ENERGIZE THE FIGHT.
HOLIDAY SEASON
See how you can help support Kendall, Scarlett, and the thousands of other affected patients and families UMDF serves this holiday season.
Our Mito Champions
No Results Found
The page you requested could not be found. Try refining your search, or use the navigation above to locate the post.
Need to Connect with Us?
Call the Support Line: (888) 900-6486
UMDF Issues Response to Congressional 21st Century Cures Act RFI
UMDF Issues Response to Congressional 21st Century Cures Act RFIDOWNLOAD this document (PDF) >>
Energize the Fight – World Mitochondrial Disease Week 2024
We’re excited to unite with other mitochondrial disease-focused patient advocacy groups across the globe to spread awareness on World Mitochondrial Disease Week, September 16-22, 2024! Together, we can promote understanding and recognition with the hope that...
Advocacy Invite: FDA to Host Patient and Care Partner Perspectives on Safety Considerations for Approved Gene Therapy Treatments for Rare Diseases on Friday, September 20
As part of our commitment to raising patient voices in the regulatory process, we wanted to share an invite from the FDA's Center for Biologics Evaluation and Research (CBER), which is hosting a patient and care partner listening meeting – Patient and Care Partner...