Education
Events
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UMDF Bench-to-Bedside Clinical Trials Update – Part 1
UMDF Bench-to-Bedside - Clinical Trials Update - Part 1 Moderators: Amel Karaa, MD and Philip Yeske, PhD Click Here to Register Natalie Yivgi Ohana, PhD - Minovia Therapeutics Robert Fischer, […]
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UMDF Ask the Mito Doc Webcast Series – Wrapping Up 2024 with the Mito Docs
Join us wrap up the year with at least four mitochondrial specialists - ask questions and hear about any important developments in mitochondrial medicine from each doctor's perspective!
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UMDF Bench-to-Bedside Clinical Trials Update – Part 2
UMDF Bench-to-Bedside - Clinical Trials Update - Part 2 Moderator: Philip Yeske, PhD and Zuela Zolkipli Cunningham, MD Click Here to Register The Effects of L-arginine on Cerebrovascular Reactivity, Perfusion and Neurovascular Coupling in MELAS Syndrome Speaker: Ingrid Tein, BSc, MD, FRCP(C) - Hospital for Sick Children (SickKids), Toronto, CA Clinical Trial Updates - Part […]
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UMDF Ask the Mito Doc Webcast Series – A Comprehensive Vision: Understanding Chronic Progressive External Ophthalmoplegia (CPEO) from the Eyes to the Body
Join us to get a bird's eye view of CPEO from two perspectives - the eye and the body as it relates to the CPEO patient.
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UMDF Ask the Mito Doc Webcast Series – Comprehensive Care in Kearns-Sayre and Pearson Syndromes: Diagnosis, Symptom Management, and Support Strategies
Join us to learn more about Kearns-Sayre Syndrome and Pearson Syndrome from Dr. Rebecca Ganetzky and Dr. Sumit Parikh.
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Rare Disease Day
Visit rarediseaseday.org and share!
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UMDF Ask the Mito Doc Webcast Series – Clinical Trial Readiness and UMDF Mito Med Clinical Research Pavilion Update
We are combining this month's Ask the Mito Doc webcast with the Bench-to-Bedside and focusing on Clinical Trial Readiness. Join us to learn more.
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Frontiers in Mitochondrial Medicine
Frontiers in Mitochondrial Medicine March 12, 2025 -- Icahn School of Medicine at Mount Sinai Click Here for Agenda and to Register The Department of Genetics and Genomic Sciences at the […]
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UMDF Ask the Mito Doc Webcast Series – Integrating Physical and Emotional Pain Management in Mitochondrial Disease Care
Looking for information on Pain Management? Join us April 30.
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UMDF Ask the Mito Doc Webcast Series – Mitochondrial Disease and Biorepositories: Why Participation Matters
Looking for information on Pain Management? Join us April 30.
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Patient/Family Webcast: What to Expect at UMDF Mito Med 2025
Join us on June 3, 2025 at 9:00am Pacific/10:00am Mountain/11:00am Central/12:00pm Eastern Click Here to Register Join us as we share information about the upcoming UMDF Mitochondrial Medicine 2025 in St. Louis. Visit umdfconference.org for details and registration information. If you are new to using ZOOM, we suggest that you log in early on […]
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UMDF Mitochondrial Medicine 2025 in St. Louis, MO
Hyatt Regency St. Louis Arch 315 CHESTNUT STREET, ST LOUIS, MO, MO, United StatesJoin us in St. Louis, Missouri, as we bring together the best minds in mitochondrial medicine and the patients we serve.
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UMDF Ask the Mito Doc Webcast Series – Seizures in Patients with Mito
Join us to hear from Dr. Russell Saneto as he shares insights on seizure management.
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Community Webinar with Saol Therapeutics to Discuss SL1009 (DCA)
Virtual EventSubmit questions and hear directly from Saol leadership regarding DCA, the clinical trial, and the path forward with the FDA.
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UMDF, MitoAction, and POLG Foundation Special Webcast – Elamipretide Expanded Access Program (EAP) Update
Elamipretide Expanded Access Program Update In collaboration with MitoAction and POLG Foundation, join us on Tuesday, Oct. 14 at 12pm ET for special webinar with Stealth BioTherapeutics to provide an update on access to elamipretide via Expanded Access Program (EAP). This program will focus exclusively on EAP for affected individuals currently on therapy, though it […]
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UMDF Ask the Mito Doc Webcast Series – Fact vs. Fiction: Sorting Science from Speculation in Mito Treatment
Treatments for mitochondrial disease is always a challenge, join us to hear perspectives of sorting out science vs atypical treatments.
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UMDF Ask the Mito Doc Webcast Series – Genetic Testing in Mitochondrial Disease: What Patients and Families Need to Know
In honor of National Genetic Counselor Awareness Day, join us to hear genetic counselors who work daily with the mitochondrial disease patient community.
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UMDF Ask the Mito Doc Special Webcast – Focused on TK2d Therapy Kygevvi with Dr. Michio Hirano
Join us to learn about the newly approved TK2d Therapy Kygevvi with Dr. Michio Hirano
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UMDF Ask the Mito Doc Webcast Series – Wrapping Up 2025 with our Mito Docs
We are looking forward to wrapping up 2025 with our mito docs! Join us to hear from Dr. Bruce Cohen, Dr. Greg Enns, Dr. Jaya Ganesh, and Dr. Matthew Snyder!
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UMDF Bench-to-Bedside Clinical Trials Update – Part 2
UMDF Bench-to-Bedside - Clinical Trials Update - Part 2 Moderator: Philip Yeske, PhD and Amel Karaa, MD Click Here to Register Mitochondrial Disease Clinical Trial Updates – Part 2 Speakers: […]
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UMDF Ask the Mito Doc Webcast Series – CardiacMito 2026: Genetics and Clinical Insights to Jumpstart the Year
Let's start 2026 learning about CardiacMito and new information from Dr. Hilary Vernon, Dr. Andreas Barth, and Rebecca McClellan
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UMDF Ask the Mito Doc Webcast Series – Understanding MELAS and Current Therapies/Treatments
Join us to hear from Dr. Amel Karaa who will provide updates on MELAS including recent and upcoming meetings with focus on MELAS.
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UMDF Ask the Mito Doc Webcast Series – Clinical Trial Readiness and Clinical Research Pavilion
Join us to learn more about Clinical Trial Readiness, learnings from the 2025 Clinical Research Pavilion (CRP) and what is coming for the 2026 CRP.
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UMDF Ask the Mito Doc Special Webcast – Updates on New TK2d Therapy Kygevvi
Join us to learn about the newly approved TK2d Therapy Kygevvi with a representative of UCB.
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UMDF Ask the Mito Doc Webcast Series – Genetics 101
Dr. Scaglia will be giving us a Genetics 101 on mitochondrial disease - join us and bring your questions.
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Navigating Education with LHON
This Zoom event is your chance to connect with other students, educators, parents and other sighted supporters to discuss Navigating Education with LHON. Please feel free to invite anyone who […]
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UMDF Ask the Mito Doc Webcast Series – What’s Happening Mito Med 2026
Join us to hear from UMDF Staff and volunteers about what will be happening at UMDF Mito Med 2026. We will share more information about sessions and the networking opportunities.