The Leadership Award

The Stanley A. Davis Leadership Award

The Stanley A. Davis Leadership Award recognizes a UMDF leader who exemplifies dedication to the mission of the UMDF. The award was created to honor the dedication and work of the late UMDF Chairman, Stanley A. Davis.

We’re proud to recognize Paul Lore with our highest honor, the Stanley A. Davis Leadership Award.

Paul became affected by Leber Hereditary Optic Neuropathy later in life, in his fifties. He is an LHON Support volunteer as well as a UMDF Support Ambassador – providing a listening ear and guidance in self-advocacy to patients in both the LHON and greater mitochondrial disease patient communities. He and his wife, Jerrie, travel to professional conferences and exhibit to spread awareness and network with healthcare professionals about LHON Collective and UMDF programming.

As UMDF’s Associate Director of Support and Education Margaret Moore shared, “I met Paul when he attended one of our monthly adult virtual support meetings several years ago. That was the jumping off point for involvement in many UMDF initiatives. Paul has been involved in advocacy, Voice of the Patient panel activities, work with the LHON community, the growth of the UMDF Support Ambassador program, and UMDF’s California Support Group virtual meetings. Paul embodies the UMDF mission and servant-hearted leadership in everything he does.”

As Paul has shared, “LHON is a rare disease, a mitochondrial disease, and a vision loss condition. For those of us who volunteer in the LHON community, it’s important for us to be involved and partnered with organizations who are deeply rooted in all three of those spaces. I will continue advocating for mito and LHON patients in the most meaningful and impact forms that I can.”

We don’t have any doubt! And for that we are honored and grateful to recognize Paul Lore as this year’s Stanley A. Davis Leadership Award winner.

Previous Stanely A. Davis Leadership Awardees

David Keane 2024
Sharon Shaw  2023
Patrick Kelly 2022
Howard & Ann Korsen 2021
Joy Krumdiack 2020
Lissa Poincenot 2019
Gail Wehling 2018
Carrie Mullin 2017
Dan Wright 2016
Cheryl Porter 2015
Victoria Helms 2014
Jennifer Schwartzott 2013
Cherie Lawson 2013
Norma Gibson 2012
Christy Koury 2011
Patricia Charleston 2010
Lisa Arnold 2009
Chris Swinn 2008