UMDF Connect
January 2025 Newsletter: Mito Med 2025 News, Advocacy Update, CPEO & MELAS Webcasts, and More
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Ask the Mito Doc – December 2024; Q&A
Ask the Mito Doc - December 2024 Q&A All answers today are based on personal experience of the participants. As always, please consult your personal physician prior to taking any action.Wrapping Up 2024 with the Mito DocsClinicians: Amy Goldstein, MD,...
December 2024 Newsletter: Mito Fund Investment, Mito Med 2025 News, Clinical Trial Updates, and More
Sign-up to receive the UMDF newsletter via email at Newsletter Signup. The Mito Fund Announces Investment in Khondrion UMDF’s venture philanthropy arm, The Mito Fund, recently announced an investment in Khondrion, a Netherlands-based clinical stage...
UMDF Signs On to Letter to Congress Supporting Accelerating Kids’ Access to Care Act
Ask the Mito Doc – November 2024; Q&A
Ask the Mito Doc - November 2024 Q&A All answers today are based on personal experience of the participants. As always, please consult your personal physician prior to taking any action.Understanding POLG DisordersUnderstanding POLG Disorders: A Dual...
The Mito Fund Announces Investment in Khondrion to Support Development of One of the Most Advanced Drug Candidates for Primary Mitochondrial Disease
The United Mitochondrial Disease Foundation’s (UMDF) venture philanthropy arm, The Mito Fund, has invested in Khondrion, a Netherlands-based clinical stage biopharmaceutical company discovering and developing therapies targeting primary mitochondrial disease (PMD)....
UMDF November Advocacy Update: What Does a Second Trump Administration Mean for the Mito Community?
With the recent election results, we’ve been getting some inquiries about the impact of a second Trump Administration on mitochondrial disease patients and families. And the truth is, it’s too early to know – but our governmental relations team at Holland & Knight...
UMDF Cosigns Letter to Congress Encouraging End-of-Year Rare Disease Legislative Priorities
UMDF Cosigns Letter to Congress Encouraging End-of-Year Action on Accelerating Kids’ Access to Care Act, Rare Pediatric Disease Priority Review Voucher Program, and More
November 2024 Newsletter: FDA News, Rare Revolution Magazine Feature, Therapeutic Pipeline Updates, and more
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Ask the Mito Doc – October 2024; Q&A
Ask the Mito Doc - October 2024 Q&A All answers today are based on personal experience of the participants. As always, please consult your personal physician prior to taking any action.Connecting the Dots Between Mito and Rare DiseasesConnecting the Dots...