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  • LHON – Affected Women

    LHON – Affected Women

    If you're a woman with LHON vision (affected), consider joining the call and sharing your experiences with others in a similar situation. Reach out to Jessica Loomer jessica.loomer@gmail.com with any questions. There's also […]

  • Leigh Syndrome Awareness Day

    Every year, Sept. 17 is set aside for awareness for Leigh syndrome | UMDF Watch for special programming to be added in the coming months.

  • New York City In-Person Support Group September 2026

    We’d love to invite you to a casual, in-person support gathering for individuals and families impacted by mitochondrial disease here in New York City. Living with mitochondrial disease can feel […]

  • Minnesota In-Person Support Meeting

    We’d love to invite you to a casual, in-person support gathering for individuals and families impacted by mitochondrial disease here in Minnesota. Living with mitochondrial disease can feel isolating at times, but you are not alone. This gathering is an opportunity to connect with others who understand the journey—whether you’re a patient, parent, caregiver, or […]

  • California Virtual Support Group Meeting

    California Virtual Support Group Meeting

    UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips, share your story and connect with others. We hope you will attend and see that you are not alone. The first Monday of each month• 10:00am – 11:00am Pacific Learn more & […]

  • LHON Live! Monthly Call

    LHON Live! Monthly Call

    NOTE: Unless specific to a geographic location - all LHON virtual meetings will be set in Eastern Time. This call is for everyone interested in LHON...those affected, carriers, or sighted supporters...all are welcome.  You can speak up and share your thoughts, or just listen to what others have to say...It's your call!  Hosts Jessica Loomer and Andy […]

  • LHON Plus

    This Zoom event is for anyone interested in discussing LHON Plus. There is also a Facebook group for LHON Plus: https://www.facebook.com/groups/219765024858400 Join Details: One option is to use Internet Audio to call at no charge at: https://umdf.zoom.us/j/95371313871 Meeting ID: 953 7131 3871 Or if your phone plan includes Unlimited Minutes, then here are Toll Charge numbers to […]

  • Support Group for All

    Support Group for All

    When: The Second Wednesday of each month at 12:00 PM Eastern Time (US and Canada) Register in advance for this meeting: https://umdf.zoom.us/meeting/register/tZcpcumsrTsiH9w1_pPmjbc-KqRCAIrmQCKt After registering, you will receive a confirmation email containing information about joining the meeting.

  • LHON – Teens

    LHON – Teens

    This call is ONLY for teens (under 18) who are affected with LHON vision loss. Consider joining the call to share your experiences with others in a similar situation. Please contact Molly Garrone at mollyeknox@gmail.com with any questions. Join Details: One option is to use Internet Audio to call at no charge at: https://umdf.zoom.us/j/95371313871 Meeting ID: 953 7131 […]

  • LHON – Young Adults

    LHON – Young Adults

    This call is ONLY for young adults (18 and over) who are affected with LHON vision loss. Consider joining the call to share your experiences with others in a similar situation. Please contact Molly Garrone at mollyeknox@gmail.com with any questions. Join Details: One option is to use Internet Audio to call at no charge at: https://umdf.zoom.us/j/95371313871 Meeting ID: 953 […]