We’re excited to unite with other mitochondrial disease-focused patient advocacy groups across the globe to spread awareness on World...
Read: Energize the Fight – World Mitochondrial Disease Week 2025UMDF has partnered with the nonprofit COMBINEDBrain to develop a mitochondrial disease biorepository hosted on mitoSHARE, UMDF’s patient...
Read: UMDF Partners with COMBINEDBrain to Develop a Mitochondrial Disease BiorepositoryWe at UMDF wish to share our deepest condolences with the family of Prince Frederik, who passed away at age 22 from the mitochondrial disease...
Read: A Message from UMDF on the Passing of Prince FrederikSign-up to receive the UMDF newsletter via email at Newsletter Signup. In early October, an FDA Advisory Committee voted 10-6 supporting...
Read: November 2024 Newsletter: FDA News, Rare Revolution Magazine Feature, Therapeutic Pipeline Updates, and moreThis coming week, September 16 – 22, 2024, marks World Mitochondrial Disease Week. For me, the week is deeply personal. This year marks twenty...
Read: A special message from UMDF for World Mitochondrial Disease Week 2024We’re excited to unite with other mitochondrial disease-focused patient advocacy groups across the globe to spread awareness on World...
Read: Energize the Fight – World Mitochondrial Disease Week 2024With kids returning from summer break, it’s the perfect time to think about resources for your mito student. Education advocate and UMDF...
Read: UMDF Reacts to Today’s Historic FDA Listening for the Mitochondrial Disease PDCDStory by Michael Malecha, Mito Warrior I learned in 7th grade that the mitochondria are the powerhouse of your cells. I didn’t really...
Read: LHON Awareness Day – Meet Michael Malecha, Mito WarriorMitochondrial Disease Awareness Week – September 19-25, 2021 Monuments and Iconic Buildings ‘Light Up For Mito’ UMDF...
Read: Mitochondrial Disease Awareness Week 2021