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  • Moms of LHON – Affected “Kids of All Ages”

    Moms of LHON – Affected “Kids of All Ages”

    If you're a mom of someone affected by LHON, consider joining the call and sharing your experiences with others in a similar situation. Reach out to Lissa Poincenot at lhonpoince@aol.com with any questions. There's also a Facebook group for Moms of LHON-Affected "Kids of All Ages" located at this link: https://www.facebook.com/groups/1862093300546686 Join Details: One option is to use Internet Audio to […]

  • LHON – New York, New Jersey, Pennsylvania Connect

    Please Join Us! This call for those living in New York, New Jersey, or Pennsylvania with an interest in LHON takes place quarterly on the third Thursday of the month at 7:00pm EST. Hosts Jim and Mary Tolve facilitate this call. Consider joining the call and sharing your experiences with others in a similar situation. […]

  • New York City In-Person Support Group September 2026

    We’d love to invite you to a casual, in-person support gathering for individuals and families impacted by mitochondrial disease here in New York City. Living with mitochondrial disease can feel isolating at times, but you are not alone. This gathering is an opportunity to connect with others who understand the journey—whether you’re a patient, parent, […]

  • Parent and Caregiver Virtual Support Meeting

    Parent and Caregiver Virtual Support Meeting

    Parent and Caregiver Virtual Support Meeting Hello Parents and Caregivers impacted by Mitochondrial Disease! Please join us for a Parent and Caregiver Virtual Support Meeting. We will get to know each other, share resources, and build community! Join us for a VIRTUAL MEETING! The THIRD Monday of every month! 8:00pm-9:00pm ET Register HERE After registering, you […]

  • Breakfast Club Virtual Support Group 2026

    Breakfast Club Virtual Support Group 2026

    Start your day right with a morning support group! This group is for everyone! If you are a parent, caregiver or affected individual, please join us! We are better TOGETHER! UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips, share your […]

  • Adult Virtual Support Meeting

    Adult Virtual Support Meeting

    Adult Virtual Support Meeting Hello Adults impacted by Mitochondrial Disease! Please join us for an Adult Virtual Support Meeting. We will get to know each other, share resources, and build community! Join us for a VIRTUAL MEETING! The FIRST Thursday of every month! 8:00pm-9:00pm ET Register HERE After registering, you will receive a confirmation email containing information about joining […]