UMDF Connect
Advocacy Update – UMDF Signs On to Thank You Letter to Senate Appropriations Leadership for Proposed NIH Budget Increase
Advocacy Update – Aug 2024: Help Shape the Legislative Landscape for the Mito Community Through Survey, UMDF Action Items
In a few weeks, we’ll join other mitochondrial disease-focused patient advocacy groups across the globe in marking World Mitochondrial Disease Week, September 16-22, 2024. It’s a time when we can promote understanding and recognition with the hope that increased...
UMDF Announces Two New Postdoctoral Fellowship Research Grants
On the heels of our traditional research grant funding cycle culminating at UMDF’s annual Mitochondrial Medicine conference this past June, the United Mitochondrial Disease Foundation is proud to announce the funding of two additional postdoctoral fellowship research...
UMDF Issues Response to Congressional 21st Century Cures Act RFI
UMDF Issues Response to Congressional 21st Century Cures Act RFIDOWNLOAD this document (PDF) >>
Energize the Fight – World Mitochondrial Disease Week 2024
We’re excited to unite with other mitochondrial disease-focused patient advocacy groups across the globe to spread awareness on World Mitochondrial Disease Week, September 16-22, 2024! Together, we can promote understanding and recognition with the hope that...
Advocacy Invite: FDA to Host Patient and Care Partner Perspectives on Safety Considerations for Approved Gene Therapy Treatments for Rare Diseases on Friday, September 20
As part of our commitment to raising patient voices in the regulatory process, we wanted to share an invite from the FDA's Center for Biologics Evaluation and Research (CBER), which is hosting a patient and care partner listening meeting – Patient and Care Partner...
An Update from UMDF Board Chair Dr. Alicia Palladino
Dear UMDF Community, For those of you who had the opportunity to join more than 700 patients, family members, clinicians, and researchers at the Mitochondrial Medicine Conference in Cleveland a few weeks ago, I am sure you will agree that it was a powerful experience....
Advocacy Update – July 2024: Watch Mito Caucus Briefing, A Win with NIH Language, and more
Last week, UMDF hosted a congressional briefing with the U.S. House of Representatives’ Mitochondrial Disease Caucus, which featured speakers from across the mito community, including Caucus Co-chairs Rep. Brian Fitzpatrick & Rep. Jim McGovern; Andy Dearth,...
UMDF Names Award Winners for 2024
From Left to right: Fatema Shikora with Jennifer Chickering of Tisento Therapeutics, Jared Goettemoeller with Dr. Tyler Story of UCB, Linda Ramsey with Gene Kelly of Stealth BioTherapeutics. At Mito Med’s Evening of Energy event, UMDF announced...
An Announcement from UMDF Board Chair Dr. Alicia Palladino
Dear UMDF Community: As you know, Brian Harman has been the UMDF President and CEO for the past six years, driving numerous critical initiatives on behalf of the mitochondrial disease community. Brian has been a dynamic and innovative leader, greatly expanding UMDF’s...