400-1790370000@umdf.org
SUMMARY:Teen and Young Adult Virtual Meet-Up Ages 16-35
DESCRIPTION:UMDF Teen/Young Adult \n“Virtual Meet-Up” \nTeens and Young Adults Age 16-35 \nEvery Friday!\n8:00pm ET \nJoin us EVERY Friday for a VIRTUAL Meet-Up! \nJoin us for this “Virtual Meet-Up”! It is tough being stuck at home\, but you are not alone. Let’s get together\, share coping tips and have some FUN! \nUMDF Support Ambassadors\, Kristi Dellinger and Devin Shuman will lead these calls.\nSee you on Friday! \nRegister in advance for this meeting:\nIf you registered last week\, you can use the same information to join every week!\nClick Here to Register Now \nAfter registering\, you will receive a confirmation email containing information about joining the meeting. \nIf you have questions\, please email Margaret Moore at margaret.moore@umdf.org
URL:https://umdf.org/event/young-adult-virtual-happy-hour-ages-16-35-2-2-2-2021-01-22-2-3-2/2026-09-25/
CATEGORIES:Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
END:VCALENDAR