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Marking #WorldMitoWeek Through Advocacy
(Sept. 23, 2023) As we wind down the final days of World Mitochondrial Disease Week, we want to take a moment to thank the UMDF advocates who helped us have over 100 touchpoints with Congress this Wednesday on UMDF’s Virtual Capitol Hill Day. Thanks to your passionate...
UMDF Reacts to Today’s Historic FDA Listening for the Mitochondrial Disease PDCD
(Sept. 8, 2023) Earlier today, the United Mitochondrial Disease Foundation (UMDF) cohosted a listening session with the U.S. Food and Drug Administration (FDA) with fellow advocacy group MitoAction regarding the mitochondrial disease Pyruvate Dehydrogenase Complex...
Back to School Resources for Mito Families
With kids returning from summer break, it’s the perfect time to think about resources for your mito student. Education advocate and UMDF Ambassador Melissa Knox has prepared a number of resources to help parents of students with mitochondrial disease get the most from...