UMDF Connect
June 2026 Newsletter: Time for Mito Med 2026
Signup to receive the UMDF newsletter in your email monthly at umdf.org/newsletter-signup. It's Time for Mito Med in Orlando, FL Pack your bags and get ready to join us in Orlando for Mito Med 2026 June 17-20! We’re just weeks away from the UMDF Mitochondrial Medicine...
May 2026 Newsletter: Support Our Spring Appeal
Signup to receive the UMDF newsletter in your email monthly at umdf.org/newsletter-signup. Support UMDF's Spring Appeal As we celebrate 30 years of serving the mitochondrial disease community, we’re proud of how far we’ve come, and are focused on the work still ahead....
Ask the Mito Doc – May 2026
Ask the Mito Doc - May 2026: Mitochondrial Medicine 2026 All answers today are based on personal experience of the participants. As always, please consult your personal physician prior to taking any action.Speakers: · Sarah Chang, PhD, Medical Strategy Lead, UCB ·...
Ask the Mito Doc – April 2026
Ask the Mito Doc - April 2026: Genetics 101 All answers today are based on personal experience of the participants. As always, please consult your personal physician prior to taking any action.Speakers: · Sarah Chang, PhD, Medical Strategy Lead, UCB · Cristy...
April 2026 Newsletter: 30 Years of Progress
Signup to receive the UMDF newsletter in your email monthly at umdf.org/newsletter-signup. 30 Years of Progress Fueled By You Three decades ago, the world looked very different for mitochondrial disease patients and their families. Little was known about...
Saol Therapeutics Provides Update from Type C Meeting with FDA regarding DCA
Ask the Mito Doc – March 2026
Ask the Mito Doc - March 2026: Updates on TK2d Therapy Kygevvi All answers today are based on personal experience of the participants. As always, please consult your personal physician prior to taking any action.Speakers: · Sarah Chang, PhD, Medical Strategy Lead,...
UMDF Co-Signs Letter to CMS Laying Out How Proposed ACA Changes Could Affect Existing Medical Nutrition Coverage
March 2026 Newsletter: Mito Med Conference, Volunteer Awards, Advocacy
Signup to receive the UMDF newsletter in your email monthly at umdf.org/newsletter-signup. Meet Us At MitoMed 2026 in Orlando, FL Registration for the Mitochondrial Medicine 2026 conference in Orlando, FL from June 17-20 is now open! This year, we’ll be at the...
UMDF, LHON Collective Issue Statement on the FDA’s Decision Not to Approve Idebenone
UMDF is disappointed by the U.S. Food and Drug Administration’s (FDA) decision not to approve idebenone for Leber Hereditary Optic Neuropathy (LHON), a rare mitochondrial disease that causes sudden and often irreversible vision loss. “Far too many patients continue to...