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March 2026 Newsletter: Mito Med Conference, Volunteer Awards, Advocacy
Signup to receive the UMDF newsletter in your email monthly at umdf.org/newsletter-signup. Meet Us At MitoMed 2026 in Orlando, FL Registration for the Mitochondrial Medicine 2026 conference in Orlando, FL from June 17-20 is now open! This year, we’ll be at the...
UMDF, LHON Collective Issue Statement on the FDA’s Decision Not to Approve Idebenone
UMDF is disappointed by the U.S. Food and Drug Administration’s (FDA) decision not to approve idebenone for Leber Hereditary Optic Neuropathy (LHON), a rare mitochondrial disease that causes sudden and often irreversible vision loss. “Far too many patients continue to...
Ask the Mito Doc – February 2026
Ask the Mito Doc - February 2026: Understanding MELAS All answers today are based on personal experience of the participants. As always, please consult your personal physician prior to taking any action.Topic: Understanding MELAS and Current Treatments/Therapies...