• New York City In-Person Support Group September 2026

    We’d love to invite you to a casual, in-person support gathering for individuals and families impacted by mitochondrial disease here in New York City. Living with mitochondrial disease can feel isolating at times, but you are not alone. This gathering is an opportunity to connect with others who understand the journey—whether you’re a patient, parent, […]

  • Parent and Caregiver Virtual Support Meeting

    Parent and Caregiver Virtual Support Meeting

    Parent and Caregiver Virtual Support Meeting Hello Parents and Caregivers impacted by Mitochondrial Disease! Please join us for a Parent and Caregiver Virtual Support Meeting. We will get to know each other, share resources, and build community! Join us for a VIRTUAL MEETING! The THIRD Monday of every month! 8:00pm-9:00pm ET Register HERE After registering, you […]

  • Breakfast Club Virtual Support Group 2026

    Breakfast Club Virtual Support Group 2026

    Start your day right with a morning support group! This group is for everyone! If you are a parent, caregiver or affected individual, please join us! We are better TOGETHER! UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips, share your […]

  • Adult Virtual Support Meeting

    Adult Virtual Support Meeting

    Adult Virtual Support Meeting Hello Adults impacted by Mitochondrial Disease! Please join us for an Adult Virtual Support Meeting. We will get to know each other, share resources, and build community! Join us for a VIRTUAL MEETING! The FIRST Thursday of every month! 8:00pm-9:00pm ET Register HERE After registering, you will receive a confirmation email containing information about joining […]

  • LHON Live! Monthly Call

    LHON Live! Monthly Call

    NOTE: Unless specific to a geographic location - all LHON virtual meetings will be set in Eastern Time. This call is for everyone interested in LHON...those affected, carriers, or sighted supporters...all […]

  • LHON – Teens

    LHON – Teens

    This call is ONLY for teens (under 18) who are affected with LHON vision loss. Consider joining the call to share your experiences with others in a similar situation. Please contact […]