Kara Strittmatter
Next Generation Therapeutics Awareness Week Virtual Event
Monday, September 19 from 5pm to 6:30pm Eastern Join The Children's Hospital of Philadelphia (CHOP) and the United Mitochondrial Disease Foundation (UMDF) on September 19 for this special virtual event during Mitochondrial Disease Awareness Week. The goal of this annual event is to speak with pharmaceutical partners and families to learn about the challenges and complexities of delivering life-giving therapies to patients […]
LHON – Midwest Connect
This call is for those living in the Midwest with an interest in LHON. Consider joining the call and sharing your experiences with others in a similar situation. This call takes place quarterly on the Third Monday of each month at 7pm-8pm Central/8:00pm-9:00pm Eastern. March 21 from 8:00pm – 9:00pm Eastern June 20 from 8:00pm […]
Webinar – mitoSHARE – What We’ve Learned, and What Comes Next
mitoSHARE – What We’ve Learned, and What Comes Next Tune in as Dr. Philip Yeske, UMDF's Science & Alliance Officer, gives an update on UMDF’s patient registry, mitoSHARE, six months after the platform's launch. Dr. Yeske will also provide a primer on the importance of patient registries like mitoSHARE, outline what we've already learned, and […]
UMDF Ask the Mito Doc Webcast Series – Impact and Highlights from Mitochondrial Medicine 2022
We are pleased to provide Highlights from UMDF Mitochondrial Medicine 2022 and hear from our panel of clinicians as to the impact of sessions this past year - what were the biggest take aways from a clinician perspective. Join us and ask your questions!
LHON On-set Over 60
Reach out to Lissa Poincenot at lhonpoince@aol.com with any questions. Join Details: One option is to use Internet Audio to call at no charge at: https://umdf.zoom.us/j/95371313871 Meeting ID: 953 7131 3871 Or if your phone plan includes Unlimited Minutes, then here are Toll Charge numbers to one-click call: +13017158592,,95371313871# US +13126266799,,95371313871# US
UMDF Ask the Mito Doc Webcast Series – Ophthalmic Manifestations of Mitochondrial Diseases
In honor of Blind Awareness Month, Dr. Rustum Karanjia will share a presentation on Ophthalmic Manifestations of Mitochondrial Diseases. Join us and have your questions ready for Dr. Karanjia!
UMDF Ask the Mito Doc Webcast Series – Maintaining Immune Health in Mitochondrial Disease
Fall and Winter brings in the cold/flu/COVID season and many holidays to navigate. Join us to hear from Dr. Peter McGuire and get an update on current trends with Immune Health and Mito.
UMDF Ask the Mito Doc Webcast Series – What to Expect as an Adult Mito Patient
This month, Dr. Michio Hirano will repeat his Mito Med 2022 talk which is focused on our Adult Mito Community. This is a great opportunity to hear from Dr. Hirano and ask your questions!
LHON – Midwest Connect
This call is for those living in the Midwest with an interest in LHON. Consider joining the call and sharing your experiences with others in a similar situation. This call takes place quarterly on the Third Monday of each month at 7pm-8pm Central/8:00pm-9:00pm Eastern. March 21 from 8:00pm – 9:00pm Eastern June 20 from 8:00pm […]
Special UMDF Clinical Trial Update – UMDF Bench-to-Bedside
It is time to get an update regarding Clinical Trials - those recruiting and/or those that have general information to share.
UMDF Ask the Mito Doc Webcast Series – Conserving your Energy in the New Year
We are kicking off 2023 with a special Ask the Mito Doc Webcast - one of our very own UMDF Support Ambassadors will tips on conserving energy in the New Year and Dr. Zolkipli Cunningham will field medical questions on the subject.
Moms of LHON-Affected “Kids of All Ages” (Wednesday)
Join us for the Moms of LHON-Affected "Kids of All Ages" virtual meeting.