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  • Parent and Caregiver Virtual Support Meeting

    Parent and Caregiver Virtual Support Meeting

    Parent and Caregiver Virtual Support Meeting Hello Parents and Caregivers impacted by Mitochondrial Disease! Please join us for a Parent and Caregiver Virtual Support Meeting. We will get to know each other, share resources, and build community! Join us for a VIRTUAL MEETING! The THIRD Monday of every month! 8:00pm-9:00pm ET Register HERE After registering, you […]

  • Moms of LHON – Affected “Kids of All Ages”

    Moms of LHON – Affected “Kids of All Ages”

    If you're a mom of someone affected by LHON, consider joining the call and sharing your experiences with others in a similar situation. Reach out to Lissa Poincenot at lhonpoince@aol.com with any questions. There's also a Facebook group for Moms of LHON-Affected "Kids of All Ages" located at this link: https://www.facebook.com/groups/1862093300546686 Join Details: One option is to use Internet Audio to […]

  • Parenting with LHON

    Parenting with LHON

    This Zoom event is for anyone interested in discussing parenting while affected with LHON vision loss. Bring your questions and comments to share with the group. Join Details: One option is to use Internet Audio to call at no charge at: https://umdf.zoom.us/j/95371313871 Meeting ID: 953 7131 3871 Or join by phone with one tap mobile: +16699006833,,95371313871# +16468769923,,95371313871# Canada: […]

  • California Virtual Support Group Meeting

    California Virtual Support Group Meeting

    UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips, share your story and connect with others. We hope you will attend and see that you are not alone. The first Monday of each month• 10:00am – 11:00am Pacific Learn more & […]

  • LHON Live! Monthly Call

    LHON Live! Monthly Call

    NOTE: Unless specific to a geographic location - all LHON virtual meetings will be set in Eastern Time. This call is for everyone interested in LHON...those affected, carriers, or sighted supporters...all are welcome.  You can speak up and share your thoughts, or just listen to what others have to say...It's your call!  Hosts Jessica Loomer and Andy […]

  • LHON – Navigating Employment/Careers

    LHON – Navigating Employment/Careers

    This Zoom event is for anyone interested in discussing Navigating Employment/Careers with LHON. Bring your questions and comments to share with the group. There is also a Facebook group: Navigating Employment/Careers with LHON Join Details: One option is to use Internet Audio to call at no charge at: https://umdf.zoom.us/j/95371313871 Meeting ID: 953 7131 3871 Or join by phone with […]

  • LHON Sisterhood

    LHON Sisterhood

    LHON Sisterhood Are you a woman who carries an LHON mutation? Whether you're affected by LHON symptoms or not, you're invited to be part of the LHON Sisterhood! This community […]