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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260917T190000
DTEND;TZID=America/New_York:20260917T200000
DTSTAMP:20210727T145309Z
CREATED:20210727T145309Z
LAST-MODIFIED:20210727T145309Z
UID:10001162-1789671600-1789675200@umdf.org
SUMMARY:LHON - New York\, New Jersey\, Pennsylvania Connect
DESCRIPTION:Please Join Us! \nThis call for those living in New York\, New Jersey\, or Pennsylvania with an interest in LHON takes place quarterly on the third Thursday of the month at 7:00pm EST. Hosts Jim and Mary Tolve facilitate this call. Consider joining the call and sharing your experiences with others in a similar situation. \nThe following Facebook Groups are also available: \n\nNew York Group – Click here\nNew Jersey Group – Click here\nPennsylvania Group – Click here\n\nReach out to Jim Tolve at jetragnar@gmail.com with any questions. \nJoin Details:\nOne option is to use Internet Audio to call at no charge at:\nhttps://umdf.zoom.us/j/95371313871\nMeeting ID: 953 7131 3871 \nOr if your phone plan includes Unlimited Minutes\, then here are Toll Charge numbers to one-click call:\n+13017158592\,\,95371313871# US\n+13126266799\,\,95371313871# US
URL:https://umdf.org/event/lhon-new-york-new-jersey-pennsylvania-connect-2024-12-19/
CATEGORIES:LHON,Support Meeting
ORGANIZER;CN="Kara Strittmatter":MAILTO:kara@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260922T120000
DTEND;TZID=America/New_York:20260922T130000
DTSTAMP:20260731T171642Z
CREATED:20260731T171642Z
LAST-MODIFIED:20260731T171642Z
UID:10004559-1790078400-1790082000@umdf.org
SUMMARY:UMDF Ask the Mito Doc Webcast Series – POLG: Building Knowledge\, Advancing Research\, Inspiring Hope
DESCRIPTION:The United Mitochondrial Disease Foundation is pleased to offer the Ask the Mito Doc Webcast Series on a monthly basis to keep our patients and families connected to the mitochondrial medical community.  Each month\, we will highlight a specific topic with a short presentation and allow 15-20 minutes for question and answer time with the clinicians and guest speakers.  \n\nJoin us on September 22\, 2026\nat 9:00am Pacific/10:00am Mountain/11:00am Central/12:00pm Eastern \nClick Here to Register \nAgenda \n\nPOLG: Building Knowledge\, Advancing Research\, Inspiring Hope (tentative topic title) \nModerator: Margaret Moore\, UMDF Associate Director of Support & Education \nSpeaker: Amel Karaa\, MD\, Massachusetts General Hospital\, Danielle Black\, UMDF Clinical Research Coordinator and William Copeland\, PhD\, NIEHS \n\n\nWe invite you to submit your questions for the Ask the Mito Doc webcast in advance.  We will take as many questions as possible before\, during and after the webinar.  Question and Answer Protocol – Most questions pertinent to the monthly topic are typically addressed during the presentation(s).  Please note that not all questions can be answered through this forum.  If you submit a question and do not receive a response\, please do not hesitate to contact us at margaret.moore@umdf.org.  \nClick Here to Submit Your Question! \nWe hope you can join us September 22\, 2026.  Registration is required.  After registering\, you will receive a confirmation email with Zoom credentials.  \nIf you are new to using ZOOM\, we suggest that you log in early on your computer or the device you plan to use.  Feel free to log in to the meeting link today.  It is so important that you do this in advance as we may not be able to assist you once the webcast begins.  If you have any questions\, contact Margaret Moore at margaret.moore@umdf.org or 412-744-1061\, ext 105. \nWe are committed to providing needed support for our patient community.   \nCall our support line at 1-888-900-MITO to speak with a member of our patient services team.\nAlways remember\, we are here to help you and your family through your journey! \nSpecial Thanks to \n  \n \n 
URL:https://umdf.org/event/umdf-ask-the-mito-doc-webcast-series-polg2026/
CATEGORIES:Ask the Mito Doc,Education
ORGANIZER;CN="Kara Strittmatter":MAILTO:kara@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261020T200000
DTEND;TZID=America/New_York:20261020T210000
DTSTAMP:20260226T150157Z
CREATED:20260226T150155Z
LAST-MODIFIED:20260226T150157Z
UID:10004430-1792526400-1792530000@umdf.org
SUMMARY:LHON Onset at Age 60+
DESCRIPTION:Were you affected by LHON at age 60 or older? Would you like to network with others in a similar situation? If so\, you are welcome to join our Zoom networking event exclusively for individuals affected at age 60 or older. This Zoom event is a great opportunity to get to know each other and share LHON-related experiences. This event is led by Howard Sumner and Jessica Loomer.\n\nJoin Details:\nOne option is to use Internet Audio to call at no charge at: https://umdf.zoom.us/j/95371313871 \nMeeting ID: 953 7131 3871 \nOr if your phone plan includes Unlimited Minutes\, then here are Toll Charge numbers to one-click call: \n+16699006833\,\,95371313871#\n+16468769923\,\,95371313871#
URL:https://umdf.org/event/lhon-onset-at-age-60-2/2026-10-20/
CATEGORIES:LHON,Support Meeting
ORGANIZER;CN="Kara Strittmatter":MAILTO:kara@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261027T190000
DTEND;TZID=America/New_York:20261027T200000
DTSTAMP:20260812T194052Z
CREATED:20260812T194052Z
LAST-MODIFIED:20260812T194052Z
UID:10004601-1793127600-1793131200@umdf.org
SUMMARY:UMDF Ask the Mito Doc Webcast Series – Understanding Access to Therapies: Compassionate Use\, Expanded Access\, and Off-Label Treatment in Mitochondrial Disease
DESCRIPTION:The United Mitochondrial Disease Foundation is pleased to offer the Ask the Mito Doc Webcast Series on a monthly basis to keep our patients and families connected to the mitochondrial medical community.  Each month\, we will highlight a specific topic with a short presentation and allow 15-20 minutes for question and answer time with the clinicians and guest speakers.  \n\nJoin us on October 27\, 2026\nat 4:00pm Pacific/5:00pm Mountain/6:00pm Central/7:00pm Eastern \nClick Here to Register \nAgenda \n\nUnderstanding Access to Therapies: Compassionate Use\, Expanded Access\, and Off-Label Treatment in Mitochondrial Disease \nModerator: Margaret Moore\, UMDF Associate Director of Support & Education \nSpeakers: Austin Larson\, MD\, Children’s Hospital Colorado\, Aurora\, Colorado\, Philip Yeske\, PhD\, UMDF Science & Alliance Officer\, Margaret Moore\, UMDF Associate Director of Support & Education\, and others TBD \n\n\nWe invite you to submit your questions for the Ask the Mito Doc webcast in advance.  We will take as many questions as possible before\, during and after the webinar.  Question and Answer Protocol – Most questions pertinent to the monthly topic are typically addressed during the presentation(s).  Please note that not all questions can be answered through this forum.  If you submit a question and do not receive a response\, please do not hesitate to contact us at margaret.moore@umdf.org.  \nClick Here to Submit Your Question! \nWe hope you can join us October 27\, 2026.  Registration is required.  After registering\, you will receive a confirmation email with Zoom credentials.  \nIf you are new to using ZOOM\, we suggest that you log in early on your computer or the device you plan to use.  Feel free to log in to the meeting link today.  It is so important that you do this in advance as we may not be able to assist you once the webcast begins.  If you have any questions\, contact Margaret Moore at margaret.moore@umdf.org or 412-744-1061\, ext 105. \nWe are committed to providing needed support for our patient community.   \nCall our support line at 1-888-900-MITO to speak with a member of our patient services team.\nAlways remember\, we are here to help you and your family through your journey! \nSpecial Thanks to \n  \n \n 
URL:https://umdf.org/event/umdf-ask-the-mito-doc-webcast-series-understanding-access-to-therapies/
CATEGORIES:Ask the Mito Doc,Education
ORGANIZER;CN="Kara Strittmatter":MAILTO:kara@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261208T200000
DTEND;TZID=America/New_York:20261208T213000
DTSTAMP:20260309T143327Z
CREATED:20250129T211459Z
LAST-MODIFIED:20260309T143327Z
UID:10004449-1796760000-1796765400@umdf.org
SUMMARY:LHON Sisterhood
DESCRIPTION:LHON Sisterhood \nAre you a woman who carries an LHON mutation? Whether you’re affected by LHON symptoms or not\, you’re invited to be part of the LHON Sisterhood! This community is intended to provide a safe space for all women who carry an LHON mutation to discuss topics specific to navigating life as a woman impacted by carrying an LHON mutation. \nIf you are a female who carries an LHON mutation\, we invite you to join this call and our Facebook group. If you are not\, but you know a woman impacted by LHON in this way who would benefit from this call and Facebook group\, and from being part of the LHON Sisterhood community\, please invite them to join us! \nReach out to Scarlet Keolanui Dreifuss at scarletkeolanui@gmail.com with any questions. \nJoin Details:\nOne option is to use Internet Audio to call at no charge at: https://umdf.zoom.us/j/95371313871 \nMeeting ID: 953 7131 3871 \nOr if your phone plan includes Unlimited Minutes\, then here are Toll Charge numbers to one-click call: \n+16699006833\,\,95371313871#\n+16468769923\,\,95371313871#
URL:https://umdf.org/event/lhon-sisterhood-3/2026-12-08/
CATEGORIES:LHON,Support Meeting
ORGANIZER;CN="Kara Strittmatter":MAILTO:kara@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261209T220000
DTEND;TZID=America/New_York:20261209T233000
DTSTAMP:20250313T140407Z
CREATED:20241001T160506Z
LAST-MODIFIED:20250313T140407Z
UID:10003977-1796853600-1796859000@umdf.org
SUMMARY:LHON West Connect
DESCRIPTION:The LHON Southwest & LHON Pacific Northwest groups have merged!\n\nThis Zoom event is a great opportunity to connect and discuss resources of interest to the Southwest LHON (previously California) & Northwest LHON communities! Consider joining the call to share your experiences with others in a similar situation. Contact Bob Banks with any questions at rwbanks@hotmail.com or Patrick Doolittle at doolittlepc@gmail.com with any questions. \nThere are also Facebook groups for those in the Southwest & Northwest areas: \n\nSouthwest: https://www.facebook.com/groups/1634812156795801\nNorthwest: https://www.facebook.com/groups/240239936350807\n\nJoin Details:\nOne option is to use Internet Audio to call at no charge at: https://umdf.zoom.us/j/95371313871 \nMeeting ID: 953 7131 3871 \nOr if your phone plan includes Unlimited Minutes\, then here are Toll Charge numbers to  one-click call:\n+16699006833\,\,95371313871#\n+16468769923\,\,95371313871#
URL:https://umdf.org/event/lhon-west-connect/2026-12-09/
CATEGORIES:LHON,Pacific,Southwest,Support Meeting,West
ORGANIZER;CN="Kara Strittmatter":MAILTO:kara@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261210T200000
DTEND;TZID=America/New_York:20261210T210000
DTSTAMP:20250313T195021Z
CREATED:20240109T032102Z
LAST-MODIFIED:20250313T195021Z
UID:10004031-1796932800-1796936400@umdf.org
SUMMARY:LHON Southeast Connect
DESCRIPTION:Note: The DC-Area group merged with this group at the end of 2024. Please join this call moving forward if you are in the DC area. \nThis call is for those living in the DC area\, Georgia\, and Florida with an interest in LHON. Consider joining the call and sharing your experiences with others in a similar situation. \nThere are also Facebook groups for these areas: \n  \n\nDC area: https://www.facebook.com/groups/243446586122096\nGeorgia: https://www.facebook.com/groups/2157760391116970\nFlorida: https://www.facebook.com/groups/867332836666024\n\n  \nJoin Details:\nOne option is to use Internet Audio to call at no charge at: https://umdf.zoom.us/j/95371313871 \nMeeting ID: 953 7131 3871 \nOr if your phone plan includes Unlimited Minutes\, then here are Toll Charge numbers to one-click call:\n+16699006833\,\,95371313871#\n+16468769923\,\,95371313871#
URL:https://umdf.org/event/lhon-southeast-connect/2026-12-10/
CATEGORIES:LHON,Southeast,Support Meeting
ORGANIZER;CN="Kara Strittmatter":MAILTO:kara@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261217T190000
DTEND;TZID=America/New_York:20261217T200000
DTSTAMP:20210727T145309Z
CREATED:20210727T145309Z
LAST-MODIFIED:20210727T145309Z
UID:10001163-1797534000-1797537600@umdf.org
SUMMARY:LHON - New York\, New Jersey\, Pennsylvania Connect
DESCRIPTION:Please Join Us! \nThis call for those living in New York\, New Jersey\, or Pennsylvania with an interest in LHON takes place quarterly on the third Thursday of the month at 7:00pm EST. Hosts Jim and Mary Tolve facilitate this call. Consider joining the call and sharing your experiences with others in a similar situation. \nThe following Facebook Groups are also available: \n\nNew York Group – Click here\nNew Jersey Group – Click here\nPennsylvania Group – Click here\n\nReach out to Jim Tolve at jetragnar@gmail.com with any questions. \nJoin Details:\nOne option is to use Internet Audio to call at no charge at:\nhttps://umdf.zoom.us/j/95371313871\nMeeting ID: 953 7131 3871 \nOr if your phone plan includes Unlimited Minutes\, then here are Toll Charge numbers to one-click call:\n+13017158592\,\,95371313871# US\n+13126266799\,\,95371313871# US
URL:https://umdf.org/event/lhon-new-york-new-jersey-pennsylvania-connect-2024-12-19/
CATEGORIES:LHON,Support Meeting
ORGANIZER;CN="Kara Strittmatter":MAILTO:kara@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20270318T190000
DTEND;TZID=America/New_York:20270318T200000
DTSTAMP:20210727T145309Z
CREATED:20210727T145309Z
LAST-MODIFIED:20210727T145309Z
UID:10001164-1805396400-1805400000@umdf.org
SUMMARY:LHON - New York\, New Jersey\, Pennsylvania Connect
DESCRIPTION:Please Join Us! \nThis call for those living in New York\, New Jersey\, or Pennsylvania with an interest in LHON takes place quarterly on the third Thursday of the month at 7:00pm EST. Hosts Jim and Mary Tolve facilitate this call. Consider joining the call and sharing your experiences with others in a similar situation. \nThe following Facebook Groups are also available: \n\nNew York Group – Click here\nNew Jersey Group – Click here\nPennsylvania Group – Click here\n\nReach out to Jim Tolve at jetragnar@gmail.com with any questions. \nJoin Details:\nOne option is to use Internet Audio to call at no charge at:\nhttps://umdf.zoom.us/j/95371313871\nMeeting ID: 953 7131 3871 \nOr if your phone plan includes Unlimited Minutes\, then here are Toll Charge numbers to one-click call:\n+13017158592\,\,95371313871# US\n+13126266799\,\,95371313871# US
URL:https://umdf.org/event/lhon-new-york-new-jersey-pennsylvania-connect-2024-12-19/
CATEGORIES:LHON,Support Meeting
ORGANIZER;CN="Kara Strittmatter":MAILTO:kara@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20270408T200000
DTEND;TZID=America/New_York:20270408T210000
DTSTAMP:20250313T195021Z
CREATED:20240109T032102Z
LAST-MODIFIED:20250313T195021Z
UID:10004032-1807214400-1807218000@umdf.org
SUMMARY:LHON Southeast Connect
DESCRIPTION:Note: The DC-Area group merged with this group at the end of 2024. Please join this call moving forward if you are in the DC area. \nThis call is for those living in the DC area\, Georgia\, and Florida with an interest in LHON. Consider joining the call and sharing your experiences with others in a similar situation. \nThere are also Facebook groups for these areas: \n  \n\nDC area: https://www.facebook.com/groups/243446586122096\nGeorgia: https://www.facebook.com/groups/2157760391116970\nFlorida: https://www.facebook.com/groups/867332836666024\n\n  \nJoin Details:\nOne option is to use Internet Audio to call at no charge at: https://umdf.zoom.us/j/95371313871 \nMeeting ID: 953 7131 3871 \nOr if your phone plan includes Unlimited Minutes\, then here are Toll Charge numbers to one-click call:\n+16699006833\,\,95371313871#\n+16468769923\,\,95371313871#
URL:https://umdf.org/event/lhon-southeast-connect/2027-04-08/
CATEGORIES:LHON,Southeast,Support Meeting
ORGANIZER;CN="Kara Strittmatter":MAILTO:kara@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20270414T220000
DTEND;TZID=America/New_York:20270414T233000
DTSTAMP:20250313T140407Z
CREATED:20241001T160506Z
LAST-MODIFIED:20250313T140407Z
UID:10003978-1807740000-1807745400@umdf.org
SUMMARY:LHON West Connect
DESCRIPTION:The LHON Southwest & LHON Pacific Northwest groups have merged!\n\nThis Zoom event is a great opportunity to connect and discuss resources of interest to the Southwest LHON (previously California) & Northwest LHON communities! Consider joining the call to share your experiences with others in a similar situation. Contact Bob Banks with any questions at rwbanks@hotmail.com or Patrick Doolittle at doolittlepc@gmail.com with any questions. \nThere are also Facebook groups for those in the Southwest & Northwest areas: \n\nSouthwest: https://www.facebook.com/groups/1634812156795801\nNorthwest: https://www.facebook.com/groups/240239936350807\n\nJoin Details:\nOne option is to use Internet Audio to call at no charge at: https://umdf.zoom.us/j/95371313871 \nMeeting ID: 953 7131 3871 \nOr if your phone plan includes Unlimited Minutes\, then here are Toll Charge numbers to  one-click call:\n+16699006833\,\,95371313871#\n+16468769923\,\,95371313871#
URL:https://umdf.org/event/lhon-west-connect/2027-04-14/
CATEGORIES:LHON,Pacific,Southwest,Support Meeting,West
ORGANIZER;CN="Kara Strittmatter":MAILTO:kara@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20270420T200000
DTEND;TZID=America/New_York:20270420T210000
DTSTAMP:20260226T150157Z
CREATED:20260226T150155Z
LAST-MODIFIED:20260226T150157Z
UID:10004431-1808251200-1808254800@umdf.org
SUMMARY:LHON Onset at Age 60+
DESCRIPTION:Were you affected by LHON at age 60 or older? Would you like to network with others in a similar situation? If so\, you are welcome to join our Zoom networking event exclusively for individuals affected at age 60 or older. This Zoom event is a great opportunity to get to know each other and share LHON-related experiences. This event is led by Howard Sumner and Jessica Loomer.\n\nJoin Details:\nOne option is to use Internet Audio to call at no charge at: https://umdf.zoom.us/j/95371313871 \nMeeting ID: 953 7131 3871 \nOr if your phone plan includes Unlimited Minutes\, then here are Toll Charge numbers to one-click call: \n+16699006833\,\,95371313871#\n+16468769923\,\,95371313871#
URL:https://umdf.org/event/lhon-onset-at-age-60-2/2027-04-20/
CATEGORIES:LHON,Support Meeting
ORGANIZER;CN="Kara Strittmatter":MAILTO:kara@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20270617T190000
DTEND;TZID=America/New_York:20270617T200000
DTSTAMP:20210727T145309Z
CREATED:20210727T145309Z
LAST-MODIFIED:20210727T145309Z
UID:10001165-1813258800-1813262400@umdf.org
SUMMARY:LHON - New York\, New Jersey\, Pennsylvania Connect
DESCRIPTION:Please Join Us! \nThis call for those living in New York\, New Jersey\, or Pennsylvania with an interest in LHON takes place quarterly on the third Thursday of the month at 7:00pm EST. Hosts Jim and Mary Tolve facilitate this call. Consider joining the call and sharing your experiences with others in a similar situation. \nThe following Facebook Groups are also available: \n\nNew York Group – Click here\nNew Jersey Group – Click here\nPennsylvania Group – Click here\n\nReach out to Jim Tolve at jetragnar@gmail.com with any questions. \nJoin Details:\nOne option is to use Internet Audio to call at no charge at:\nhttps://umdf.zoom.us/j/95371313871\nMeeting ID: 953 7131 3871 \nOr if your phone plan includes Unlimited Minutes\, then here are Toll Charge numbers to one-click call:\n+13017158592\,\,95371313871# US\n+13126266799\,\,95371313871# US
URL:https://umdf.org/event/lhon-new-york-new-jersey-pennsylvania-connect-2024-12-19/
CATEGORIES:LHON,Support Meeting
ORGANIZER;CN="Kara Strittmatter":MAILTO:kara@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20270811T220000
DTEND;TZID=America/New_York:20270811T233000
DTSTAMP:20250313T140407Z
CREATED:20241001T160506Z
LAST-MODIFIED:20250313T140407Z
UID:10003979-1818021600-1818027000@umdf.org
SUMMARY:LHON West Connect
DESCRIPTION:The LHON Southwest & LHON Pacific Northwest groups have merged!\n\nThis Zoom event is a great opportunity to connect and discuss resources of interest to the Southwest LHON (previously California) & Northwest LHON communities! Consider joining the call to share your experiences with others in a similar situation. Contact Bob Banks with any questions at rwbanks@hotmail.com or Patrick Doolittle at doolittlepc@gmail.com with any questions. \nThere are also Facebook groups for those in the Southwest & Northwest areas: \n\nSouthwest: https://www.facebook.com/groups/1634812156795801\nNorthwest: https://www.facebook.com/groups/240239936350807\n\nJoin Details:\nOne option is to use Internet Audio to call at no charge at: https://umdf.zoom.us/j/95371313871 \nMeeting ID: 953 7131 3871 \nOr if your phone plan includes Unlimited Minutes\, then here are Toll Charge numbers to  one-click call:\n+16699006833\,\,95371313871#\n+16468769923\,\,95371313871#
URL:https://umdf.org/event/lhon-west-connect/2027-08-11/
CATEGORIES:LHON,Pacific,Southwest,Support Meeting,West
ORGANIZER;CN="Kara Strittmatter":MAILTO:kara@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20270812T200000
DTEND;TZID=America/New_York:20270812T210000
DTSTAMP:20250313T195021Z
CREATED:20240109T032102Z
LAST-MODIFIED:20250313T195021Z
UID:10004033-1818100800-1818104400@umdf.org
SUMMARY:LHON Southeast Connect
DESCRIPTION:Note: The DC-Area group merged with this group at the end of 2024. Please join this call moving forward if you are in the DC area. \nThis call is for those living in the DC area\, Georgia\, and Florida with an interest in LHON. Consider joining the call and sharing your experiences with others in a similar situation. \nThere are also Facebook groups for these areas: \n  \n\nDC area: https://www.facebook.com/groups/243446586122096\nGeorgia: https://www.facebook.com/groups/2157760391116970\nFlorida: https://www.facebook.com/groups/867332836666024\n\n  \nJoin Details:\nOne option is to use Internet Audio to call at no charge at: https://umdf.zoom.us/j/95371313871 \nMeeting ID: 953 7131 3871 \nOr if your phone plan includes Unlimited Minutes\, then here are Toll Charge numbers to one-click call:\n+16699006833\,\,95371313871#\n+16468769923\,\,95371313871#
URL:https://umdf.org/event/lhon-southeast-connect/2027-08-12/
CATEGORIES:LHON,Southeast,Support Meeting
ORGANIZER;CN="Kara Strittmatter":MAILTO:kara@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20270916T190000
DTEND;TZID=America/New_York:20270916T200000
DTSTAMP:20210727T145309Z
CREATED:20210727T145309Z
LAST-MODIFIED:20210727T145309Z
UID:10001166-1821121200-1821124800@umdf.org
SUMMARY:LHON - New York\, New Jersey\, Pennsylvania Connect
DESCRIPTION:Please Join Us! \nThis call for those living in New York\, New Jersey\, or Pennsylvania with an interest in LHON takes place quarterly on the third Thursday of the month at 7:00pm EST. Hosts Jim and Mary Tolve facilitate this call. Consider joining the call and sharing your experiences with others in a similar situation. \nThe following Facebook Groups are also available: \n\nNew York Group – Click here\nNew Jersey Group – Click here\nPennsylvania Group – Click here\n\nReach out to Jim Tolve at jetragnar@gmail.com with any questions. \nJoin Details:\nOne option is to use Internet Audio to call at no charge at:\nhttps://umdf.zoom.us/j/95371313871\nMeeting ID: 953 7131 3871 \nOr if your phone plan includes Unlimited Minutes\, then here are Toll Charge numbers to one-click call:\n+13017158592\,\,95371313871# US\n+13126266799\,\,95371313871# US
URL:https://umdf.org/event/lhon-new-york-new-jersey-pennsylvania-connect-2024-12-19/
CATEGORIES:LHON,Support Meeting
ORGANIZER;CN="Kara Strittmatter":MAILTO:kara@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20271019T200000
DTEND;TZID=America/New_York:20271019T210000
DTSTAMP:20260226T150157Z
CREATED:20260226T150155Z
LAST-MODIFIED:20260226T150157Z
UID:10004432-1823976000-1823979600@umdf.org
SUMMARY:LHON Onset at Age 60+
DESCRIPTION:Were you affected by LHON at age 60 or older? Would you like to network with others in a similar situation? If so\, you are welcome to join our Zoom networking event exclusively for individuals affected at age 60 or older. This Zoom event is a great opportunity to get to know each other and share LHON-related experiences. This event is led by Howard Sumner and Jessica Loomer.\n\nJoin Details:\nOne option is to use Internet Audio to call at no charge at: https://umdf.zoom.us/j/95371313871 \nMeeting ID: 953 7131 3871 \nOr if your phone plan includes Unlimited Minutes\, then here are Toll Charge numbers to one-click call: \n+16699006833\,\,95371313871#\n+16468769923\,\,95371313871#
URL:https://umdf.org/event/lhon-onset-at-age-60-2/2027-10-19/
CATEGORIES:LHON,Support Meeting
ORGANIZER;CN="Kara Strittmatter":MAILTO:kara@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20271208T220000
DTEND;TZID=America/New_York:20271208T233000
DTSTAMP:20250313T140407Z
CREATED:20241001T160506Z
LAST-MODIFIED:20250313T140407Z
UID:10003980-1828303200-1828308600@umdf.org
SUMMARY:LHON West Connect
DESCRIPTION:The LHON Southwest & LHON Pacific Northwest groups have merged!\n\nThis Zoom event is a great opportunity to connect and discuss resources of interest to the Southwest LHON (previously California) & Northwest LHON communities! Consider joining the call to share your experiences with others in a similar situation. Contact Bob Banks with any questions at rwbanks@hotmail.com or Patrick Doolittle at doolittlepc@gmail.com with any questions. \nThere are also Facebook groups for those in the Southwest & Northwest areas: \n\nSouthwest: https://www.facebook.com/groups/1634812156795801\nNorthwest: https://www.facebook.com/groups/240239936350807\n\nJoin Details:\nOne option is to use Internet Audio to call at no charge at: https://umdf.zoom.us/j/95371313871 \nMeeting ID: 953 7131 3871 \nOr if your phone plan includes Unlimited Minutes\, then here are Toll Charge numbers to  one-click call:\n+16699006833\,\,95371313871#\n+16468769923\,\,95371313871#
URL:https://umdf.org/event/lhon-west-connect/2027-12-08/
CATEGORIES:LHON,Pacific,Southwest,Support Meeting,West
ORGANIZER;CN="Kara Strittmatter":MAILTO:kara@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20271209T200000
DTEND;TZID=America/New_York:20271209T210000
DTSTAMP:20250313T195021Z
CREATED:20240109T032102Z
LAST-MODIFIED:20250313T195021Z
UID:10004034-1828382400-1828386000@umdf.org
SUMMARY:LHON Southeast Connect
DESCRIPTION:Note: The DC-Area group merged with this group at the end of 2024. Please join this call moving forward if you are in the DC area. \nThis call is for those living in the DC area\, Georgia\, and Florida with an interest in LHON. Consider joining the call and sharing your experiences with others in a similar situation. \nThere are also Facebook groups for these areas: \n  \n\nDC area: https://www.facebook.com/groups/243446586122096\nGeorgia: https://www.facebook.com/groups/2157760391116970\nFlorida: https://www.facebook.com/groups/867332836666024\n\n  \nJoin Details:\nOne option is to use Internet Audio to call at no charge at: https://umdf.zoom.us/j/95371313871 \nMeeting ID: 953 7131 3871 \nOr if your phone plan includes Unlimited Minutes\, then here are Toll Charge numbers to one-click call:\n+16699006833\,\,95371313871#\n+16468769923\,\,95371313871#
URL:https://umdf.org/event/lhon-southeast-connect/2027-12-09/
CATEGORIES:LHON,Southeast,Support Meeting
ORGANIZER;CN="Kara Strittmatter":MAILTO:kara@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20271216T190000
DTEND;TZID=America/New_York:20271216T200000
DTSTAMP:20210727T145309Z
CREATED:20210727T145309Z
LAST-MODIFIED:20210727T145309Z
UID:10001167-1828983600-1828987200@umdf.org
SUMMARY:LHON - New York\, New Jersey\, Pennsylvania Connect
DESCRIPTION:Please Join Us! \nThis call for those living in New York\, New Jersey\, or Pennsylvania with an interest in LHON takes place quarterly on the third Thursday of the month at 7:00pm EST. Hosts Jim and Mary Tolve facilitate this call. Consider joining the call and sharing your experiences with others in a similar situation. \nThe following Facebook Groups are also available: \n\nNew York Group – Click here\nNew Jersey Group – Click here\nPennsylvania Group – Click here\n\nReach out to Jim Tolve at jetragnar@gmail.com with any questions. \nJoin Details:\nOne option is to use Internet Audio to call at no charge at:\nhttps://umdf.zoom.us/j/95371313871\nMeeting ID: 953 7131 3871 \nOr if your phone plan includes Unlimited Minutes\, then here are Toll Charge numbers to one-click call:\n+13017158592\,\,95371313871# US\n+13126266799\,\,95371313871# US
URL:https://umdf.org/event/lhon-new-york-new-jersey-pennsylvania-connect-2024-12-19/
CATEGORIES:LHON,Support Meeting
ORGANIZER;CN="Kara Strittmatter":MAILTO:kara@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20280412T220000
DTEND;TZID=America/New_York:20280412T233000
DTSTAMP:20250313T140407Z
CREATED:20241001T160506Z
LAST-MODIFIED:20250313T140407Z
UID:10003981-1839189600-1839195000@umdf.org
SUMMARY:LHON West Connect
DESCRIPTION:The LHON Southwest & LHON Pacific Northwest groups have merged!\n\nThis Zoom event is a great opportunity to connect and discuss resources of interest to the Southwest LHON (previously California) & Northwest LHON communities! Consider joining the call to share your experiences with others in a similar situation. Contact Bob Banks with any questions at rwbanks@hotmail.com or Patrick Doolittle at doolittlepc@gmail.com with any questions. \nThere are also Facebook groups for those in the Southwest & Northwest areas: \n\nSouthwest: https://www.facebook.com/groups/1634812156795801\nNorthwest: https://www.facebook.com/groups/240239936350807\n\nJoin Details:\nOne option is to use Internet Audio to call at no charge at: https://umdf.zoom.us/j/95371313871 \nMeeting ID: 953 7131 3871 \nOr if your phone plan includes Unlimited Minutes\, then here are Toll Charge numbers to  one-click call:\n+16699006833\,\,95371313871#\n+16468769923\,\,95371313871#
URL:https://umdf.org/event/lhon-west-connect/2028-04-12/
CATEGORIES:LHON,Pacific,Southwest,Support Meeting,West
ORGANIZER;CN="Kara Strittmatter":MAILTO:kara@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20280413T200000
DTEND;TZID=America/New_York:20280413T210000
DTSTAMP:20250313T195021Z
CREATED:20240109T032102Z
LAST-MODIFIED:20250313T195021Z
UID:10004035-1839268800-1839272400@umdf.org
SUMMARY:LHON Southeast Connect
DESCRIPTION:Note: The DC-Area group merged with this group at the end of 2024. Please join this call moving forward if you are in the DC area. \nThis call is for those living in the DC area\, Georgia\, and Florida with an interest in LHON. Consider joining the call and sharing your experiences with others in a similar situation. \nThere are also Facebook groups for these areas: \n  \n\nDC area: https://www.facebook.com/groups/243446586122096\nGeorgia: https://www.facebook.com/groups/2157760391116970\nFlorida: https://www.facebook.com/groups/867332836666024\n\n  \nJoin Details:\nOne option is to use Internet Audio to call at no charge at: https://umdf.zoom.us/j/95371313871 \nMeeting ID: 953 7131 3871 \nOr if your phone plan includes Unlimited Minutes\, then here are Toll Charge numbers to one-click call:\n+16699006833\,\,95371313871#\n+16468769923\,\,95371313871#
URL:https://umdf.org/event/lhon-southeast-connect/2028-04-13/
CATEGORIES:LHON,Southeast,Support Meeting
ORGANIZER;CN="Kara Strittmatter":MAILTO:kara@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20280418T200000
DTEND;TZID=America/New_York:20280418T210000
DTSTAMP:20260226T150157Z
CREATED:20260226T150155Z
LAST-MODIFIED:20260226T150157Z
UID:10004433-1839700800-1839704400@umdf.org
SUMMARY:LHON Onset at Age 60+
DESCRIPTION:Were you affected by LHON at age 60 or older? Would you like to network with others in a similar situation? If so\, you are welcome to join our Zoom networking event exclusively for individuals affected at age 60 or older. This Zoom event is a great opportunity to get to know each other and share LHON-related experiences. This event is led by Howard Sumner and Jessica Loomer.\n\nJoin Details:\nOne option is to use Internet Audio to call at no charge at: https://umdf.zoom.us/j/95371313871 \nMeeting ID: 953 7131 3871 \nOr if your phone plan includes Unlimited Minutes\, then here are Toll Charge numbers to one-click call: \n+16699006833\,\,95371313871#\n+16468769923\,\,95371313871#
URL:https://umdf.org/event/lhon-onset-at-age-60-2/2028-04-18/
CATEGORIES:LHON,Support Meeting
ORGANIZER;CN="Kara Strittmatter":MAILTO:kara@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20280809T220000
DTEND;TZID=America/New_York:20280809T233000
DTSTAMP:20250313T140407Z
CREATED:20241001T160506Z
LAST-MODIFIED:20250313T140407Z
UID:10003982-1849471200-1849476600@umdf.org
SUMMARY:LHON West Connect
DESCRIPTION:The LHON Southwest & LHON Pacific Northwest groups have merged!\n\nThis Zoom event is a great opportunity to connect and discuss resources of interest to the Southwest LHON (previously California) & Northwest LHON communities! Consider joining the call to share your experiences with others in a similar situation. Contact Bob Banks with any questions at rwbanks@hotmail.com or Patrick Doolittle at doolittlepc@gmail.com with any questions. \nThere are also Facebook groups for those in the Southwest & Northwest areas: \n\nSouthwest: https://www.facebook.com/groups/1634812156795801\nNorthwest: https://www.facebook.com/groups/240239936350807\n\nJoin Details:\nOne option is to use Internet Audio to call at no charge at: https://umdf.zoom.us/j/95371313871 \nMeeting ID: 953 7131 3871 \nOr if your phone plan includes Unlimited Minutes\, then here are Toll Charge numbers to  one-click call:\n+16699006833\,\,95371313871#\n+16468769923\,\,95371313871#
URL:https://umdf.org/event/lhon-west-connect/2028-08-09/
CATEGORIES:LHON,Pacific,Southwest,Support Meeting,West
ORGANIZER;CN="Kara Strittmatter":MAILTO:kara@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20280810T200000
DTEND;TZID=America/New_York:20280810T210000
DTSTAMP:20250313T195021Z
CREATED:20240109T032102Z
LAST-MODIFIED:20250313T195021Z
UID:10004036-1849550400-1849554000@umdf.org
SUMMARY:LHON Southeast Connect
DESCRIPTION:Note: The DC-Area group merged with this group at the end of 2024. Please join this call moving forward if you are in the DC area. \nThis call is for those living in the DC area\, Georgia\, and Florida with an interest in LHON. Consider joining the call and sharing your experiences with others in a similar situation. \nThere are also Facebook groups for these areas: \n  \n\nDC area: https://www.facebook.com/groups/243446586122096\nGeorgia: https://www.facebook.com/groups/2157760391116970\nFlorida: https://www.facebook.com/groups/867332836666024\n\n  \nJoin Details:\nOne option is to use Internet Audio to call at no charge at: https://umdf.zoom.us/j/95371313871 \nMeeting ID: 953 7131 3871 \nOr if your phone plan includes Unlimited Minutes\, then here are Toll Charge numbers to one-click call:\n+16699006833\,\,95371313871#\n+16468769923\,\,95371313871#
URL:https://umdf.org/event/lhon-southeast-connect/2028-08-10/
CATEGORIES:LHON,Southeast,Support Meeting
ORGANIZER;CN="Kara Strittmatter":MAILTO:kara@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20281017T200000
DTEND;TZID=America/New_York:20281017T210000
DTSTAMP:20260226T150157Z
CREATED:20260226T150155Z
LAST-MODIFIED:20260226T150157Z
UID:10004434-1855425600-1855429200@umdf.org
SUMMARY:LHON Onset at Age 60+
DESCRIPTION:Were you affected by LHON at age 60 or older? Would you like to network with others in a similar situation? If so\, you are welcome to join our Zoom networking event exclusively for individuals affected at age 60 or older. This Zoom event is a great opportunity to get to know each other and share LHON-related experiences. This event is led by Howard Sumner and Jessica Loomer.\n\nJoin Details:\nOne option is to use Internet Audio to call at no charge at: https://umdf.zoom.us/j/95371313871 \nMeeting ID: 953 7131 3871 \nOr if your phone plan includes Unlimited Minutes\, then here are Toll Charge numbers to one-click call: \n+16699006833\,\,95371313871#\n+16468769923\,\,95371313871#
URL:https://umdf.org/event/lhon-onset-at-age-60-2/2028-10-17/
CATEGORIES:LHON,Support Meeting
ORGANIZER;CN="Kara Strittmatter":MAILTO:kara@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20281213T220000
DTEND;TZID=America/New_York:20281213T233000
DTSTAMP:20250313T140407Z
CREATED:20241001T160506Z
LAST-MODIFIED:20250313T140407Z
UID:10003983-1860357600-1860363000@umdf.org
SUMMARY:LHON West Connect
DESCRIPTION:The LHON Southwest & LHON Pacific Northwest groups have merged!\n\nThis Zoom event is a great opportunity to connect and discuss resources of interest to the Southwest LHON (previously California) & Northwest LHON communities! Consider joining the call to share your experiences with others in a similar situation. Contact Bob Banks with any questions at rwbanks@hotmail.com or Patrick Doolittle at doolittlepc@gmail.com with any questions. \nThere are also Facebook groups for those in the Southwest & Northwest areas: \n\nSouthwest: https://www.facebook.com/groups/1634812156795801\nNorthwest: https://www.facebook.com/groups/240239936350807\n\nJoin Details:\nOne option is to use Internet Audio to call at no charge at: https://umdf.zoom.us/j/95371313871 \nMeeting ID: 953 7131 3871 \nOr if your phone plan includes Unlimited Minutes\, then here are Toll Charge numbers to  one-click call:\n+16699006833\,\,95371313871#\n+16468769923\,\,95371313871#
URL:https://umdf.org/event/lhon-west-connect/2028-12-13/
CATEGORIES:LHON,Pacific,Southwest,Support Meeting,West
ORGANIZER;CN="Kara Strittmatter":MAILTO:kara@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20281214T200000
DTEND;TZID=America/New_York:20281214T210000
DTSTAMP:20250313T195021Z
CREATED:20240109T032102Z
LAST-MODIFIED:20250313T195021Z
UID:10004037-1860436800-1860440400@umdf.org
SUMMARY:LHON Southeast Connect
DESCRIPTION:Note: The DC-Area group merged with this group at the end of 2024. Please join this call moving forward if you are in the DC area. \nThis call is for those living in the DC area\, Georgia\, and Florida with an interest in LHON. Consider joining the call and sharing your experiences with others in a similar situation. \nThere are also Facebook groups for these areas: \n  \n\nDC area: https://www.facebook.com/groups/243446586122096\nGeorgia: https://www.facebook.com/groups/2157760391116970\nFlorida: https://www.facebook.com/groups/867332836666024\n\n  \nJoin Details:\nOne option is to use Internet Audio to call at no charge at: https://umdf.zoom.us/j/95371313871 \nMeeting ID: 953 7131 3871 \nOr if your phone plan includes Unlimited Minutes\, then here are Toll Charge numbers to one-click call:\n+16699006833\,\,95371313871#\n+16468769923\,\,95371313871#
URL:https://umdf.org/event/lhon-southeast-connect/2028-12-14/
CATEGORIES:LHON,Southeast,Support Meeting
ORGANIZER;CN="Kara Strittmatter":MAILTO:kara@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20290411T220000
DTEND;TZID=America/New_York:20290411T233000
DTSTAMP:20250313T140407Z
CREATED:20241001T160506Z
LAST-MODIFIED:20250313T140407Z
UID:10003984-1870639200-1870644600@umdf.org
SUMMARY:LHON West Connect
DESCRIPTION:The LHON Southwest & LHON Pacific Northwest groups have merged!\n\nThis Zoom event is a great opportunity to connect and discuss resources of interest to the Southwest LHON (previously California) & Northwest LHON communities! Consider joining the call to share your experiences with others in a similar situation. Contact Bob Banks with any questions at rwbanks@hotmail.com or Patrick Doolittle at doolittlepc@gmail.com with any questions. \nThere are also Facebook groups for those in the Southwest & Northwest areas: \n\nSouthwest: https://www.facebook.com/groups/1634812156795801\nNorthwest: https://www.facebook.com/groups/240239936350807\n\nJoin Details:\nOne option is to use Internet Audio to call at no charge at: https://umdf.zoom.us/j/95371313871 \nMeeting ID: 953 7131 3871 \nOr if your phone plan includes Unlimited Minutes\, then here are Toll Charge numbers to  one-click call:\n+16699006833\,\,95371313871#\n+16468769923\,\,95371313871#
URL:https://umdf.org/event/lhon-west-connect/2029-04-11/
CATEGORIES:LHON,Pacific,Southwest,Support Meeting,West
ORGANIZER;CN="Kara Strittmatter":MAILTO:kara@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20290412T200000
DTEND;TZID=America/New_York:20290412T210000
DTSTAMP:20250313T195021Z
CREATED:20240109T032102Z
LAST-MODIFIED:20250313T195021Z
UID:10004038-1870718400-1870722000@umdf.org
SUMMARY:LHON Southeast Connect
DESCRIPTION:Note: The DC-Area group merged with this group at the end of 2024. Please join this call moving forward if you are in the DC area. \nThis call is for those living in the DC area\, Georgia\, and Florida with an interest in LHON. Consider joining the call and sharing your experiences with others in a similar situation. \nThere are also Facebook groups for these areas: \n  \n\nDC area: https://www.facebook.com/groups/243446586122096\nGeorgia: https://www.facebook.com/groups/2157760391116970\nFlorida: https://www.facebook.com/groups/867332836666024\n\n  \nJoin Details:\nOne option is to use Internet Audio to call at no charge at: https://umdf.zoom.us/j/95371313871 \nMeeting ID: 953 7131 3871 \nOr if your phone plan includes Unlimited Minutes\, then here are Toll Charge numbers to one-click call:\n+16699006833\,\,95371313871#\n+16468769923\,\,95371313871#
URL:https://umdf.org/event/lhon-southeast-connect/2029-04-12/
CATEGORIES:LHON,Southeast,Support Meeting
ORGANIZER;CN="Kara Strittmatter":MAILTO:kara@umdf.org
END:VEVENT
END:VCALENDAR