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Advocacy Update – UMDF Co-Signs Letter Supporting PRV Reauthorization
UMDF Co-Signs Letter Supporting Rare Pediatric Disease Priority Review Voucher Reauthorization
Ask the Mito Doc – September 2024; Q&A
Ask the Mito Doc - September 2024 Q&A All answers today are based on personal experience of the participants. As always, please consult your personal physician prior to taking any action.Understanding Genetic TestingClinical Trial Readiness: Understanding...
A special message from UMDF for World Mitochondrial Disease Week 2024
This coming week, September 16 – 22, 2024, marks World Mitochondrial Disease Week. For me, the week is deeply personal. This year marks twenty years since my infant daughter Natalie was diagnosed with mitochondrial disease. Her battle lasted only a year, but her...