Join us for the Moms of LHON-Affected "Kids of All Ages" virtual meeting.

This call is ONLY for teens (under 18) who are affected with LHON vision loss. Hosts Jeremy Poincenot and Molly Garrone lead this call. This call takes place at 5:00pm PST/8:00pm EST every other month on the first Tuesday of the month for an hour and a half unless otherwise noted.

NOTE: Unless specific to a geographic location - all LHON virtual meetings will be set in Eastern Time. This call is for everyone interested in LHON...those affected, carriers, or sighted supporters...all […]

This call is ONLY for young adults (18 and over) who are affected with LHON vision loss.

NOTE: Unless specific to a geographic location - all LHON virtual meetings will be set in Eastern Time. The bimonthly call for Dads of LHON-Affected "Kids of All Ages" takes place […]

Were you affected by LHON at age 60 or older? Would you like to network with others in a similar situation? If so, you are welcome to join our Zoom networking event exclusively for individuals affected at age 60 or older. 

This Zoom event is for anyone interested in discussing LHON & Assistive Technology. The event is led by Sara Nappi. Sara is affected by LHON, and she is an Assistive […]