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Advocacy Update – February 2023: Could ARPA-H Change the Research Landscape for Rare Diseases?
For many years, UMDF has worked to encourage greater mitochondrial disease research funding through the National Institutes of Health (NIH). And we have also worked to direct mitochondrial disease research funding through the Peer Reviewed Medical Research Program of...
Advocacy Update – January 2023: What Does 2023 Hold for Mito Advocacy?
Year-End Advocacy Success Recap 2022 ended well for UMDF, thanks to the activism of UMDF members, with the final federal funding bill passed and signed by President Biden on December 29th. As mentioned last month, the bill included Department of Defense (DoD) funding...
Ask the Mito Doc – January 2023; Q&A: Conserving Your Energy in the New Year
Ask the Mito Doc - January 2023 Q&A: Conserving Your Energy in the New Year Presenter: Bettemarie Bond, Patient Advocate and Ambassador for Oley, MDA and UMDF Clinicians: Dr. Zarazuela Zolkipli-Cunningham, MD and Dr. Amy Goldstein, MD from the Children’s...