UMDF Connect

Ask the Mito Doc – December 2023; Q&A

Ask the Mito Doc - December 2023 Q&A Wrapping Up 2023 with the Mito Docs     Clinicians: Dr. Amy Goldstein, MD, Children’s Hospital of Philadelphia Dr. Austin Larson, MD, Children’s Hospital, Colorado Dr. Divakar Mithal, MD, Children’s Hospital, Chicago...

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Advocacy Update – December 2023

UMDF Advocacy Update – Dec. 2023 The House is scheduled to be out of session until January, while the Senate is scheduled to remain in session this week to continue to work toward an agreement on funding for Ukraine, Israel, and US border reform, as well as...

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PDCD FDA Listening Session Report Now Available

On September 8, 2023, the United Mitochondrial Disease Foundation co-hosted a Patient-led Listening Session with the U.S. Food & Drug Administration for Pyruvate Dehydrogenase Complex Deficiency (PDCD) with fellow patient advocacy groups MitoAction, Hope for PDCD,...

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Ask the Mito Doc – November 2023; Q&A

Ask the Mito Doc November 2023 Coffee and Conversations - Four Breakout Room Sessions    DOWNLOAD the Coffee and Conversations Resources (pdf) >>  Adult Patients Breakout #1: Mito 101 - Things I Wish I Knew Years AgoFernando Scaglia, MDParents/Caregivers...

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