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Advocacy Update – March 2022

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Omnibus Bill Includes 151-Day Extension of Telehealth Waivers Earlier this week, President Biden signed a bill to fund the government through September (the fiscal year 2022) and send humanitarian aid to Ukraine.  The bill also included several health priorities,...

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LSIC Awards Second Round of Research Grants

Leigh Syndrome International Consortium Awards Second Round of Research Grants The Leigh Syndrome International Consortium, a patient-driven research network steered by five of the world’s leading mitochondrial disease patient advocacy groups, is pleased to announce...

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