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12 events found.

Education

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  • September 2024

  • Thu 12

    UMDF Ask the Mito Doc Webcast Series – Understanding Genetic Testing

    September 12, 2024 @ 7:30 pm - 8:30 pm

    Join us as we hear from Dr. Austin Larson and Dr. Eva Morava-Kozicz as they provide updates on Genetic Testing for Mitochondrial Disease Patients.

  • Mon 16

    World Mitochondrial Disease Awareness Week

    September 16, 2024 - September 22, 2024

    Energize the Fight – World Mitochondrial Disease Week 2024 We’re excited to unite with other mitochondrial disease-focused patient advocacy groups across the globe to spread awareness on World Mitochondrial Disease […]

  • October 2024

  • Wed 23

    UMDF Ask the Mito Doc Webcast Series – Connecting the Dots

    October 23, 2024 @ 7:00 pm - 8:00 pm

    Join us to hear perspectives from Dr. Andrea Gropman and Dr. Bharantendu Chandra as they share their experiences with common mito disease and ultra rare diseases.

  • November 2024

  • Wed 20

    UMDF Ask the Mito Doc Webcast Series – Understanding POLG Disorders

    November 20, 2024 @ 7:00 pm - 8:00 pm

    Dr. William Copeland and Dr. Bruce Cohen will share information on POLG Disorders - providing a dual perspective on research and clinical practice. Please join us!

  • December 2024

  • Mon 9

    UMDF Bench-to-Bedside Clinical Trials Update – Part 1

    December 9, 2024 @ 12:00 pm - 1:00 pm

    UMDF Bench-to-Bedside - Clinical Trials Update - Part 1 Moderators: Amel Karaa, MD and Philip Yeske, PhD Click Here to Register Natalie Yivgi Ohana, PhD - Minovia Therapeutics Robert Fischer, […]

  • Wed 11

    UMDF Ask the Mito Doc Webcast Series – Wrapping Up 2024 with the Mito Docs

    December 11, 2024 @ 7:00 pm - 8:00 pm

    Join us wrap up the year with at least four mitochondrial specialists - ask questions and hear about any important developments in mitochondrial medicine from each doctor's perspective!

  • January 2025

  • Mon 13

    UMDF Bench-to-Bedside Clinical Trials Update – Part 2

    January 13, 2025 @ 12:00 pm - 1:00 pm

    UMDF Bench-to-Bedside - Clinical Trials Update - Part 2 Moderator: Philip Yeske, PhD and Zuela Zolkipli Cunningham, MD Click Here to Register The Effects of L-arginine on Cerebrovascular Reactivity, Perfusion […]

  • Wed 15

    UMDF Ask the Mito Doc Webcast Series – A Comprehensive Vision: Understanding Chronic Progressive External Ophthalmoplegia (CPEO) from the Eyes to the Body

    January 15, 2025 @ 7:00 pm - 8:00 pm

    Join us to get a bird's eye view of CPEO from two perspectives - the eye and the body as it relates to the CPEO patient.

  • February 2025

  • Wed 12

    UMDF Ask the Mito Doc Webcast Series – Comprehensive Care in Kearns-Sayre and Pearson Syndromes: Diagnosis, Symptom Management, and Support Strategies

    February 12, 2025 @ 7:00 pm - 8:00 pm

    Join us to learn more about Kearns-Sayre Syndrome and Pearson Syndrome from Dr. Rebecca Ganetzky and Dr. Sumit Parikh.

  • Fri 28

    Rare Disease Day

    February 28, 2025

    Visit rarediseaseday.org and share!

  • March 2025

  • Mon 10

    UMDF Ask the Mito Doc Webcast Series – Clinical Trial Readiness and UMDF Mito Med Clinical Research Pavilion Update

    March 10, 2025 @ 12:00 pm - 1:00 pm

    We are combining this month's Ask the Mito Doc webcast with the Bench-to-Bedside and focusing on Clinical Trial Readiness. Join us to learn more.

  • Wed 12

    Frontiers in Mitochondrial Medicine

    March 12, 2025 @ 8:00 am - 5:00 pm

    Frontiers in Mitochondrial Medicine ​​​​​March 12, 2025 -- Icahn School of Medicine at Mount Sinai Click Here for Agenda and to Register The Department of Genetics and Genomic Sciences at the […]

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Last Updated:  Apr 22, 2026 @ 7:34 am

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Mission of UMDF

To promote research and education for the diagnosis, treatment and cure of mitochondrial disorders and to provide support to affected individuals and families.

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