UMDF Connect
March 2026 Newsletter: Mito Med Conference, Volunteer Awards, Advocacy
Signup to receive the UMDF newsletter in your email monthly at umdf.org/newsletter-signup. Meet Us At MitoMed 2026 in Orlando, FL Registration for the Mitochondrial Medicine 2026 conference in Orlando, FL from June 17-20 is now open! This year, we’ll be at the...
UMDF, LHON Collective Issue Statement on the FDA’s Decision Not to Approve Idebenone
UMDF is disappointed by the U.S. Food and Drug Administration’s (FDA) decision not to approve idebenone for Leber Hereditary Optic Neuropathy (LHON), a rare mitochondrial disease that causes sudden and often irreversible vision loss. “Far too many patients continue to...
Ask the Mito Doc – February 2026
Ask the Mito Doc - February 2026: Understanding MELAS All answers today are based on personal experience of the participants. As always, please consult your personal physician prior to taking any action.Topic: Understanding MELAS and Current Treatments/Therapies...
February 2026 Newsletter: Rare Disease Awareness, Advocacy Updates, and More
Signup to receive the UMDF newsletter in your email monthly at umdf.org/newsletter-signup.February is National Heart Month and Rare Disease Month For the mitochondrial disease community, heart health is part of everyday health. Join us throughout the month as we...
Apply for a UMDF Research Grant
UMDF awards grants to researchers and clinicians focused on advancing science in the field of mitochondrial disease.
Ask the Mito Doc – January 2026
Ask the Mito Doc - January 2026: Cardiac Mito -- Genetics and Clinical Insights to Jumpstart the Year All answers today are based on personal experience of the participants. As always, please consult your personal physician prior to taking any action.Bnech to...
January 2026 Newsletter: UMDF Turns 30, Legislation We’re Watching in 2026, Nutrition Survey, and More
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Ask the Mito Doc – December 2025
Ask the Mito Doc - December 2025: Wrapping Up 2025 with Our Mito Docs All answers today are based on personal experience of the participants. As always, please consult your personal physician prior to taking any action.Bnech to Bedside - Special Edition: Clinical...
Bench to Bedside – Clinical Trial Updates
Bench to Bedside - Special Edition: Clinical Trial Updates All answers today are based on personal experience of the participants. As always, please consult your personal physician prior to taking any action.Bnech to Bedside - Special Edition: Clinical Trial...
December 2025 Newsletter: NY Jets Bring Mito Awareness, New Research Grants, Clinical Trials Updates, and more
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