LHON
LHON DC-Area Connect
This call is for those living in the DC-Area with an interest in LHON. Consider joining the call and sharing your experiences with others in a similar situation. Reach out to Lissa Poincenot at lhonpoince@aol.com with any questions. There's also a Facebook group for those in the DC-Area located at this link: https://www.facebook.com/groups/243446586122096 Join Details: One option is to use […]
LHON Live! Monthly Call
This call is for everyone interested in LHON...those affected, carriers, or sighted supporters...all are welcome. You can speak up and share your thoughts, or just listen to what others have to say...It's your call! Hosts Jessica Loomer and Andy Marks facilitate this call. Recordings from prior LHON Live! calls are located at this link: https://www.umdf.org/types/lhon/ Reach out to Jessica Loomer […]
Moms of LHON-Affected “Kids of All Ages” (Wednesday)
Join us for the Moms of LHON-Affected "Kids of All Ages" virtual meeting.
LHON Plus Connect
This Zoom event is for anyone interested in discussing LHON Plus.
Navigating Education with LHON
This Zoom event is your chance to connect with other students, educators, parents and other sighted supporters to discuss Navigating Education with LHON. Please feel free to invite anyone who would benefit from this discussion to join this casual, lively Zoom event. Bring any questions, tips or suggestions you may have, as the discussion will […]
LHON – Teens
This call is ONLY for teens (under 18) who are affected with LHON vision loss. Hosts Jeremy Poincenot and Molly Garrone lead this call. This call takes place at 5:00pm PST/8:00pm EST every other month on the first Tuesday of the month for an hour and a half unless otherwise noted.
LHON – Young Adults
This call is ONLY for young adults (18 and over) who are affected with LHON vision loss.
Navigating Employment/Careers with LHON
This Zoom event is for anyone interested in discussing Navigating Employment/Careers with LHON. Bring your questions and comments to share with the group. Join Details: One option is to use Internet Audio to call at no charge at: https://umdf.zoom.us/j/95371313871 Meeting ID: 953 7131 3871 Or join by phone with one tap mobile: +16699006833,,95371313871# +16468769923,,95371313871# Canada: +16475580588,,95371313871# Australia: +61280152088,,95371313871# […]
LHON – Midwest Connect
This call is for those living in the Midwest with an interest in LHON. Consider joining the call and sharing your experiences with others in a similar situation. Reach out to Lissa Poincenot at lhonpoince@aol.com with any questions. Join Details: One option is to use Internet Audio to call at no charge at: https://umdf.zoom.us/j/95371313871 Meeting ID: 953 7131 3871 Or if […]
LHON New England Connect
This is a call for those living in New England with an interest in LHON. Consider joining the call to share your experiences with others in a similar situation. Reach out to Molly Garrone at mollyeknox@gmail.com with any questions. There's also a Facebook group for those in New England located at this link: https://www.facebook.com/groups/443485919190265 Join Details: One option is […]
LHON – Southwest x Pacific Northwest Connect
LHON - Southwest x Pacific Northwest Connect This Zoom event is a great opportunity to connect and discuss resources of interest to the Southwest LHON (previously California) community! Contact Bob Banks with any questions at rwbanks@hotmail.com. Join Details: One option is to use Internet Audio to call at no charge at: https://umdf.zoom.us/j/95371313871 Meeting ID: 953 7131 […]
Dads of LHON-Affected “Kids of All Ages”
NOTE: Unless specific to a geographic location - all LHON virtual meetings will be set in Eastern Time. The bimonthly call for Dads of LHON-Affected "Kids of All Ages" takes place on the third Wednesday of every other month at 8:00pm Eastern/5:00pm Pacific. If you're a dad of someone affected by LHON, consider joining the call and sharing […]