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UMDF Connect

UMDF Marks World Mitochondrial Disease Week, September 18 – 24, 2022

Mito Advocacy, Press Room

This coming week, September 18 – 24, marks World Mitochondrial Disease Week. It provides a time for the entire mito community to share our joys, our sorrows, our hopes, and our fears. It’s a week when we can reflect on all we’ve collectively accomplished, while...

UMDF Brings Awareness, Support for Patients and Families on TK2d Tuesday — Sept. 13, 2022

Press Room

This Tuesday, September 13 is TK2d Tuesday, a day to bring awareness to a rare genetic mitochondrial disease, Thymidine kinase 2 deficiency. It’s estimated up to 2,700 people in the United States are living with TK2d. We thank the many patients, families,...

Advocacy Update – August 2022: The Inflation Reduction Act, Telehealth Extension, FY 2023 Appropriations and more.

Mito Advocacy

Congress Passes the Inflation Reduction Act Congress ended a busy work period after passing the Inflation Reduction Act (IRA) over the weekend. Congress has now adjourned for August recess. The Senate returns on September 6, and the House returns on September...