Meet Jeremiah
Like many parents, Aneesa’s introduction to mitochondrial disease was jarring. After months of jumping from specialist to specialist who ran...
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Powerhouse Podcast #27: Heather Gatcombe, MD
Powerhouse Podcast #27: Heather Gatcombe, MD On this special episode of the Powerhouse Podcast, we’re honored to host Heart Mom and Mito...
Read moreMitochondrial Medicine 2023: Rethink Medicaid: Government Programs & Medicaid Waivers
DOWNLOAD Stacy and Jenny’s Slides (pdf) >> DOWNLOAD the Medicaid Glossary of Terms (pdf) >> Due to technical issues with the...
Read moreUMDF Family Impact Funds Award $200k Grant to CHOP to Explore Potential Single Large-Scale mtDNA Deletion Syndrome Treatments
The United Mitochondrial Disease Foundation (UMDF) is pleased to announce a new grant of $200,000 awarded to Suraiya Haroon, PhD, within...
Read moreAsk the Mito Doc – February 2024; Q&A
Ask the Mito Doc – February 2024 Q&A All answers today are based on personal experience of the participants. As always, please...
Read moreAsk the Mito Doc – January 2024; Q&A
Ask the Mito Doc – January 2024 Q&A All answers today are based on personal experience of the participants. As always, please...
Read moreAsk the Mito Doc – December 2023; Q&A
Ask the Mito Doc – December 2023 Q&A Wrapping Up 2023 with the Mito Docs Clinicians: Dr. Amy Goldstein, MD, Children’s...
Read moreAdvocacy Update – December 2023
UMDF Advocacy Update – Dec. 2023 The House is scheduled to be out of session until January, while the Senate is scheduled to remain in...
Read moreA message from UMDF President & CEO Brian Harman regarding STRIDE Study Results from Reneo Pharmaceuticals
To the mitochondrial disease community, We are saddened by the findings recently released by Reneo Pharmaceuticals regarding the STRIDE study...
Read morePDCD FDA Listening Session Report Now Available
On September 8, 2023, the United Mitochondrial Disease Foundation co-hosted a Patient-led Listening Session with the U.S. Food & Drug...
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