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12 events found.

Education

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  • February 2025

  • Wed 12

    UMDF Ask the Mito Doc Webcast Series – Comprehensive Care in Kearns-Sayre and Pearson Syndromes: Diagnosis, Symptom Management, and Support Strategies

    February 12, 2025 @ 7:00 pm - 8:00 pm

    Join us to learn more about Kearns-Sayre Syndrome and Pearson Syndrome from Dr. Rebecca Ganetzky and Dr. Sumit Parikh.

  • Fri 28

    Rare Disease Day

    February 28, 2025

    Visit rarediseaseday.org and share!

  • March 2025

  • Mon 10

    UMDF Ask the Mito Doc Webcast Series – Clinical Trial Readiness and UMDF Mito Med Clinical Research Pavilion Update

    March 10, 2025 @ 12:00 pm - 1:00 pm

    We are combining this month's Ask the Mito Doc webcast with the Bench-to-Bedside and focusing on Clinical Trial Readiness. Join us to learn more.

  • Wed 12

    Frontiers in Mitochondrial Medicine

    March 12, 2025 @ 8:00 am - 5:00 pm

    Frontiers in Mitochondrial Medicine ​​​​​March 12, 2025 -- Icahn School of Medicine at Mount Sinai Click Here for Agenda and to Register The Department of Genetics and Genomic Sciences at the Icahn School of Medicine at Mount Sinai invites mitochondrial disease families to join them on March 12 - in-person or remotely -- for Frontiers in Mitochondrial […]

  • April 2025

  • Wed 30

    UMDF Ask the Mito Doc Webcast Series – Integrating Physical and Emotional Pain Management in Mitochondrial Disease Care

    April 30, 2025 @ 7:00 pm - 8:00 pm

    Looking for information on Pain Management? Join us April 30.

  • May 2025

  • Tue 13

    UMDF Ask the Mito Doc Webcast Series – Mitochondrial Disease and Biorepositories: Why Participation Matters

    May 13, 2025 @ 12:00 pm - 1:00 pm

    Looking for information on Pain Management? Join us April 30.

  • June 2025

  • Tue 3

    Patient/Family Webcast: What to Expect at UMDF Mito Med 2025

    June 3, 2025 @ 12:00 pm - 1:00 pm

    Join us on June 3, 2025 at 9:00am Pacific/10:00am Mountain/11:00am Central/12:00pm Eastern  Click Here to Register Join us as we share information about the upcoming UMDF Mitochondrial Medicine 2025 in […]

  • Wed 18

    UMDF Mitochondrial Medicine 2025 in St. Louis, MO

    June 18, 2025 - June 21, 2025
    Hyatt Regency St. Louis Arch 315 CHESTNUT STREET, ST LOUIS, MO, MO, United States

    Join us in St. Louis, Missouri, as we bring together the best minds in mitochondrial medicine and the patients we serve.

  • September 2025

  • Tue 16

    UMDF Ask the Mito Doc Webcast Series – Seizures in Patients with Mito

    September 16, 2025 @ 7:00 pm - 8:00 pm

    Join us to hear from Dr. Russell Saneto as he shares insights on seizure management.

  • Thu 18

    Community Webinar with Saol Therapeutics to Discuss SL1009 (DCA)

    September 18, 2025 @ 3:00 pm - 4:00 pm
    Virtual Event

    Submit questions and hear directly from Saol leadership regarding DCA, the clinical trial, and the path forward with the FDA.

  • October 2025

  • Tue 14

    UMDF, MitoAction, and POLG Foundation Special Webcast – Elamipretide Expanded Access Program (EAP) Update

    October 14, 2025 @ 12:00 pm - 1:00 pm

    Elamipretide Expanded Access Program Update In collaboration with MitoAction and POLG Foundation, join us on Tuesday, Oct. 14 at 12pm ET for special webinar with Stealth BioTherapeutics to provide an […]

  • Wed 29

    UMDF Ask the Mito Doc Webcast Series – Fact vs. Fiction: Sorting Science from Speculation in Mito Treatment

    October 29, 2025 @ 7:00 pm - 8:00 pm

    Treatments for mitochondrial disease is always a challenge, join us to hear perspectives of sorting out science vs atypical treatments.

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Last Updated:  Jan 27, 2026 @ 2:54 pm

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Mission of UMDF

To promote research and education for the diagnosis, treatment and cure of mitochondrial disorders and to provide support to affected individuals and families.

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