Calendar of Events
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UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips, share your story and connect with others. […]
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UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips, share your story and connect with others. […] |
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Learn about all the ways that YOU can Be the Energy for the #mito community. Wherever your talents or interests lie -- whether they be in support, advocacy, or fundraising toward treatments -- you could be a change maker for patients and families impacted by #mitochondrialdisease. Register here: https://umdf.secure.nonprofitsoapbox.com/vol NOTE: Unless specific to a geographic location - all LHON virtual meetings will be set in Eastern Time. This call is for everyone interested in LHON...those affected, carriers, or sighted supporters...all […] |
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Adult Virtual Support Meeting Hello Adults impacted by Mitochondrial Disease! Please join us for an Adult Virtual Support Meeting. We will get to know each other, share resources, and build community! Join us […] This Zoom event is for anyone interested in discussing Navigating Employment/Careers with LHON. Bring your questions and comments to share with the group. There is also a Facebook group: Navigating Employment/Careers with […] |
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UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It […] |
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This call is for those living in the South Central region with an interest in LHON. Consider joining the call and sharing your experiences with others in a similar situation. The […] |
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When: The Second Wednesday of each month at 12:00 PM Eastern Time (US and Canada) Register in advance for this meeting: https://umdf.zoom.us/meeting/register/tZcpcumsrTsiH9w1_pPmjbc-KqRCAIrmQCKt After registering, you will receive a confirmation email containing information about joining the meeting. The LHON Southwest & LHON Pacific Northwest groups have merged! This Zoom event is a great opportunity to connect and discuss resources of interest to the Southwest LHON (previously California) & Northwest […] |
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This call is for those living in Georgia and Florida, with an interest in LHON. Consider joining the call and sharing your experiences with others in a similar situation. |
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UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It […] |
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Parent and Caregiver Virtual Support Meeting Hello Parents and Caregivers impacted by Mitochondrial Disease! Please join us for a Parent and Caregiver Virtual Support Meeting. We will get to know […] This call is for those living in the Midwest with an interest in LHON. Consider joining the call and sharing your experiences with others in a similar situation. Reach out to Lissa […] |
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This Zoom event is for anyone interested in discussing LHON & Assistive Technology. The event is led by Sara Nappi. Sara is affected by LHON, and she is an Assistive […] |
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We are looking forward to wrapping up 2025 with our mito docs! Join us to hear from Dr. Bruce Cohen, Dr. Greg Enns, Dr. Jaya Ganesh, and Dr. Matthew Snyder! The bimonthly call for Dads of LHON-Affected "Kids of All Ages" takes place on the third Wednesday of every other month at 8:00pm Eastern/5:00pm Pacific. If you're a dad of someone affected […] |
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Please Join Us! This call for those living in New York, New Jersey, or Pennsylvania with an interest in LHON takes place quarterly on the third Thursday of the month […] |
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UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It is tough being stuck at home, but you are not alone. Let's get together, share coping tips and have some FUN! UMDF Support Ambassadors, Kristi […] |
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Support Meeting- Northeast PA Third Saturday of each Month- In-Person 10:00pm – 12:00pm Eastern St. Luke's Hospital Priscilla Payne Hurd Education Room Room 104 801 Ostrum Street Bethlehem, PA […] |
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Please join us for a monthly Mindfulness series with UMDF Support Ambassador, Mary Canton. We will host these sessions every fourth Tuesday from 12:00pm -1:30pm ET. You can register HERE |
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UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It is tough being stuck at home, but you are not alone. Let's get together, share coping tips and have some FUN! UMDF Support Ambassadors, Kristi […] |
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UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It is tough being stuck at home, but you are not alone. Let's get together, share coping tips and have some FUN! UMDF Support Ambassadors, Kristi […] |
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