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Advocacy Update – May 2024: FAA Reauthorization, Telehealth, Accelerating Kids’ Access to Care Act, and more
Nearly a decade ago, thanks to UMDF advocates, mitochondrial disease became an eligible topic in the Department of Defense’s Peer Reviewed Medical Research Program (PRMRP). The program has since provided more than $70 million in federal funds for mitochondrial disease...
Ask the Mito Doc – April 2024; Q&A
Ask the Mito Doc - April 2024 Q&A All answers today are based on personal experience of the participants. As always, please consult your personal physician prior to taking any action.Topic: Mitochondrial Encephalomyopathy with Lactic Acidosis and Stroke-like...
Meet Vera Johnson
By all appearances, 10-year-old Vera Johnson of Minnesota seems very much like her peers. She lives life largely outdoors and especially loves winter, when she can ice skate, sled, and even occasionally cross-country ski. In the summer, she spends days swimming at a...