On Tuesday, December 20, 2022, lawmakers unveiled their long-awaited $1.7 trillion government funding package. The package includes 12...
Read: Advocacy Update – January 2023: What Does 2023 Hold for Mito Advocacy?On Tuesday, December 20, 2022, lawmakers unveiled their long-awaited $1.7 trillion government funding package. The package includes 12...
Read: Advocacy Update – December 2022: Mito Research Funding Looks Headed for Renewal in Newly Unveiled Funding BillThis week, as part of World Mitochondrial Disease Week, UMDF President & CEO Brian Harman caught up with the offices of several members of...
Read: Advocacy Update – September 2022: Three Things You Should Ask of Congress as We Wrap Up World Mitochondrial Disease WeekThis week, as part of World Mitochondrial Disease Week, UMDF President & CEO Brian Harman caught up with the offices of several members of...
Read: UMDF Marks World Mitochondrial Disease Week, September 18 – 24, 2022The Food and Drug Administration’s (FDA) Center for Drug Evaluation and Research (CDER) announced the launch of the Accelerating Rare...
Read: Advocacy Update – August 2022: The Inflation Reduction Act, Telehealth Extension, FY 2023 Appropriations and more.The Food and Drug Administration’s (FDA) Center for Drug Evaluation and Research (CDER) announced the launch of the Accelerating Rare...
Read: Advocacy Update – May 2022: CDER Launches Program to Speed Development of Rare Disease TreatmentsWhite House Releases Fiscal Year (FY) 2023 Budget Request – Big Proposed Increases for Research On Monday, March 28, 2022, President...
Read: Advocacy Update – April 2022Omnibus Bill Includes 151-Day Extension of Telehealth Waivers Earlier this week, President Biden signed a bill to fund the government through...
Read: Advocacy Update – March 2022United Mitochondrial Disease Foundation 2022 Congressional Outlook As it reconvenes, Congress faces a packed agenda in a legislative year that...
Read: UMDF’s 2022 Congressional OutlookWatch as we discuss this topic during a Congressional Caucus Meeting Before the pandemic, telehealth coverage was limited in scope. However,...
Read: UMDF Updates Congress on Telehealth