• Parenting with LHON

    Parenting with LHON

    This Zoom event is for anyone interested in discussing parenting while affected with LHON vision loss. Bring your questions and comments to share with the group. Join Details: One option is to use Internet Audio to call at no charge at: https://umdf.zoom.us/j/95371313871 Meeting ID: 953 7131 3871 Or join by phone with one tap mobile: +16699006833,,95371313871# +16468769923,,95371313871# Canada: […]

  • LHON – Northeast Connect

    LHON – Northeast Connect

    This call is for those living in the Northeast with an interest in LHON. Consider joining the call and sharing your experiences with others in a similar situation. The Northeast includes all the New England states (Maine, Vermont, New Hampshire, Massachusetts, Connecticut, & Rhode Island), New York, New Jersey, and Pennsylvania. There are various Facebook groups […]

  • Moms of LHON – Affected “Kids of All Ages”

    If you're a mom of someone affected by LHON, consider joining the call and sharing your experiences with others in a similar situation. Reach out to Lissa Poincenot at lhonpoince@aol.com with any questions. There's also a Facebook group for Moms of LHON-Affected "Kids of All Ages" located at this link: https://www.facebook.com/groups/1862093300546686 Join Details: One option is to use Internet Audio to […]

  • LHON Live! Monthly Call

    LHON Live! Monthly Call

    NOTE: Unless specific to a geographic location - all LHON virtual meetings will be set in Eastern Time. This call is for everyone interested in LHON...those affected, carriers, or sighted supporters...all […]

  • LHON Sisterhood

    LHON Sisterhood

    LHON Sisterhood Are you a woman who carries an LHON mutation? Whether you're affected by LHON symptoms or not, you're invited to be part of the LHON Sisterhood! This community […]

  • LHON West Connect

    LHON West Connect

    The LHON Southwest & LHON Pacific Northwest groups have merged! This Zoom event is a great opportunity to connect and discuss resources of interest to the Southwest LHON (previously California) & Northwest […]

  • LHON Southeast Connect

    LHON Southeast Connect

    This call is for those living in Georgia and Florida, with an interest in LHON. Consider joining the call and sharing your experiences with others in a similar situation.

  • LHON Midwest Connect

    LHON Midwest Connect

    This call is for those living in the Midwest with an interest in LHON. Consider joining the call and sharing your experiences with others in a similar situation. Reach out to Lissa […]

  • LHON Live! Monthly Call

    LHON Live! Monthly Call

    NOTE: Unless specific to a geographic location - all LHON virtual meetings will be set in Eastern Time. This call is for everyone interested in LHON...those affected, carriers, or sighted supporters...all […]