TK2d Patient Listening Session – January 2022
TK2d Patient Listening Session – Monday, January 31, 2022 Click here for the downloadable PDF of this report. WHAT IS A PATIENT...
Read: TK2d Patient Listening Session – January 2022Latest News
LHON Archive
LHON – Leber Hereditary Optic Neuropathy Links LHON Website...
Read: LHON ArchiveAdvocacy Update – March 2022
Omnibus Bill Includes 151-Day Extension of Telehealth Waivers Earlier this week, President Biden signed a bill to fund the government through...
Read: Advocacy Update – March 2022UMDF’s 2022 Congressional Outlook
United Mitochondrial Disease Foundation 2022 Congressional Outlook As it reconvenes, Congress faces a packed agenda in a legislative year that...
Read: UMDF’s 2022 Congressional OutlookLSIC Awards Second Round of Research Grants
Leigh Syndrome International Consortium Awards Second Round of Research Grants The Leigh Syndrome International Consortium, a patient-driven...
Read: LSIC Awards Second Round of Research GrantsUMDF Elevates TK2d Patient Voices at FDA
UMDF Elevates TK2d Patient Voices at FDA Pittsburgh, PA (January 31, 2021) – The United Mitochondrial Disease Foundation (UMDF) –...
Read: UMDF Elevates TK2d Patient Voices at FDAUMDF Launches WCG CenterWatch iConnect Clinical Trial Finder Tool
UMDF Launches WCG CenterWatch iConnect Clinical Trial Finder Tool Specific to Mitochondrial Disease Pittsburgh, PA (December 15, 2021)...
Read: UMDF Launches WCG CenterWatch iConnect Clinical Trial Finder ToolMeet Dr. Carla Koehler
Perhaps you’ve met Carla Koehler, PhD, at UMDF’s Mitochondrial Medicine symposium; or, maybe you watched her provide information and education...
Read: Meet Dr. Carla KoehlerLHON Awareness Day – Meet Michael Malecha, Mito Warrior
Story by Michael Malecha, Mito Warrior I learned in 7th grade that the mitochondria are the powerhouse of your cells. I didn’t really...
Read: LHON Awareness Day – Meet Michael Malecha, Mito WarriorMitochondrial Disease Awareness Week 2021
Mitochondrial Disease Awareness Week – September 19-25, 2021 Monuments and Iconic Buildings ‘Light Up For Mito’ UMDF...
Read: Mitochondrial Disease Awareness Week 2021