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12 events found.

Education

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Today
  • January 2025

  • Wed 15
    January 15 @ 7:00 pm - 8:00 pm

    UMDF Ask the Mito Doc Webcast Series – A Comprehensive Vision: Understanding Chronic Progressive External Ophthalmoplegia (CPEO) from the Eyes to the Body

    Join us to get a bird's eye view of CPEO from two perspectives - the eye and the body as it relates to the CPEO patient.

  • February 2025

  • Wed 12
    February 12 @ 7:00 pm - 8:00 pm

    UMDF Ask the Mito Doc Webcast Series – Comprehensive Care in Kearns-Sayre and Pearson Syndromes: Diagnosis, Symptom Management, and Support Strategies

    Join us to learn more about Kearns-Sayre Syndrome and Pearson Syndrome from Dr. Rebecca Ganetzky and Dr. Sumit Parikh.

  • Fri 28
    February 28

    Rare Disease Day

    Visit rarediseaseday.org and share!

  • March 2025

  • Mon 10
    March 10 @ 12:00 pm - 1:00 pm

    UMDF Ask the Mito Doc Webcast Series – Clinical Trial Readiness and UMDF Mito Med Clinical Research Pavilion Update

    We are combining this month's Ask the Mito Doc webcast with the Bench-to-Bedside and focusing on Clinical Trial Readiness. Join us to learn more.

  • Wed 12
    March 12 @ 8:00 am - 5:00 pm

    Frontiers in Mitochondrial Medicine

    Frontiers in Mitochondrial Medicine ​​​​​March 12, 2025 -- Icahn School of Medicine at Mount Sinai Click Here for Agenda and to Register The Department of Genetics and Genomic Sciences at the […]

  • April 2025

  • Wed 30
    April 30 @ 7:00 pm - 8:00 pm

    UMDF Ask the Mito Doc Webcast Series – Integrating Physical and Emotional Pain Management in Mitochondrial Disease Care

    Looking for information on Pain Management? Join us April 30.

  • May 2025

  • Tue 13
    May 13 @ 12:00 pm - 1:00 pm

    UMDF Ask the Mito Doc Webcast Series – Mitochondrial Disease and Biorepositories: Why Participation Matters

    Looking for information on Pain Management? Join us April 30.

  • Thu 15
    May 15 @ 8:00 pm - 9:30 pm Navigating Education with LHON

    Navigating Education with LHON

    This Zoom event is your chance to connect with other students, educators, parents and other sighted supporters to discuss Navigating Education with LHON. Please feel free to invite anyone who would benefit from this discussion to join this casual, lively Zoom event. Bring any questions, tips or suggestions you may have, as the discussion will […]

  • June 2025

  • Tue 3
    June 3 @ 12:00 pm - 1:00 pm

    Patient/Family Webcast: What to Expect at UMDF Mito Med 2025

    Join us on June 3, 2025 at 9:00am Pacific/10:00am Mountain/11:00am Central/12:00pm Eastern  Click Here to Register Join us as we share information about the upcoming UMDF Mitochondrial Medicine 2025 in […]

  • Wed 18
    June 18 - June 21

    UMDF Mitochondrial Medicine 2025 in St. Louis, MO

    Hyatt Regency St. Louis Arch 315 CHESTNUT STREET, ST LOUIS, MO, MO, United States

    Join us in St. Louis, Missouri, as we bring together the best minds in mitochondrial medicine and the patients we serve.

  • August 2025

  • Thu 7
    August 7 @ 8:00 pm - 9:30 pm Navigating Education with LHON

    Navigating Education with LHON

    This Zoom event is your chance to connect with other students, educators, parents and other sighted supporters to discuss Navigating Education with LHON. Please feel free to invite anyone who […]

  • September 2025

  • Tue 16
    September 16 @ 7:00 pm - 8:00 pm

    UMDF Ask the Mito Doc Webcast Series – Seizures in Patients with Mito

    Join us to hear from Dr. Russell Saneto as he shares insights on seizure management.

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Last Updated:  Nov 26, 2025 @ 5:01 am

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To promote research and education for the diagnosis, treatment and cure of mitochondrial disorders and to provide support to affected individuals and families.

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Mission of UMDF

To promote research and education for the diagnosis, treatment and cure of mitochondrial disorders and to provide support to affected individuals and families.

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8085 Saltsburg Road, Suite 201
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