Advocacy Update – November 2023: CMS Changes Definition of Medicare Caregiver in New Rule
Published 11/29/23 President Biden Signs Funding Bill, Averting a Government Shutdown On November 16, President Biden signed the stopgap...
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Language Encouraging NIH to “Expand, Accelerate, and Collaborate” on Mito Research Makes it in HHS Appropriations Report
The House of Representatives wait for a new speaker has entered week three. Republicans returned to Washington earlier this week for a...
Read moreMarking #WorldMitoWeek Through Advocacy
With kids returning from summer break, it’s the perfect time to think about resources for your mito student. Education advocate and UMDF...
Read moreUMDF Reacts to Today’s Historic FDA Listening for the Mitochondrial Disease PDCD
With kids returning from summer break, it’s the perfect time to think about resources for your mito student. Education advocate and UMDF...
Read moreAdvocacy Update – May 2023: What Does the End of the Public Health Emergency Mean for Medicaid?
On Tuesday, December 20, 2022, lawmakers unveiled their long-awaited $1.7 trillion government funding package. The package includes 12...
Read moreAdvocacy Update – April 2023: Spring on Capitol Hill
On Tuesday, December 20, 2022, lawmakers unveiled their long-awaited $1.7 trillion government funding package. The package includes 12...
Read moreAdvocacy Update – March 2023: Federal Appropriations 101 and Why Advocacy Matters for Mito
On Tuesday, December 20, 2022, lawmakers unveiled their long-awaited $1.7 trillion government funding package. The package includes 12...
Read moreAdvocacy Update – February 2023: Could ARPA-H Change the Research Landscape for Rare Diseases?
On Tuesday, December 20, 2022, lawmakers unveiled their long-awaited $1.7 trillion government funding package. The package includes 12...
Read moreAdvocacy Update – January 2023: What Does 2023 Hold for Mito Advocacy?
On Tuesday, December 20, 2022, lawmakers unveiled their long-awaited $1.7 trillion government funding package. The package includes 12...
Read moreAdvocacy Update – December 2022: Mito Research Funding Looks Headed for Renewal in Newly Unveiled Funding Bill
On Tuesday, December 20, 2022, lawmakers unveiled their long-awaited $1.7 trillion government funding package. The package includes 12...
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