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DTEND;TZID=America/New_York:20301019T120000
DTSTAMP:20250206T185233Z
CREATED:20240111T130250Z
LAST-MODIFIED:20250206T185233Z
UID:10004356-1918634400-1918641600@umdf.org
SUMMARY:Northeast PA Support Meeting
DESCRIPTION:  \nSupport Meeting- Northeast PA \nThird Saturday of each Month- In-Person \n10:00pm – 12:00pm Eastern\nSt. Luke’s Hospital\nPriscilla Payne Hurd Education Room\nRoom 104\n801 Ostrum Street\nBethlehem\, PA 18015\n \n  \nYou are not alone. Join us to share coping tips and connect with others. \nWe will meet the 3rd Saturday of each month! \n1:00pm – 3:00pm \nFor questions\, please contact Grace Robinson or Janelle Frank\, the Support Group Leaders:\ngracerobinson13@gmail.com or janelle.frank13@gmail.com
URL:https://umdf.org/event/support-group-meeting-nepa-2-2021-01-16-2021-02-20-2-2/2030-10-19/
CATEGORIES:Northeast
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20301021T200000
DTEND;TZID=America/New_York:20301021T210000
DTSTAMP:20260209T142232Z
CREATED:20240117T130219Z
LAST-MODIFIED:20260209T142232Z
UID:10004335-1918843200-1918846800@umdf.org
SUMMARY:Parent and Caregiver Virtual Support Meeting
DESCRIPTION:Parent and Caregiver Virtual Support Meeting \nHello Parents and Caregivers impacted by Mitochondrial Disease! Please join us for a Parent and Caregiver Virtual Support Meeting. \nWe will get to know each other\, share resources\, and build community! \nJoin us for a VIRTUAL MEETING!\nThe THIRD Monday of every month!\n8:00pm-9:00pm ET\nRegister HERE \nAfter registering\, you will receive a confirmation email containing information about joining the meeting. \nFor questions\, please email Margaret Moore at: margaret.moore@umdf.org \nTHANK YOU TO OUR SPONSORS \nEdith L. Trees Charitable Trust \nAstellas \nJack Edwards Family Impact Fund
URL:https://umdf.org/event/parent-and-caregiver-virtual-support-meeting/2030-10-21/
CATEGORIES:Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20301104T100000
DTEND;TZID=America/Los_Angeles:20301104T110000
DTSTAMP:20260826T133654Z
CREATED:20240708T192355Z
LAST-MODIFIED:20260826T133654Z
UID:10004631-1920016800-1920020400@umdf.org
SUMMARY:California Virtual Support Group Meeting
DESCRIPTION:UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips\, share your story and connect with others. We hope you will attend and see that you are not alone. \nThe first Monday of each month• 10:00am – 11:00am Pacific \nLearn more & register here. \nRegistration is required\, and you will receive a confirmation email with information to join the meeting. If you have any questions\, contact Margaret Moore at margaret.moore@5mr.c80.myftpupload.com or 412-354-1553. \nVisit the UMDF Event Calendar for all updates and upcoming events here. \nSpecial Thanks to our Sponsors\nEdith L. Trees Charitable Trust
URL:https://umdf.org/event/california-virtual-support-group-meeting-2022-09-05-3-2-2-2/2030-11-04/
CATEGORIES:Pacific,Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20301107T200000
DTEND;TZID=America/New_York:20301107T210000
DTSTAMP:20260614T214643Z
CREATED:20231019T142537Z
LAST-MODIFIED:20260614T214643Z
UID:10004330-1920312000-1920315600@umdf.org
SUMMARY:Adult Virtual Support Meeting
DESCRIPTION:Adult Virtual Support Meeting \nHello Adults impacted by Mitochondrial Disease! Please join us for an Adult Virtual Support Meeting. \nWe will get to know each other\, share resources\, and build community! \nJoin us for a VIRTUAL MEETING!\nThe FIRST Thursday of every month!\n8:00pm-9:00pm ET\nRegister HERE \nAfter registering\, you will receive a confirmation email containing information about joining the meeting. \nFor questions\, please email Margaret Moore at: margaret.moore@5mr.c80.myftpupload.com \nTHANK YOU TO OUR SPONSORS \nEdith L. Trees Charitable Trust \nAstellas \nJack Edwards Family Impact Fund \n  \n 
URL:https://umdf.org/event/adult-virtual-support-meetingsep2022-2-2/2030-11-07/
CATEGORIES:Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20301116T100000
DTEND;TZID=America/New_York:20301116T120000
DTSTAMP:20250206T185233Z
CREATED:20240111T130250Z
LAST-MODIFIED:20250206T185233Z
UID:10004357-1921053600-1921060800@umdf.org
SUMMARY:Northeast PA Support Meeting
DESCRIPTION:  \nSupport Meeting- Northeast PA \nThird Saturday of each Month- In-Person \n10:00pm – 12:00pm Eastern\nSt. Luke’s Hospital\nPriscilla Payne Hurd Education Room\nRoom 104\n801 Ostrum Street\nBethlehem\, PA 18015\n \n  \nYou are not alone. Join us to share coping tips and connect with others. \nWe will meet the 3rd Saturday of each month! \n1:00pm – 3:00pm \nFor questions\, please contact Grace Robinson or Janelle Frank\, the Support Group Leaders:\ngracerobinson13@gmail.com or janelle.frank13@gmail.com
URL:https://umdf.org/event/support-group-meeting-nepa-2-2021-01-16-2021-02-20-2-2/2030-11-16/
CATEGORIES:Northeast
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20301118T200000
DTEND;TZID=America/New_York:20301118T210000
DTSTAMP:20260209T142232Z
CREATED:20240117T130219Z
LAST-MODIFIED:20260209T142232Z
UID:10004336-1921262400-1921266000@umdf.org
SUMMARY:Parent and Caregiver Virtual Support Meeting
DESCRIPTION:Parent and Caregiver Virtual Support Meeting \nHello Parents and Caregivers impacted by Mitochondrial Disease! Please join us for a Parent and Caregiver Virtual Support Meeting. \nWe will get to know each other\, share resources\, and build community! \nJoin us for a VIRTUAL MEETING!\nThe THIRD Monday of every month!\n8:00pm-9:00pm ET\nRegister HERE \nAfter registering\, you will receive a confirmation email containing information about joining the meeting. \nFor questions\, please email Margaret Moore at: margaret.moore@umdf.org \nTHANK YOU TO OUR SPONSORS \nEdith L. Trees Charitable Trust \nAstellas \nJack Edwards Family Impact Fund
URL:https://umdf.org/event/parent-and-caregiver-virtual-support-meeting/2030-11-18/
CATEGORIES:Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20301120T120000
DTEND;TZID=America/Los_Angeles:20301120T130000
DTSTAMP:20260928T190837Z
CREATED:20260928T190837Z
LAST-MODIFIED:20260928T190837Z
UID:10004828-1921406400-1921410000@umdf.org
SUMMARY:Rare Disease Drug Access Virtual Support Group Meeting
DESCRIPTION:Rare Disease Drug Access Support Group\nWednesday\, October 21\, 2026 | 12:00 p.m. ET (11:00 a.m. CT\, 10:00 a.m. MT\, 9:00 a.m. PT)\nVirtual | Free \n[REGISTER NOW] \nGetting a treatment prescribed is one step. Getting it covered\, filled\, and delivered can be a whole separate process. With new therapies becoming available for people living with mitochondrial disease\, more families are dealing with prior authorizations\, denials\, appeals\, and specialty pharmacies for the first time. \nYou don’t have to figure it out alone. Join UMDF for a virtual support group for patients\, parents\, and caregivers who are working to get access to medications and treatments for mitochondrial disease. \nTogether we’ll talk about:\n• Prior authorizations and what to do when a claim is denied\n• Appeals\, including what information and letters from your care team can help\n• Expanded Access Programs\, copay assistance and patient assistance programs\n• Working with specialty pharmacies and manufacturer support programs\n• Keeping records organized and staying persistent without burning out \nThe group is led by Margaret\, Bethany and the UMDF Support Ambassadors and is a space to ask questions\, share what has worked for you\, and learn from others who understand. \nWho should join: Adults living with mitochondrial disease\, parents\, and caregivers. You’re welcome whether you’re just starting the process or have been at it for a while. \nAfter you register\, you’ll get an email with the link to join. Can’t make it? Our Patient Concierge team can help with insurance questions any time: (888) 900-6486 or support@umdf.org. You can also visit umdf.org/insurance for resources. \nThis group offers peer support and general information. It is not medical\, legal\, or insurance advice. Please talk with your care team and insurance provider about your specific situation. \nThank you for being part of the mito community. We look forward to seeing you on October 21. \nWith gratitude\,\nThe UMDF Support Team \nUnited Mitochondrial Disease Foundation | umdf.org \n 
URL:https://umdf.org/event/rdda/2030-11-20/
CATEGORIES:Pacific,Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20301202T100000
DTEND;TZID=America/Los_Angeles:20301202T110000
DTSTAMP:20260826T133654Z
CREATED:20240708T192355Z
LAST-MODIFIED:20260826T133654Z
UID:10004632-1922436000-1922439600@umdf.org
SUMMARY:California Virtual Support Group Meeting
DESCRIPTION:UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips\, share your story and connect with others. We hope you will attend and see that you are not alone. \nThe first Monday of each month• 10:00am – 11:00am Pacific \nLearn more & register here. \nRegistration is required\, and you will receive a confirmation email with information to join the meeting. If you have any questions\, contact Margaret Moore at margaret.moore@5mr.c80.myftpupload.com or 412-354-1553. \nVisit the UMDF Event Calendar for all updates and upcoming events here. \nSpecial Thanks to our Sponsors\nEdith L. Trees Charitable Trust
URL:https://umdf.org/event/california-virtual-support-group-meeting-2022-09-05-3-2-2-2/2030-12-02/
CATEGORIES:Pacific,Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20301205T200000
DTEND;TZID=America/New_York:20301205T210000
DTSTAMP:20260614T214643Z
CREATED:20231019T142537Z
LAST-MODIFIED:20260614T214643Z
UID:10004331-1922731200-1922734800@umdf.org
SUMMARY:Adult Virtual Support Meeting
DESCRIPTION:Adult Virtual Support Meeting \nHello Adults impacted by Mitochondrial Disease! Please join us for an Adult Virtual Support Meeting. \nWe will get to know each other\, share resources\, and build community! \nJoin us for a VIRTUAL MEETING!\nThe FIRST Thursday of every month!\n8:00pm-9:00pm ET\nRegister HERE \nAfter registering\, you will receive a confirmation email containing information about joining the meeting. \nFor questions\, please email Margaret Moore at: margaret.moore@5mr.c80.myftpupload.com \nTHANK YOU TO OUR SPONSORS \nEdith L. Trees Charitable Trust \nAstellas \nJack Edwards Family Impact Fund \n  \n 
URL:https://umdf.org/event/adult-virtual-support-meetingsep2022-2-2/2030-12-05/
CATEGORIES:Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20301216T200000
DTEND;TZID=America/New_York:20301216T210000
DTSTAMP:20260209T142232Z
CREATED:20240117T130219Z
LAST-MODIFIED:20260209T142232Z
UID:10004337-1923681600-1923685200@umdf.org
SUMMARY:Parent and Caregiver Virtual Support Meeting
DESCRIPTION:Parent and Caregiver Virtual Support Meeting \nHello Parents and Caregivers impacted by Mitochondrial Disease! Please join us for a Parent and Caregiver Virtual Support Meeting. \nWe will get to know each other\, share resources\, and build community! \nJoin us for a VIRTUAL MEETING!\nThe THIRD Monday of every month!\n8:00pm-9:00pm ET\nRegister HERE \nAfter registering\, you will receive a confirmation email containing information about joining the meeting. \nFor questions\, please email Margaret Moore at: margaret.moore@umdf.org \nTHANK YOU TO OUR SPONSORS \nEdith L. Trees Charitable Trust \nAstellas \nJack Edwards Family Impact Fund
URL:https://umdf.org/event/parent-and-caregiver-virtual-support-meeting/2030-12-16/
CATEGORIES:Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20301218T120000
DTEND;TZID=America/Los_Angeles:20301218T130000
DTSTAMP:20260928T190837Z
CREATED:20260928T190837Z
LAST-MODIFIED:20260928T190837Z
UID:10004829-1923825600-1923829200@umdf.org
SUMMARY:Rare Disease Drug Access Virtual Support Group Meeting
DESCRIPTION:Rare Disease Drug Access Support Group\nWednesday\, October 21\, 2026 | 12:00 p.m. ET (11:00 a.m. CT\, 10:00 a.m. MT\, 9:00 a.m. PT)\nVirtual | Free \n[REGISTER NOW] \nGetting a treatment prescribed is one step. Getting it covered\, filled\, and delivered can be a whole separate process. With new therapies becoming available for people living with mitochondrial disease\, more families are dealing with prior authorizations\, denials\, appeals\, and specialty pharmacies for the first time. \nYou don’t have to figure it out alone. Join UMDF for a virtual support group for patients\, parents\, and caregivers who are working to get access to medications and treatments for mitochondrial disease. \nTogether we’ll talk about:\n• Prior authorizations and what to do when a claim is denied\n• Appeals\, including what information and letters from your care team can help\n• Expanded Access Programs\, copay assistance and patient assistance programs\n• Working with specialty pharmacies and manufacturer support programs\n• Keeping records organized and staying persistent without burning out \nThe group is led by Margaret\, Bethany and the UMDF Support Ambassadors and is a space to ask questions\, share what has worked for you\, and learn from others who understand. \nWho should join: Adults living with mitochondrial disease\, parents\, and caregivers. You’re welcome whether you’re just starting the process or have been at it for a while. \nAfter you register\, you’ll get an email with the link to join. Can’t make it? Our Patient Concierge team can help with insurance questions any time: (888) 900-6486 or support@umdf.org. You can also visit umdf.org/insurance for resources. \nThis group offers peer support and general information. It is not medical\, legal\, or insurance advice. Please talk with your care team and insurance provider about your specific situation. \nThank you for being part of the mito community. We look forward to seeing you on October 21. \nWith gratitude\,\nThe UMDF Support Team \nUnited Mitochondrial Disease Foundation | umdf.org \n 
URL:https://umdf.org/event/rdda/2030-12-18/
CATEGORIES:Pacific,Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20301221T100000
DTEND;TZID=America/New_York:20301221T120000
DTSTAMP:20250206T185233Z
CREATED:20240111T130250Z
LAST-MODIFIED:20250206T185233Z
UID:10004358-1924077600-1924084800@umdf.org
SUMMARY:Northeast PA Support Meeting
DESCRIPTION:  \nSupport Meeting- Northeast PA \nThird Saturday of each Month- In-Person \n10:00pm – 12:00pm Eastern\nSt. Luke’s Hospital\nPriscilla Payne Hurd Education Room\nRoom 104\n801 Ostrum Street\nBethlehem\, PA 18015\n \n  \nYou are not alone. Join us to share coping tips and connect with others. \nWe will meet the 3rd Saturday of each month! \n1:00pm – 3:00pm \nFor questions\, please contact Grace Robinson or Janelle Frank\, the Support Group Leaders:\ngracerobinson13@gmail.com or janelle.frank13@gmail.com
URL:https://umdf.org/event/support-group-meeting-nepa-2-2021-01-16-2021-02-20-2-2/2030-12-21/
CATEGORIES:Northeast
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20310102T200000
DTEND;TZID=America/New_York:20310102T210000
DTSTAMP:20260614T214643Z
CREATED:20231019T142537Z
LAST-MODIFIED:20260614T214643Z
UID:10004339-1925150400-1925154000@umdf.org
SUMMARY:Adult Virtual Support Meeting
DESCRIPTION:Adult Virtual Support Meeting \nHello Adults impacted by Mitochondrial Disease! Please join us for an Adult Virtual Support Meeting. \nWe will get to know each other\, share resources\, and build community! \nJoin us for a VIRTUAL MEETING!\nThe FIRST Thursday of every month!\n8:00pm-9:00pm ET\nRegister HERE \nAfter registering\, you will receive a confirmation email containing information about joining the meeting. \nFor questions\, please email Margaret Moore at: margaret.moore@5mr.c80.myftpupload.com \nTHANK YOU TO OUR SPONSORS \nEdith L. Trees Charitable Trust \nAstellas \nJack Edwards Family Impact Fund \n  \n 
URL:https://umdf.org/event/adult-virtual-support-meetingsep2022-2-2/2031-01-02/
CATEGORIES:Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20310106T100000
DTEND;TZID=America/Los_Angeles:20310106T110000
DTSTAMP:20260826T133654Z
CREATED:20240708T192355Z
LAST-MODIFIED:20260826T133654Z
UID:10004633-1925460000-1925463600@umdf.org
SUMMARY:California Virtual Support Group Meeting
DESCRIPTION:UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips\, share your story and connect with others. We hope you will attend and see that you are not alone. \nThe first Monday of each month• 10:00am – 11:00am Pacific \nLearn more & register here. \nRegistration is required\, and you will receive a confirmation email with information to join the meeting. If you have any questions\, contact Margaret Moore at margaret.moore@5mr.c80.myftpupload.com or 412-354-1553. \nVisit the UMDF Event Calendar for all updates and upcoming events here. \nSpecial Thanks to our Sponsors\nEdith L. Trees Charitable Trust
URL:https://umdf.org/event/california-virtual-support-group-meeting-2022-09-05-3-2-2-2/2031-01-06/
CATEGORIES:Pacific,Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20310115T120000
DTEND;TZID=America/Los_Angeles:20310115T130000
DTSTAMP:20260928T190837Z
CREATED:20260928T190837Z
LAST-MODIFIED:20260928T190837Z
UID:10004830-1926244800-1926248400@umdf.org
SUMMARY:Rare Disease Drug Access Virtual Support Group Meeting
DESCRIPTION:Rare Disease Drug Access Support Group\nWednesday\, October 21\, 2026 | 12:00 p.m. ET (11:00 a.m. CT\, 10:00 a.m. MT\, 9:00 a.m. PT)\nVirtual | Free \n[REGISTER NOW] \nGetting a treatment prescribed is one step. Getting it covered\, filled\, and delivered can be a whole separate process. With new therapies becoming available for people living with mitochondrial disease\, more families are dealing with prior authorizations\, denials\, appeals\, and specialty pharmacies for the first time. \nYou don’t have to figure it out alone. Join UMDF for a virtual support group for patients\, parents\, and caregivers who are working to get access to medications and treatments for mitochondrial disease. \nTogether we’ll talk about:\n• Prior authorizations and what to do when a claim is denied\n• Appeals\, including what information and letters from your care team can help\n• Expanded Access Programs\, copay assistance and patient assistance programs\n• Working with specialty pharmacies and manufacturer support programs\n• Keeping records organized and staying persistent without burning out \nThe group is led by Margaret\, Bethany and the UMDF Support Ambassadors and is a space to ask questions\, share what has worked for you\, and learn from others who understand. \nWho should join: Adults living with mitochondrial disease\, parents\, and caregivers. You’re welcome whether you’re just starting the process or have been at it for a while. \nAfter you register\, you’ll get an email with the link to join. Can’t make it? Our Patient Concierge team can help with insurance questions any time: (888) 900-6486 or support@umdf.org. You can also visit umdf.org/insurance for resources. \nThis group offers peer support and general information. It is not medical\, legal\, or insurance advice. Please talk with your care team and insurance provider about your specific situation. \nThank you for being part of the mito community. We look forward to seeing you on October 21. \nWith gratitude\,\nThe UMDF Support Team \nUnited Mitochondrial Disease Foundation | umdf.org \n 
URL:https://umdf.org/event/rdda/2031-01-15/
CATEGORIES:Pacific,Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20310118T100000
DTEND;TZID=America/New_York:20310118T120000
DTSTAMP:20250206T185233Z
CREATED:20240111T130250Z
LAST-MODIFIED:20250206T185233Z
UID:10004359-1926496800-1926504000@umdf.org
SUMMARY:Northeast PA Support Meeting
DESCRIPTION:  \nSupport Meeting- Northeast PA \nThird Saturday of each Month- In-Person \n10:00pm – 12:00pm Eastern\nSt. Luke’s Hospital\nPriscilla Payne Hurd Education Room\nRoom 104\n801 Ostrum Street\nBethlehem\, PA 18015\n \n  \nYou are not alone. Join us to share coping tips and connect with others. \nWe will meet the 3rd Saturday of each month! \n1:00pm – 3:00pm \nFor questions\, please contact Grace Robinson or Janelle Frank\, the Support Group Leaders:\ngracerobinson13@gmail.com or janelle.frank13@gmail.com
URL:https://umdf.org/event/support-group-meeting-nepa-2-2021-01-16-2021-02-20-2-2/2031-01-18/
CATEGORIES:Northeast
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20310120T200000
DTEND;TZID=America/New_York:20310120T210000
DTSTAMP:20260209T142232Z
CREATED:20240117T130219Z
LAST-MODIFIED:20260209T142232Z
UID:10004347-1926705600-1926709200@umdf.org
SUMMARY:Parent and Caregiver Virtual Support Meeting
DESCRIPTION:Parent and Caregiver Virtual Support Meeting \nHello Parents and Caregivers impacted by Mitochondrial Disease! Please join us for a Parent and Caregiver Virtual Support Meeting. \nWe will get to know each other\, share resources\, and build community! \nJoin us for a VIRTUAL MEETING!\nThe THIRD Monday of every month!\n8:00pm-9:00pm ET\nRegister HERE \nAfter registering\, you will receive a confirmation email containing information about joining the meeting. \nFor questions\, please email Margaret Moore at: margaret.moore@umdf.org \nTHANK YOU TO OUR SPONSORS \nEdith L. Trees Charitable Trust \nAstellas \nJack Edwards Family Impact Fund
URL:https://umdf.org/event/parent-and-caregiver-virtual-support-meeting/2031-01-20/
CATEGORIES:Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20310203T100000
DTEND;TZID=America/Los_Angeles:20310203T110000
DTSTAMP:20260826T133654Z
CREATED:20240708T192355Z
LAST-MODIFIED:20260826T133654Z
UID:10004634-1927879200-1927882800@umdf.org
SUMMARY:California Virtual Support Group Meeting
DESCRIPTION:UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips\, share your story and connect with others. We hope you will attend and see that you are not alone. \nThe first Monday of each month• 10:00am – 11:00am Pacific \nLearn more & register here. \nRegistration is required\, and you will receive a confirmation email with information to join the meeting. If you have any questions\, contact Margaret Moore at margaret.moore@5mr.c80.myftpupload.com or 412-354-1553. \nVisit the UMDF Event Calendar for all updates and upcoming events here. \nSpecial Thanks to our Sponsors\nEdith L. Trees Charitable Trust
URL:https://umdf.org/event/california-virtual-support-group-meeting-2022-09-05-3-2-2-2/2031-02-03/
CATEGORIES:Pacific,Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20310206T200000
DTEND;TZID=America/New_York:20310206T210000
DTSTAMP:20260614T214643Z
CREATED:20231019T142537Z
LAST-MODIFIED:20260614T214643Z
UID:10004446-1928174400-1928178000@umdf.org
SUMMARY:Adult Virtual Support Meeting
DESCRIPTION:Adult Virtual Support Meeting \nHello Adults impacted by Mitochondrial Disease! Please join us for an Adult Virtual Support Meeting. \nWe will get to know each other\, share resources\, and build community! \nJoin us for a VIRTUAL MEETING!\nThe FIRST Thursday of every month!\n8:00pm-9:00pm ET\nRegister HERE \nAfter registering\, you will receive a confirmation email containing information about joining the meeting. \nFor questions\, please email Margaret Moore at: margaret.moore@5mr.c80.myftpupload.com \nTHANK YOU TO OUR SPONSORS \nEdith L. Trees Charitable Trust \nAstellas \nJack Edwards Family Impact Fund \n  \n 
URL:https://umdf.org/event/adult-virtual-support-meetingsep2022-2-2/2031-02-06/
CATEGORIES:Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20310215T100000
DTEND;TZID=America/New_York:20310215T120000
DTSTAMP:20250206T185233Z
CREATED:20240111T130250Z
LAST-MODIFIED:20250206T185233Z
UID:10004360-1928916000-1928923200@umdf.org
SUMMARY:Northeast PA Support Meeting
DESCRIPTION:  \nSupport Meeting- Northeast PA \nThird Saturday of each Month- In-Person \n10:00pm – 12:00pm Eastern\nSt. Luke’s Hospital\nPriscilla Payne Hurd Education Room\nRoom 104\n801 Ostrum Street\nBethlehem\, PA 18015\n \n  \nYou are not alone. Join us to share coping tips and connect with others. \nWe will meet the 3rd Saturday of each month! \n1:00pm – 3:00pm \nFor questions\, please contact Grace Robinson or Janelle Frank\, the Support Group Leaders:\ngracerobinson13@gmail.com or janelle.frank13@gmail.com
URL:https://umdf.org/event/support-group-meeting-nepa-2-2021-01-16-2021-02-20-2-2/2031-02-15/
CATEGORIES:Northeast
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20310219T120000
DTEND;TZID=America/Los_Angeles:20310219T130000
DTSTAMP:20260928T190837Z
CREATED:20260928T190837Z
LAST-MODIFIED:20260928T190837Z
UID:10004831-1929268800-1929272400@umdf.org
SUMMARY:Rare Disease Drug Access Virtual Support Group Meeting
DESCRIPTION:Rare Disease Drug Access Support Group\nWednesday\, October 21\, 2026 | 12:00 p.m. ET (11:00 a.m. CT\, 10:00 a.m. MT\, 9:00 a.m. PT)\nVirtual | Free \n[REGISTER NOW] \nGetting a treatment prescribed is one step. Getting it covered\, filled\, and delivered can be a whole separate process. With new therapies becoming available for people living with mitochondrial disease\, more families are dealing with prior authorizations\, denials\, appeals\, and specialty pharmacies for the first time. \nYou don’t have to figure it out alone. Join UMDF for a virtual support group for patients\, parents\, and caregivers who are working to get access to medications and treatments for mitochondrial disease. \nTogether we’ll talk about:\n• Prior authorizations and what to do when a claim is denied\n• Appeals\, including what information and letters from your care team can help\n• Expanded Access Programs\, copay assistance and patient assistance programs\n• Working with specialty pharmacies and manufacturer support programs\n• Keeping records organized and staying persistent without burning out \nThe group is led by Margaret\, Bethany and the UMDF Support Ambassadors and is a space to ask questions\, share what has worked for you\, and learn from others who understand. \nWho should join: Adults living with mitochondrial disease\, parents\, and caregivers. You’re welcome whether you’re just starting the process or have been at it for a while. \nAfter you register\, you’ll get an email with the link to join. Can’t make it? Our Patient Concierge team can help with insurance questions any time: (888) 900-6486 or support@umdf.org. You can also visit umdf.org/insurance for resources. \nThis group offers peer support and general information. It is not medical\, legal\, or insurance advice. Please talk with your care team and insurance provider about your specific situation. \nThank you for being part of the mito community. We look forward to seeing you on October 21. \nWith gratitude\,\nThe UMDF Support Team \nUnited Mitochondrial Disease Foundation | umdf.org \n 
URL:https://umdf.org/event/rdda/2031-02-19/
CATEGORIES:Pacific,Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20310303T100000
DTEND;TZID=America/Los_Angeles:20310303T110000
DTSTAMP:20260826T133654Z
CREATED:20240708T192355Z
LAST-MODIFIED:20260826T133654Z
UID:10004635-1930298400-1930302000@umdf.org
SUMMARY:California Virtual Support Group Meeting
DESCRIPTION:UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips\, share your story and connect with others. We hope you will attend and see that you are not alone. \nThe first Monday of each month• 10:00am – 11:00am Pacific \nLearn more & register here. \nRegistration is required\, and you will receive a confirmation email with information to join the meeting. If you have any questions\, contact Margaret Moore at margaret.moore@5mr.c80.myftpupload.com or 412-354-1553. \nVisit the UMDF Event Calendar for all updates and upcoming events here. \nSpecial Thanks to our Sponsors\nEdith L. Trees Charitable Trust
URL:https://umdf.org/event/california-virtual-support-group-meeting-2022-09-05-3-2-2-2/2031-03-03/
CATEGORIES:Pacific,Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20310306T200000
DTEND;TZID=America/New_York:20310306T210000
DTSTAMP:20260614T214643Z
CREATED:20231019T142537Z
LAST-MODIFIED:20260614T214643Z
UID:10004447-1930593600-1930597200@umdf.org
SUMMARY:Adult Virtual Support Meeting
DESCRIPTION:Adult Virtual Support Meeting \nHello Adults impacted by Mitochondrial Disease! Please join us for an Adult Virtual Support Meeting. \nWe will get to know each other\, share resources\, and build community! \nJoin us for a VIRTUAL MEETING!\nThe FIRST Thursday of every month!\n8:00pm-9:00pm ET\nRegister HERE \nAfter registering\, you will receive a confirmation email containing information about joining the meeting. \nFor questions\, please email Margaret Moore at: margaret.moore@5mr.c80.myftpupload.com \nTHANK YOU TO OUR SPONSORS \nEdith L. Trees Charitable Trust \nAstellas \nJack Edwards Family Impact Fund \n  \n 
URL:https://umdf.org/event/adult-virtual-support-meetingsep2022-2-2/2031-03-06/
CATEGORIES:Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20310315T100000
DTEND;TZID=America/New_York:20310315T120000
DTSTAMP:20250206T185233Z
CREATED:20240111T130250Z
LAST-MODIFIED:20250206T185233Z
UID:10004461-1931335200-1931342400@umdf.org
SUMMARY:Northeast PA Support Meeting
DESCRIPTION:  \nSupport Meeting- Northeast PA \nThird Saturday of each Month- In-Person \n10:00pm – 12:00pm Eastern\nSt. Luke’s Hospital\nPriscilla Payne Hurd Education Room\nRoom 104\n801 Ostrum Street\nBethlehem\, PA 18015\n \n  \nYou are not alone. Join us to share coping tips and connect with others. \nWe will meet the 3rd Saturday of each month! \n1:00pm – 3:00pm \nFor questions\, please contact Grace Robinson or Janelle Frank\, the Support Group Leaders:\ngracerobinson13@gmail.com or janelle.frank13@gmail.com
URL:https://umdf.org/event/support-group-meeting-nepa-2-2021-01-16-2021-02-20-2-2/2031-03-15/
CATEGORIES:Northeast
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20310319T120000
DTEND;TZID=America/Los_Angeles:20310319T130000
DTSTAMP:20260928T190837Z
CREATED:20260928T190837Z
LAST-MODIFIED:20260928T190837Z
UID:10004832-1931688000-1931691600@umdf.org
SUMMARY:Rare Disease Drug Access Virtual Support Group Meeting
DESCRIPTION:Rare Disease Drug Access Support Group\nWednesday\, October 21\, 2026 | 12:00 p.m. ET (11:00 a.m. CT\, 10:00 a.m. MT\, 9:00 a.m. PT)\nVirtual | Free \n[REGISTER NOW] \nGetting a treatment prescribed is one step. Getting it covered\, filled\, and delivered can be a whole separate process. With new therapies becoming available for people living with mitochondrial disease\, more families are dealing with prior authorizations\, denials\, appeals\, and specialty pharmacies for the first time. \nYou don’t have to figure it out alone. Join UMDF for a virtual support group for patients\, parents\, and caregivers who are working to get access to medications and treatments for mitochondrial disease. \nTogether we’ll talk about:\n• Prior authorizations and what to do when a claim is denied\n• Appeals\, including what information and letters from your care team can help\n• Expanded Access Programs\, copay assistance and patient assistance programs\n• Working with specialty pharmacies and manufacturer support programs\n• Keeping records organized and staying persistent without burning out \nThe group is led by Margaret\, Bethany and the UMDF Support Ambassadors and is a space to ask questions\, share what has worked for you\, and learn from others who understand. \nWho should join: Adults living with mitochondrial disease\, parents\, and caregivers. You’re welcome whether you’re just starting the process or have been at it for a while. \nAfter you register\, you’ll get an email with the link to join. Can’t make it? Our Patient Concierge team can help with insurance questions any time: (888) 900-6486 or support@umdf.org. You can also visit umdf.org/insurance for resources. \nThis group offers peer support and general information. It is not medical\, legal\, or insurance advice. Please talk with your care team and insurance provider about your specific situation. \nThank you for being part of the mito community. We look forward to seeing you on October 21. \nWith gratitude\,\nThe UMDF Support Team \nUnited Mitochondrial Disease Foundation | umdf.org \n 
URL:https://umdf.org/event/rdda/2031-03-19/
CATEGORIES:Pacific,Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20310403T200000
DTEND;TZID=America/New_York:20310403T210000
DTSTAMP:20260614T214643Z
CREATED:20231019T142537Z
LAST-MODIFIED:20260614T214643Z
UID:10004463-1933012800-1933016400@umdf.org
SUMMARY:Adult Virtual Support Meeting
DESCRIPTION:Adult Virtual Support Meeting \nHello Adults impacted by Mitochondrial Disease! Please join us for an Adult Virtual Support Meeting. \nWe will get to know each other\, share resources\, and build community! \nJoin us for a VIRTUAL MEETING!\nThe FIRST Thursday of every month!\n8:00pm-9:00pm ET\nRegister HERE \nAfter registering\, you will receive a confirmation email containing information about joining the meeting. \nFor questions\, please email Margaret Moore at: margaret.moore@5mr.c80.myftpupload.com \nTHANK YOU TO OUR SPONSORS \nEdith L. Trees Charitable Trust \nAstellas \nJack Edwards Family Impact Fund \n  \n 
URL:https://umdf.org/event/adult-virtual-support-meetingsep2022-2-2/2031-04-03/
CATEGORIES:Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20310407T100000
DTEND;TZID=America/Los_Angeles:20310407T110000
DTSTAMP:20260826T133654Z
CREATED:20240708T192355Z
LAST-MODIFIED:20260826T133654Z
UID:10004636-1933322400-1933326000@umdf.org
SUMMARY:California Virtual Support Group Meeting
DESCRIPTION:UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips\, share your story and connect with others. We hope you will attend and see that you are not alone. \nThe first Monday of each month• 10:00am – 11:00am Pacific \nLearn more & register here. \nRegistration is required\, and you will receive a confirmation email with information to join the meeting. If you have any questions\, contact Margaret Moore at margaret.moore@5mr.c80.myftpupload.com or 412-354-1553. \nVisit the UMDF Event Calendar for all updates and upcoming events here. \nSpecial Thanks to our Sponsors\nEdith L. Trees Charitable Trust
URL:https://umdf.org/event/california-virtual-support-group-meeting-2022-09-05-3-2-2-2/2031-04-07/
CATEGORIES:Pacific,Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20310416T120000
DTEND;TZID=America/Los_Angeles:20310416T130000
DTSTAMP:20260928T190837Z
CREATED:20260928T190837Z
LAST-MODIFIED:20260928T190837Z
UID:10004833-1934107200-1934110800@umdf.org
SUMMARY:Rare Disease Drug Access Virtual Support Group Meeting
DESCRIPTION:Rare Disease Drug Access Support Group\nWednesday\, October 21\, 2026 | 12:00 p.m. ET (11:00 a.m. CT\, 10:00 a.m. MT\, 9:00 a.m. PT)\nVirtual | Free \n[REGISTER NOW] \nGetting a treatment prescribed is one step. Getting it covered\, filled\, and delivered can be a whole separate process. With new therapies becoming available for people living with mitochondrial disease\, more families are dealing with prior authorizations\, denials\, appeals\, and specialty pharmacies for the first time. \nYou don’t have to figure it out alone. Join UMDF for a virtual support group for patients\, parents\, and caregivers who are working to get access to medications and treatments for mitochondrial disease. \nTogether we’ll talk about:\n• Prior authorizations and what to do when a claim is denied\n• Appeals\, including what information and letters from your care team can help\n• Expanded Access Programs\, copay assistance and patient assistance programs\n• Working with specialty pharmacies and manufacturer support programs\n• Keeping records organized and staying persistent without burning out \nThe group is led by Margaret\, Bethany and the UMDF Support Ambassadors and is a space to ask questions\, share what has worked for you\, and learn from others who understand. \nWho should join: Adults living with mitochondrial disease\, parents\, and caregivers. You’re welcome whether you’re just starting the process or have been at it for a while. \nAfter you register\, you’ll get an email with the link to join. Can’t make it? Our Patient Concierge team can help with insurance questions any time: (888) 900-6486 or support@umdf.org. You can also visit umdf.org/insurance for resources. \nThis group offers peer support and general information. It is not medical\, legal\, or insurance advice. Please talk with your care team and insurance provider about your specific situation. \nThank you for being part of the mito community. We look forward to seeing you on October 21. \nWith gratitude\,\nThe UMDF Support Team \nUnited Mitochondrial Disease Foundation | umdf.org \n 
URL:https://umdf.org/event/rdda/2031-04-16/
CATEGORIES:Pacific,Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20310419T100000
DTEND;TZID=America/New_York:20310419T120000
DTSTAMP:20250206T185233Z
CREATED:20240111T130250Z
LAST-MODIFIED:20250206T185233Z
UID:10004467-1934359200-1934366400@umdf.org
SUMMARY:Northeast PA Support Meeting
DESCRIPTION:  \nSupport Meeting- Northeast PA \nThird Saturday of each Month- In-Person \n10:00pm – 12:00pm Eastern\nSt. Luke’s Hospital\nPriscilla Payne Hurd Education Room\nRoom 104\n801 Ostrum Street\nBethlehem\, PA 18015\n \n  \nYou are not alone. Join us to share coping tips and connect with others. \nWe will meet the 3rd Saturday of each month! \n1:00pm – 3:00pm \nFor questions\, please contact Grace Robinson or Janelle Frank\, the Support Group Leaders:\ngracerobinson13@gmail.com or janelle.frank13@gmail.com
URL:https://umdf.org/event/support-group-meeting-nepa-2-2021-01-16-2021-02-20-2-2/2031-04-19/
CATEGORIES:Northeast
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20310501T200000
DTEND;TZID=America/New_York:20310501T210000
DTSTAMP:20260614T214643Z
CREATED:20231019T142537Z
LAST-MODIFIED:20260614T214643Z
UID:10004469-1935432000-1935435600@umdf.org
SUMMARY:Adult Virtual Support Meeting
DESCRIPTION:Adult Virtual Support Meeting \nHello Adults impacted by Mitochondrial Disease! Please join us for an Adult Virtual Support Meeting. \nWe will get to know each other\, share resources\, and build community! \nJoin us for a VIRTUAL MEETING!\nThe FIRST Thursday of every month!\n8:00pm-9:00pm ET\nRegister HERE \nAfter registering\, you will receive a confirmation email containing information about joining the meeting. \nFor questions\, please email Margaret Moore at: margaret.moore@5mr.c80.myftpupload.com \nTHANK YOU TO OUR SPONSORS \nEdith L. Trees Charitable Trust \nAstellas \nJack Edwards Family Impact Fund \n  \n 
URL:https://umdf.org/event/adult-virtual-support-meetingsep2022-2-2/2031-05-01/
CATEGORIES:Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
END:VCALENDAR