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12 events found.

Education

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  • March 2026

  • Fri 20

    UMDF Ask the Mito Doc Special Webcast – Updates on New TK2d Therapy Kygevvi

    March 20 @ 12:00 pm - 1:00 pm

    Join us to learn about the newly approved TK2d Therapy Kygevvi with a representative of UCB.

  • April 2026

  • Wed 15

    UMDF Ask the Mito Doc Webcast Series – Genetics 101

    April 15 @ 7:00 pm - 8:00 pm

    Dr. Scaglia will be giving us a Genetics 101 on mitochondrial disease - join us and bring your questions.

  • May 2026

  • Thu 14

    Navigating Education with LHON

    May 14 @ 8:00 pm - 9:30 pm Navigating Education with LHON

    This Zoom event is your chance to connect with other students, educators, parents and other sighted supporters to discuss Navigating Education with LHON. Please feel free to invite anyone who […]

  • Thu 28

    UMDF Ask the Mito Doc Webcast Series – What’s Happening Mito Med 2026

    May 28 @ 12:30 pm - 1:30 pm

    Join us to hear from UMDF Staff and volunteers about what will be happening at UMDF Mito Med 2026. We will share more information about sessions and the networking opportunities.

  • August 2026

  • Thu 6

    Navigating Education with LHON

    August 6 @ 8:00 pm - 9:30 pm Navigating Education with LHON

    This Zoom event is your chance to connect with other students, educators, parents and other sighted supporters to discuss Navigating Education with LHON. Please feel free to invite anyone who would benefit from this discussion to join this casual, lively Zoom event. Bring any questions, tips or suggestions you may have, as the discussion will […]

  • September 2026

  • Sat 19

    New York City In-Person Support Group September 2026

    September 19 @ 2:00 pm - 4:00 pm

    We’d love to invite you to a casual, in-person support gathering for individuals and families impacted by mitochondrial disease here in New York City. Living with mitochondrial disease can feel isolating at times, but you are not alone. This gathering is an opportunity to connect with others who understand the journey—whether you’re a patient, parent, […]

  • Tue 22

    UMDF Ask the Mito Doc Webcast Series – POLG: Building Knowledge, Advancing Research, Inspiring Hope

    September 22 @ 12:00 pm - 1:00 pm

    Join us to learn more about POLG and UMDF's initiatives for research and collaborative efforts coming soon.

  • Tue 29

    Breakfast Club Virtual Support Group 2026

    September 29 @ 11:00 am - 12:00 pm Breakfast Club Virtual Support Group 2026

    Start your day right with a morning support group! This group is for everyone! If you are a parent, caregiver or affected individual, please join us! We are better TOGETHER! […]

  • October 2026

  • Tue 27

    Breakfast Club Virtual Support Group 2026

    October 27 @ 11:00 am - 12:00 pm Breakfast Club Virtual Support Group 2026

    Start your day right with a morning support group! This group is for everyone! If you are a parent, caregiver or affected individual, please join us! We are better TOGETHER! […]

  • Tue 27

    UMDF Ask the Mito Doc Webcast Series – Understanding Access to Therapies: Compassionate Use, Expanded Access, and Off-Label Treatment in Mitochondrial Disease

    October 27 @ 7:00 pm - 8:00 pm

    With drug approvals finally becoming a reality for the mito community, there is still so much to learn about accessing therapies - join us to learn more.

  • November 2026

  • Wed 18

    UMDF Ask the Mito Doc Webcast Series – Nutrition, Supplements & New Mitochondrial Disease Therapies: What Patients and Families Need to Know

    November 18 @ 7:00 pm - 8:00 pm

    It is time to hear from Dr. Mark Tarnopolsky to connect the dots with new drug approvals and what is on the horizon.

  • Tue 24

    Breakfast Club Virtual Support Group 2026

    November 24 @ 11:00 am - 12:00 pm Breakfast Club Virtual Support Group 2026

    Start your day right with a morning support group! This group is for everyone! If you are a parent, caregiver or affected individual, please join us! We are better TOGETHER! […]

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Last Updated:  Sep 10, 2026 @ 9:01 am

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Mission of UMDF

To promote research and education for the diagnosis, treatment and cure of mitochondrial disorders and to provide support to affected individuals and families.

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Pittsburgh, PA 15239

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Mission of UMDF

We collaborate to support and empower mitochondrial disease patients and families, drive awareness, mobilize advocacy, improve access to diagnosis and quality care, and accelerate breakthroughs in treatments and cures.

 

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