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UMDF Connect

UMDF Family Impact Funds Award $200k Grant to CHOP to Explore Potential Single Large-Scale mtDNA Deletion Syndrome Treatments

Press Room

The United Mitochondrial Disease Foundation (UMDF) is pleased to announce a new grant of $200,000 awarded to Suraiya Haroon, PhD, within Children’s Hospital of Philadelphia’s (CHOP) Mitochondrial Medicine Frontier Program (MMFP) research group through the generous...

Advocacy Update – January 2024: New FDA Guidance Encouraging Sign for Rare Disease Patients

Mito Advocacy, Press Room

In a landmark move, in December 2023, the U.S. Food and Drug Administration (FDA) released a detailed guidance document titled “Rare Diseases: Considerations for the Development of Drugs and Biological Products.” The FDA guidance document is a significant stride...

Mitochondrial Medicine 2023: Rethink Medicaid: Government Programs & Medicaid Waivers

About Mito, Conference

DOWNLOAD Stacy and Jenny's Slides (pdf) >> DOWNLOAD the Medicaid Glossary of Terms (pdf) >> Due to technical issues with the live recording in Charlotte, this presentation has been RE-RECORDED for our community.